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Grover's Disease: What works to help find relief?
Skin Health | Last Active: 13 hours ago | Replies (1938)Comment receiving replies
I was recently just diagnosed... well let’s say it came back with two possibilities from my biopsy. Grovers of DH (celiac). Though celiac runs in my family but DH doesn’t. I don’t eat a Hugh gluten diet but my dermatologist thinks it is DH verses grovers. My rash started under one breast over the summer (1.5 years ago) and I was put on steroids. When I came off the steroids it flared up and spread to my stomach, back, head, elbows, and legs Bikini line is best to describe in and continues to move down my legs. The first biopsy I had last year said I had eczema. I have been diagnosed with autoimmune diseases of MCTD and Sjögren’s. I have a tub of steroid cream and not working... she is putting me on dapsone and if it works then it is really DH but I would love to hear more about the cilantro people are mentioning. How much and often? What do you mix it with or eat it plan? How long until you saw improvement? I am desperate to find relief.
Replies to "I was recently just diagnosed... well let’s say it came back with two possibilities from my..."
I have had GD for over a year now. Oral steroids did work for me, but not something you should take for any length of time. I've been drinking the Cilantro smoothies for about a year. They seem to limit my outbreaks. The itching and rashes are not nearly as bad as they were before I started to drink them regularly. I drink them every day. I buy several bunches of Cilantro, cut off the very bottoms as they are generally dirty, wash them thoroughly, split each bunch in half, put them in plastic bags and freeze them. I generally blend them with some juice, yogurt, honey and some fruit. I blend them really well, and the cilantro flavor really disappears. I also put in two crushed tablets of Lysine, for the itching, as well. The colder, the better. Experimentation will eventually lead you to a palatable drink. I hope this is of value to you. I read this site every day as the information here is better than any than what you'll hear from most doctors. Good luck.
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You do have lots going and like you I had a difficult time getting a diagnosis. Grover's isn't suppose to run in families, yet my sister has it also. It is possible to have multiple types of eczema, I do. You mention rash on elbows and legs but I am wondering if that is a different form of eczema than GD. Typically GD doesn't manifest in those areas. Have you been tested for Allergic Contact Dermatitis, ACD? Look up 5 Day Extended Patch Test. Very few of us get relief from steroids with GD. I never did, yet they would help with my one of my other forms of eczema, ACD is helped by steroids when symptomatic. What is MCTD? What you need to do is to go back to Feb or March of 2019 in this blog because it really is a long story to retell. Kimass1 is the blogger who brought it to our attention. You can follow our personal successes and failures trying cilantro. We are stumbling and just guessing on how much to use because there is so little info about this herbal treatment. My derms never heard of it. We share our recipes, how much cilantro we use, how to keep it fresh longer in the refrigerator and how to freeze. We share when we start to notice improvement and how long it takes to be certain we are in remission. Also even in remission many of us have scabs which no longer itch, but simply don't fall off for months. I think it took a full year for every single scab to drop off. None of us had success with cilantro tablets.