Multiple Sclerosis (MS) - please introduce yourself

@darlia I completely understand your frustration with not having call backs from doctors offices and they don't know what the scans they ordered mean. I am in agreement with everyone else that a trip to Mayo might be beneficial into to finding out what is wrong with you. I had to make that trip myself to find out what was wrong with me.

I had a rough weekend and I am just now feeling up to writing. Our church had their annual Prairie Fest and we were there from 5-10:30 on Friday, on Saturday from 12-10:30, and on Sunday from 11-5 after church. My arms were so sore today I couldn't put on my socks because I could barely raise my arm and my muscles hurt. My legs were numb and so stiff it hurt to bend my knees. I had shooting pain down my neck and back and my fingers were stiff with tingling pain. I had headaches that wouldn't go away even with meds. My face is numb on one side and I can barely hear out the ear on that side. I am feeling tired so I will close for now.

Wow! Reading what you published here is like looking in the mirror! But I HAVE NOT been diagnosed with MS! (Yet!)
My life is the same. Including the not knowing what it feels like to NOT have pain. I always snicker at the medical appts/tests and procedures when they ask you "do you have any pain?" Ha ha ha!! I NEVER get to say no. Okay, if I'm just waking up from maybe yes!
But as for this keep n keeping on. This old world will get better some day. The Bible promises this!
Cyber Hugs to you!

PS.. I've been to Mayo in Scottsdale. AZ in 2010. If I can I'll make an appt there for this Winter

Hello Rob @disneyfan

Thanks for checking in with us. Hmm, Prairie Fest - I haven't heard of that before - can you tell us some more?

I am sorry to hear of your symptoms after being busy, however, neurological disorders are like that. In order to keep your symptoms at bay it is important to moderate your activity level with resting. It really does involve achieving a different lifestyle but it is well worth the adjustment in order to avoid the extreme symptoms you describe in your post. Here is some info from the National MS Foundation regarding fatigue and MS http://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Fatigue

How are you feeling this morning?

Teresa

Hello Darlia @darlia

Nice to hear from you.
I am glad to hear that Mayo in Scottsdale is familiar to you. Will you keep us posted and let us know how you are feeling?

Teresa

@kcowan16

Thanks for your encouraging words. How are you feeling these days?

Teresa

@hopeful33250. I am ok most days. I am getting use to taking my Plegridy injections every two weeks. In the back of my mind I am worried that I might have another flare when the seasons change and what new or old symptoms will appear. Hopefully the meds will be in my system good enough to prevent this from happening.

@kcowan16

Yes, I hope that the meds will help you to take on the seasonal changes without any difficult flares. Here are some websites that talk about MS flare-ups: http://www.nationalmssociety.org/Treating-MS/Managing-Relapses and http://www.webmd.com/multiple-sclerosis/ms-flare-causes#2

Teresa

Hi @disneyfan, I find that I have to limit my activities to make sure I don't over do it. My body does the same thing to me when I don't take things slow and easy. It is so easy to get wrapped up in the fun without realizing it's going to cause some pain and soreness later.

Hoping you recover quickly. John

Today I am feeling much better just have a headache and earache besides the usual pains. This festival is something our church has and the name is just what we call ours because it is built on a prairie that we maintain. I am doing laundry because my wife starts school tomorrow and my daughter starts next week. I have a hard time during school season because before I got this PPMS I was a special education teacher. I really miss the classroom and the kids.