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multiple meningioma brain tumors
Brain Tumor | Last Active: May 29, 2023 | Replies (127)Comment receiving replies
Hello @wegotthis, and welcome to Connect. You're right that, "Because most meningiomas grow slowly, often without any significant signs and symptoms, they do not always require immediate treatment and may be monitored over time." https://www.mayoclinic.org/diseases-conditions/meningioma/symptoms-causes/syc-20355643
@morock77, I'm so sorry to hear about your husband; please take a look at the Mayo Clinic link, above as it has some detailed information about meningiomas.
You may also wish to view these discussions:
– Watching a Meningioma Brain Tumor https://connect.mayoclinic.org/discussion/watching-a-meningioma-brain-tumor/
– MayoClinicNeuroChat Live from American Association of Neurological Surgeons Annual Meeting https://connect.mayoclinic.org/webinar/mayoclinicneurochat-live-from-american-association-of-neurological-surgeons-annual-meeting/
I'd like to invite @robinem @eleanor1931seminara193 @lindajean @barbarabx @nancye3 @cnesselroad @pranas @wkindel into this discussion, and share their insights.
@morock77, may I ask if surgery is an option for your husband? How is he coping with the pain from day-to-day? @wegotthis, has your doctor outlined any next-steps for you?
Replies to "Hello @wegotthis, and welcome to Connect. You're right that, "Because most meningiomas grow slowly, often without..."
I have had 3 MRI post surgery and visit my neurology team at WVU Ruby regularly. This 9 month check up has indicated a spot that could be potentially a new meningioma. So now we watch and wait. Something I did not have to do deal with the first time since I had brain surgery 10 days following the discovery of the 5 tumors that I had removed in 2017. Gamma knife radiation has already been discussed for a plan with this one if needed.
Where were and are the tumors located?
All left frontal lobe which affected my walking and motor skills and balance. New one is directly on top center
All over the left side of my brain. I have 19 left. I had 4 removed when I had my stroke 3 1/2 years ago.
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Nothing like ibuprofen and Excedrin doesn't work. Laying down also doesn't work still waiting for over 6 months to see what our next step is. The tumor that he had in 2010 grew from a golf ball to a grapefruit in a matter of days. The doctors don't want to do surgery because it can be fatal. My husband only received 2 different pain pills since 2010 which he got 2 months ago but had to get off them since they were making him very sick. I want to take him to the mayo clinic but finances and a sitter is preventing us from going there. The doctors even don't know what is causing the headaches, nor why he has an seizure like attack which makes him pass out for hours. Doctors say they are not seizures then what the heck are they!!? I'm terrified and stressed because no one has answers nor the treatment that he so desperately needs.