#MayoClinicNeuroChat Live from American Association of Neurological Surgeons Annual Meeting

Mon, Apr 30, 2018
2:30pm to 3:00pm CT

Description

Dr. Bernard Bendok, Dr. Alfredo Quinones-Hinojosa, Dr. Robert Spinner and Dr. Fredric Meyer, the Chairs of Neurosurgery at Mayo Clinic, discuss the latest innovations and techniques in neurosurgery. 

Learn more about:

  • Innovations in diagnosis
  • Novel treatment techniques, including awake brain surgery
  • Future advancements

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Are their any remedies for Drop-Foot. Caused from a fall, not on a hard surface.
MRI shows problems with Lumbar spine.
Have had for five years.

What are your experiences with patients going through Gamma Knife surgery for Acoustic Neuroma & Meningioma tumors? Does it cause more harm than good, does it last forever or will I still have to have tumors surgically removed?

I am 33 years with MUSK positive Myasthenia gravis…have spent years on low-dose prednisone and ultra low dose pyridostigmine AS NEEDED…had IVIG in January…back at my baseline. Because of diminishing calcium, doctors have suggested decrease in prednisone and start of Cellcept(liquid), I have been on it for 8 days and even with Ranitidine… it is hard to tolerate in my stomach.., AND my head fills Ike an inflated balloon encased in my skull so I take two/ three ibuprofens per day. Today I STOPPED the Cellcept, it’s been debilitating…. between the head pressure and the upset stomach…. I can’t leave my house…. not mention the fact that I am on TWO immune suppressants during cold and flu season.. I am taking 4ml of Cellcept twice a day and alternating prednisone 5/10 mgs a day.

@looking2u4more

I am 33 years with MUSK positive Myasthenia gravis…have spent years on low-dose prednisone and ultra low dose pyridostigmine AS NEEDED…had IVIG in January…back at my baseline. Because of diminishing calcium, doctors have suggested decrease in prednisone and start of Cellcept(liquid), I have been on it for 8 days and even with Ranitidine… it is hard to tolerate in my stomach.., AND my head fills Ike an inflated balloon encased in my skull so I take two/ three ibuprofens per day. Today I STOPPED the Cellcept, it’s been debilitating…. between the head pressure and the upset stomach…. I can’t leave my house…. not mention the fact that I am on TWO immune suppressants during cold and flu season.. I am taking 4ml of Cellcept twice a day and alternating prednisone 5/10 mgs a day.

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I am on 2500 mg cellcept and am fortunate I have not experienced your side effects. Often the docs prescribe Immuran when cellcept is not tolerated. Also Ritumab has been successful with MUSK.
Good luck

@looking2u4more

I am 33 years with MUSK positive Myasthenia gravis…have spent years on low-dose prednisone and ultra low dose pyridostigmine AS NEEDED…had IVIG in January…back at my baseline. Because of diminishing calcium, doctors have suggested decrease in prednisone and start of Cellcept(liquid), I have been on it for 8 days and even with Ranitidine… it is hard to tolerate in my stomach.., AND my head fills Ike an inflated balloon encased in my skull so I take two/ three ibuprofens per day. Today I STOPPED the Cellcept, it’s been debilitating…. between the head pressure and the upset stomach…. I can’t leave my house…. not mention the fact that I am on TWO immune suppressants during cold and flu season.. I am taking 4ml of Cellcept twice a day and alternating prednisone 5/10 mgs a day.

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My prayers to Almighy for your recovery and make life tolerable.HE definitely helps.Just wish to know whether you were on Statins for long time earlier to onset of MG ?

@looking2u4more

I am 33 years with MUSK positive Myasthenia gravis…have spent years on low-dose prednisone and ultra low dose pyridostigmine AS NEEDED…had IVIG in January…back at my baseline. Because of diminishing calcium, doctors have suggested decrease in prednisone and start of Cellcept(liquid), I have been on it for 8 days and even with Ranitidine… it is hard to tolerate in my stomach.., AND my head fills Ike an inflated balloon encased in my skull so I take two/ three ibuprofens per day. Today I STOPPED the Cellcept, it’s been debilitating…. between the head pressure and the upset stomach…. I can’t leave my house…. not mention the fact that I am on TWO immune suppressants during cold and flu season.. I am taking 4ml of Cellcept twice a day and alternating prednisone 5/10 mgs a day.

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Prayers for your recovery.Om Shanti ie Peace to all.

@tom2017

Are their any remedies for Drop-Foot. Caused from a fall, not on a hard surface.
MRI shows problems with Lumbar spine.
Have had for five years.

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Hi Tom @tom2017
Great question regarding the treatment options for foot drop. Here is general information from Mayo Clinic about treatment options https://www.mayoclinic.org/diseases-conditions/foot-drop/diagnosis-treatment/drc-20372633
You may also be interested in joining other members who are talking about drop foot on Connect here: https://connect.mayoclinic.org/discussion/foot-drop-226da2/

What treatment have you tried?

@annamae1952

What are your experiences with patients going through Gamma Knife surgery for Acoustic Neuroma & Meningioma tumors? Does it cause more harm than good, does it last forever or will I still have to have tumors surgically removed?

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@annamae1952, I look forward to hearing responses from the doctors to your questions about stereotactic radiosurgery (SRS), which is sometimes referred to as gamma dnife or cyberknife surgery.

SRS has been discussed a lot among Connect members living with meningioma and acoustic neuromas. You may wish to join in these conversations:
– multiple meningioma brain tumors https://connect.mayoclinic.org/discussion/brain-tumors/
– Life after Brain surgery https://connect.mayoclinic.org/discussion/life-after-brain-surgery/

@looking2u4more

I am 33 years with MUSK positive Myasthenia gravis…have spent years on low-dose prednisone and ultra low dose pyridostigmine AS NEEDED…had IVIG in January…back at my baseline. Because of diminishing calcium, doctors have suggested decrease in prednisone and start of Cellcept(liquid), I have been on it for 8 days and even with Ranitidine… it is hard to tolerate in my stomach.., AND my head fills Ike an inflated balloon encased in my skull so I take two/ three ibuprofens per day. Today I STOPPED the Cellcept, it’s been debilitating…. between the head pressure and the upset stomach…. I can’t leave my house…. not mention the fact that I am on TWO immune suppressants during cold and flu season.. I am taking 4ml of Cellcept twice a day and alternating prednisone 5/10 mgs a day.

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Hi @looking2u4more and @susiejohn
I would appreciate your sharing your experiences with MuSK positive Myasthenia gravis with Connect members in these discussions:
– Myasthenia Gravis* https://connect.mayoclinic.org/discussion/hi-everyone-let-me-begin-by-telling-you-some-of-my-story/
– Myasthenia gravis (MG) https://connect.mayoclinic.org/discussion/myosthenia-gravis/

@annamae1952

What are your experiences with patients going through Gamma Knife surgery for Acoustic Neuroma & Meningioma tumors? Does it cause more harm than good, does it last forever or will I still have to have tumors surgically removed?

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Anna, I meant to also link you to this archived Video Q&A about acoustic neuromas:
– #MayoClinicNeuroChat on Acoustic Neuromas with Dr. Weisskopf https://connect.mayoclinic.org/webinar/mayoclinicneurochat-on-acoustic-neuromas-with-drs-bendok-weisskopf/

How does leukocytoclastic vasculitis and osteoarthritis and a cavernoma affect meningioma treatment or surgery? Thanks!

Hi everyone, unfortunately we experienced technical difficulties with streaming the discussion live. Luckily we successfully recorded the session and will post the video as soon as it is ready.

Liked by mountainocean, EES1

Thank you

Hi @tom2017 @annamae1952 @looking2u4more @susiejohn @kishanvasekar @ees1 @stellgma @mountainocean The video Q&A has been uploaded to the website. Simply click VIEW & REPLY in the email and then scroll to the top of the page.
Dr. Bernard Bendok, Dr. Alfredo Quinones-Hinojosa, Dr. Robert Spinner and Dr. Fredric Meyer were able to answer many of your questions.

@tom2017

Are their any remedies for Drop-Foot. Caused from a fall, not on a hard surface.
MRI shows problems with Lumbar spine.
Have had for five years.

Jump to this post

Years back when my fall first happened I saw a Neurologist and he did some testing (electrical stimulation) and had me do PT.
I have been wearing a fitted brace on my left foot since. The feeling was after the PT I had what I was going to have.
I have had SEVERAL falls over the years and have been fortunate enough to have had no serious injuries.
I have serious back pain (L! through L5) involving my lower spine. It has developed into hip pain as well. I have no idea if these problems could be factor in the Foot Drop.
I am having X-rays and MRI's taken in the next few days. Your reply is my first positive interaction I have had to possible help.
I also have Ankylosing spondylisis. Diagnosed at age 42 current age is 77. Any back X-rays I have had show no fusing to date.

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