Grover's Disease: What works to help find relief?

hello i was just dx with grovers exactly how do you get it? is it heredity

https://rarediseases.info.nih.gov/diseases/6551/grovers-disease#diseaseGardAnswersSection Try this. There are many theories.

Go to this discussion from the beginning and read all the posts. I learned about cilantro working to detox our GD, it has worked for me and about 50% of the others. The earthclinic site is mentioned in this discussion, go there and read other testimonials about its effectiveness.

hello how do you start a new post on here i dont see an option

Look at the top left side for Groups. Click. Scroll down until you see the group you want to post on. For example if you want to start a discussion about your skin, go to Skin Health and click on that. Once you do you will see where to click to start a discussion. .

awesome thank you very much

Hi to all. Update. 2nd biopsy confirmed Grover’s. My plan of attack has been minocycline, vitamins C, D (was extremely low) and E also a probiotic. Cool shower with tincture if green soap. I’m no longer using the steroid creams. I am happy to say the rash and itch is subsiding. I’m using Sarna for the itch control and cetaphil for moisturizing. A fan above me and one on the side of me along with cotton sheets. Last weekend with the high humidity we went to a lake so I wore a bathing suit. Not for long though the nylon and mesh and being tight on my body caused so much discomfort. Ripped it off and put on a white cotton T-shirt. ( these days I really don’t care what I wear as long as it’s comfortable and not clingy.) I have a big weekend outside in the sun and heat and I’m a bit nervous. I Should but am afraid to use sunscreen for fear of it aggravating the rash. I’ll try to keep covered up.

That’s great. My hubs still has a ton of itchy spots. Thinking the cilantro is not working for him. But, we keep trying. It gets better and then worse. The vitamin A in high doses is the only thing that got rid of it. But, once the dose was decreased, it came back with a vengeance. 🙁

My biggest fear when I stop taking the minicycline that this will come back. It’s been about 6 months now. Definitely changed my life.

I am so sorry it is not helping your husband, seems it only helps about half of us. Calcipotreine, Vitamin D topical approved for psoriasis helped a bit but had to wait my full 6 months to be in remission. I knew within a week that my recent breakout was stalling. Before that my outbreaks had a pattern. 1st outbreak one year, then six months off and 6 months on for the last 4 years. Before that no matter what I tried my outbreak had a timer, it would last the full 6 months.