← Return to Fibromyalgia pain: Let's connect

Discussion

Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Feb 26 8:41pm | Replies (1327)

Comment receiving replies
@pitagirl

I read your story. I was dx: in 2003 with Fibro and 2006 approved for SSI. It was not even recognized as a disease in 2003, I can hear where you are coming from I was there. One being alone all day is probably causing you some depression I did but there is the help. Also, all the trigger points i have 16. I took Norco 6x for 6 yrs until i realized that those drugs were killing me. Had my doctor put me on Tramadol 3xday only 50 mg and savella 100mg 2xd. I know you say you don\'t drive but if you want to know what i did you would have to figure out how to get there. I joined the gym aqua therapy is a blessing your weightless. I even got myself into the gym after the therapy and took it slow. I found the light impact very slowly to start. I felt better. Did not help with the sleep issues we do not go into Rem sleeping crazy. Hope my words helped you.

Jump to this post


Replies to "I read your story. I was dx: in 2003 with Fibro and 2006 approved for SSI...."

I read your story and it has so many interesting points for me. The first one being, that you were taken Norco for several years and then decided to stop, successfully. I have also been taking Norco for neck and back problems. But I noticed, that it also pulls me down in a lot of other ways. I tried to wean off, but when the pain comes back, I end up going up again. Now I am dependent on it. How did you do it? You mentioned some other meds, which helped you. We live in a gated community with their own pools and health clubs, plus lessons. Used to do all of this, including Pilates, tennis and excercise regimen.
I would love to hear from you. This Mayo Connect is a wonderful way of connecting with people, who have similar issues to overcome. Docs sometimes do not have the time to spend with us.

Edda, I hear where you are coming from the pain at times is unbearable. Studies have shown that you have to move. Easier said than done. I begged my pm doctor get me off these terrible drugs it is going to cause organ damage. Amazingly I went from Norco to Tramadol without any issues. Might be the exception to the rule. I take the tramadol and Savella. I also have scoliosis and deg disc disorder. I am not sure what state you are in or if the pool is indoor. You are weightless in the water. If you cannot get in the water ask for aqua therapy. I had to change pm and this doctor only wanted to introduce the epi injections. (which are not even approved by the FDA) can cause blindness, loss of feeling in limbs and death. Not worth it. Of course, i am in pain but I can manage it. If I have to break thru pain I take Tylenol. We have to reclaim our lives move your body. Also, my doctor told me being lighter in weight would help not carrying weight Went from 162 to 115 in less than 1 1/2 yrs. Good luck hope you are having a good day. Donna from Arizona

Before my infusion they give me 4 meds by IV. Tylonol is one but twice your dose. Something like 600

The first two days after infusion, I had two days pain. The third day I have little to no end. I had not felt this good in years. I wish I could get infusions more often. But I understand the are a chemical..I can dream can\'t I? I am going to ask my doctor about Tylanol 600+

Hang in there. Not sure you have done this or not but whole body mediation can relax your body. In your mind tell your body to relax starting from feet, if you listen to soft music. Heck we will try anything.

Yes. I have heard about it. Meditation
. I will try anything except nsrcodics.

Hi See a I have fibromyalgia and for 30 yrs found out what helps me now Water aerobics in warm water,not shower,Tens unit for tight muscles,it\'s important not to just sit ,you have to do some kind of light exercising and listen to your body when you get tired stop,chiropractor does help and learn to pace yourself.For my pain I drink Arnica tea it\'s for pain

What are the infusions for night I ask?

That is amazing. It is so hard to loose weight. I am 20 lbs over weight. I figure that women 10 yrs from will thank us for trying all these things. However we have been made to believe we cannot take nsrcodics. They punish us because of the young getting it. How do they do it?

RA