My husband had one removed in 2010 and has 2 more now (meningiomas) he is in so much pain that he wants to end it all. But we have 4 children ages 4 to 15.
As far as I know, radiation does work if the tumor is not very big. My tumor is over 3cm and I got different opinions, none of the doctors recommended radiation due to the size “except one doctor”!!!
I had no idea that I had these meningiomas. I am a 50 year old female and I had never had a head / brain mri until I went to the ER with symptoms. I was told they are typically slow growing and benign (which all of mine were WHO 1) and they usually "watch and wait" until they are causing pressure on the brain and causing symptoms.
I had a similar situation - went to the ER because I fell on my arm and head and that's where they spotted the meningioma. I'm also on watch and wait - MRI next month to check.
@morock77, I'm so sorry to hear about your husband; please take a look at the Mayo Clinic link, above as it has some detailed information about meningiomas.
@morock77, may I ask if surgery is an option for your husband? How is he coping with the pain from day-to-day? @wegotthis, has your doctor outlined any next-steps for you?
I have had 3 MRI post surgery and visit my neurology team at WVU Ruby regularly. This 9 month check up has indicated a spot that could be potentially a new meningioma. So now we watch and wait. Something I did not have to do deal with the first time since I had brain surgery 10 days following the discovery of the 5 tumors that I had removed in 2017. Gamma knife radiation has already been discussed for a plan with this one if needed.
@morock77, I'm so sorry to hear about your husband; please take a look at the Mayo Clinic link, above as it has some detailed information about meningiomas.
@morock77, may I ask if surgery is an option for your husband? How is he coping with the pain from day-to-day? @wegotthis, has your doctor outlined any next-steps for you?
@morock77, I'm so sorry to hear about your husband; please take a look at the Mayo Clinic link, above as it has some detailed information about meningiomas.
@morock77, may I ask if surgery is an option for your husband? How is he coping with the pain from day-to-day? @wegotthis, has your doctor outlined any next-steps for you?
@morock77, I'm so sorry to hear about your husband; please take a look at the Mayo Clinic link, above as it has some detailed information about meningiomas.
@morock77, may I ask if surgery is an option for your husband? How is he coping with the pain from day-to-day? @wegotthis, has your doctor outlined any next-steps for you?
My husband has been experiencing stabbing pain to the head since 2010 after the first tumor was removed. These headaches he said feel like someone is stabbing him with a knife in the head. The doctors are still trying to figure out why. During these headaches he is slurring his speech, looks like a seizure ( which the doctors say there not seizures) then he passes out for 1 to 5 hours depending on severity of headaches.
Hi Everyone. I'm new here. Just found out I have 6 brain tumors.
I noticed vision loss in my left eye (blurry vision and color vision loss) in April and it was thought to be optic neuritis. I didn't have a good insurance at the time so I decided to wait on the MRI until I get better insurance. I had no other symptoms besides the vision loss. Beginning in July, started to have headaches in the same place (back left side) and vision in left eye has decreased. MRI on 8/25 shows multiple meningiomas.
The largest meningioma is 1.9 cm and it's wrapped around my left optic nerve. Doctors think the meningiomas are benign from the way it looks but cannot be sure unless surgery is done. Also unsure how fast the meningiomas are growing because there is nothing to compare to as no prior MRIs were done.
I've discussed radiation treatment possibilities with the radiation oncologist and my appointment with the neurosurgeon is tomorrow. Right now, they are not looking to treat the other meningiomas, only the biggest one pressing on the optic nerve.
Doctors have ordered MRI of the spine to make sure I don't have meningiomas there as well. I am also scheduled to meet with a geneticist. I have no knowledge of a history of this in my family. My dad had meningitis as a child, diabetes as an adult, and passed away from colon cancer at 54. My mom had a benign tumor in her uterus which was removed when she was around 50.
I haven't been exposed to any more radiation than the average person and have always been in good overall health. I'm 34 years old and I'm so scared. I've never experienced anything like this before. I'm trying my best to stay positive but I'm terrified.
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As far as I know, radiation does work if the tumor is not very big. My tumor is over 3cm and I got different opinions, none of the doctors recommended radiation due to the size “except one doctor”!!!
I had a similar situation - went to the ER because I fell on my arm and head and that's where they spotted the meningioma. I'm also on watch and wait - MRI next month to check.
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1 ReactionI have had 3 MRI post surgery and visit my neurology team at WVU Ruby regularly. This 9 month check up has indicated a spot that could be potentially a new meningioma. So now we watch and wait. Something I did not have to do deal with the first time since I had brain surgery 10 days following the discovery of the 5 tumors that I had removed in 2017. Gamma knife radiation has already been discussed for a plan with this one if needed.
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1 ReactionWhere were and are the tumors located?
All left frontal lobe which affected my walking and motor skills and balance. New one is directly on top center
Do you get stabbing headaches?
I had stabbing pain in my eyebrow area for 40 years. I believed these to be migraines. No other head pain
All over the left side of my brain. I have 19 left. I had 4 removed when I had my stroke 3 1/2 years ago.
My husband has been experiencing stabbing pain to the head since 2010 after the first tumor was removed. These headaches he said feel like someone is stabbing him with a knife in the head. The doctors are still trying to figure out why. During these headaches he is slurring his speech, looks like a seizure ( which the doctors say there not seizures) then he passes out for 1 to 5 hours depending on severity of headaches.
Hi Everyone. I'm new here. Just found out I have 6 brain tumors.
I noticed vision loss in my left eye (blurry vision and color vision loss) in April and it was thought to be optic neuritis. I didn't have a good insurance at the time so I decided to wait on the MRI until I get better insurance. I had no other symptoms besides the vision loss. Beginning in July, started to have headaches in the same place (back left side) and vision in left eye has decreased. MRI on 8/25 shows multiple meningiomas.
The largest meningioma is 1.9 cm and it's wrapped around my left optic nerve. Doctors think the meningiomas are benign from the way it looks but cannot be sure unless surgery is done. Also unsure how fast the meningiomas are growing because there is nothing to compare to as no prior MRIs were done.
I've discussed radiation treatment possibilities with the radiation oncologist and my appointment with the neurosurgeon is tomorrow. Right now, they are not looking to treat the other meningiomas, only the biggest one pressing on the optic nerve.
Doctors have ordered MRI of the spine to make sure I don't have meningiomas there as well. I am also scheduled to meet with a geneticist. I have no knowledge of a history of this in my family. My dad had meningitis as a child, diabetes as an adult, and passed away from colon cancer at 54. My mom had a benign tumor in her uterus which was removed when she was around 50.
I haven't been exposed to any more radiation than the average person and have always been in good overall health. I'm 34 years old and I'm so scared. I've never experienced anything like this before. I'm trying my best to stay positive but I'm terrified.