Grover's Disease: What works to help find relief?

You'll get over pinching your nose. Our tastes will adjust some. I gagged on cooked carrots as a child and love them now, yep, I had to eat them to leave the table. Like frogger I add yogurt, but love the probiotic whole milk plain to which I add a bit of Stevia (the only sweetener allowed on my anti-inflammation diet. I avoid all processed sugar which many flavored yogurts add. Banana does help moe then any other fruit to balance the flavor somewhat. I peel bananas, slice into 2 inch pieces, freeze and put about 3-4 pieces in the smoothie. They don't turn black. Frozen banana takes the place of ice and find like nodgabnoj a smoothie of any type is better cold.

Glad to learn that your doctor is aware that cilantro is helping. I sure wish an MD had shared this information with me, even if only about 45% of us are helped by cilantro, that's a huge percentage.

Hi ! Thank you for the information on Cilantro. I've been adding a handful to what I call my "Kitchen sink" Smoothie (Blue, Black, Raze, Straw and Cran-berries with Banana, Olive oil, Plain yogurt ,Apple with a little Pom. Juice, all organic) I've been adding the Cilantro every day for abut a week and a half. I think it's helping some. My question is how long do you use it at first and did you continue with the topical medication ? I am very fortunate in that the Grover's is concentrated mostly on my chest and I have no itching. I believe I got it due to Six days a week in the gym and Steam room. Thank you for any advice and for your time.

Took every day for 7 months. But nothing except half a stalk/bunch of cilantro, one Yoplai yogurt container, and orange juice. Blended and drank. Nothing else was needed. Tasted good. I kept it simple and easy. That worked. and kept Grover’s at bay.

I did a similar time period as fogger, just a month longer. It would help you to make a cup of tea, prop your feet up, go back mid Feb 2019 and read this entire blog. Good info from real people with GD experimenting with alternative treatments since the prescription steroids or other meds doctors prescribe never helped most of us.

I am on month 10 and still do it daily. I never had any itching but I am now left with some fading post-inflammatory hyperpigmentation and brown spots (look like small moles but are residual Grover’s). My problems started in November 2019 and got far worse after my derm prescribed an antibiotic thinking it was folliculitis. That made it explode across my stomach.

I do not know if the hyperpigmentation and raised brown spots will ever fade away completely but it still beats that ugly red mess.

So, in short, be patient and stick with it for a while. Some online forums say 1-2 months or even shorter (weeks). That is not always the case.

Best of luck!

Thank you all !

I was recently just diagnosed... well let’s say it came back with two possibilities from my biopsy. Grovers of DH (celiac). Though celiac runs in my family but DH doesn’t. I don’t eat a Hugh gluten diet but my dermatologist thinks it is DH verses grovers. My rash started under one breast over the summer (1.5 years ago) and I was put on steroids. When I came off the steroids it flared up and spread to my stomach, back, head, elbows, and legs Bikini line is best to describe in and continues to move down my legs. The first biopsy I had last year said I had eczema. I have been diagnosed with autoimmune diseases of MCTD and Sjögren’s. I have a tub of steroid cream and not working... she is putting me on dapsone and if it works then it is really DH but I would love to hear more about the cilantro people are mentioning. How much and often? What do you mix it with or eat it plan? How long until you saw improvement? I am desperate to find relief.

I initially used steroids and then a demonologist suggested neotigason -Acitretin and that with cilantro have been a winner , when necessary and sparingly i use Eleuphrat cream on an itchy spot

You do have lots going and like you I had a difficult time getting a diagnosis. Grover's isn't suppose to run in families, yet my sister has it also. It is possible to have multiple types of eczema, I do. You mention rash on elbows and legs but I am wondering if that is a different form of eczema than GD. Typically GD doesn't manifest in those areas. Have you been tested for Allergic Contact Dermatitis, ACD? Look up 5 Day Extended Patch Test. Very few of us get relief from steroids with GD. I never did, yet they would help with my one of my other forms of eczema, ACD is helped by steroids when symptomatic. What is MCTD? What you need to do is to go back to Feb or March of 2019 in this blog because it really is a long story to retell. Kimass1 is the blogger who brought it to our attention. You can follow our personal successes and failures trying cilantro. We are stumbling and just guessing on how much to use because there is so little info about this herbal treatment. My derms never heard of it. We share our recipes, how much cilantro we use, how to keep it fresh longer in the refrigerator and how to freeze. We share when we start to notice improvement and how long it takes to be certain we are in remission. Also even in remission many of us have scabs which no longer itch, but simply don't fall off for months. I think it took a full year for every single scab to drop off. None of us had success with cilantro tablets.