Grover's Disease

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

@sabrina2

Thank you for sharing I jus got diagnosed.. I do t itch but these spots are everywhere!! Photo therapy in two weeks let’s see
I’m also worried about foods? What to eat what not.. I have many allergies and afraid of cilantro.. any suggestions? I’m also vegan
Thanks for any help

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sabrina2- I am not sure of your back-group and assume you are on this blog to discuss GD. Are you afraid of cilantro because you will be allergic? I am not aware that cilantro is an allergic food, but would like information on that if so. I am allergic to many contacts and have lots of food sensitivities. Yet red meat, all meat except processed meat and poultry are safe for me. Only certain fish. I am not sure how I would get my protein if I have to give up meat and poultry as dairy, beans and legumes are out. Eggs are safe. How do you get your protein?

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@pen2015

I actually work in Valdosta! Small world. I live in Tifton now, but lived in Lake Park for 20 years.

I eat pretty healthy, rarely eat sugar or red meat. I do eat chicken and fish. I need to look into the diet you referred to. I am naturally ( genetically) slim and tall.

Yes, I was referring to my lady parts (mainly only on the front as of now). Also my butt is covered.

You guys are all so helpful on here!

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It sure seem like you have more going on than GD. I do know it can spread to areas besides the torso, but I haven't heard on anyone reacting to such a large area as you. It certainly is less common.

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@mariannj

@pen2015 This is how I managed an appt. with the dermatologist. I called every day for 3 days, pleading my case. On the fourth day I said I didn't know how I could live with this any longer. I was totally sleep deprived and making wrong decisions. Each time I called I told all my symptoms and I described them brutally. On the third try, the receptionist asked if I could come in the next day!!!!! Granted, I was an already established patient, but I never gave up calling. I believe they thought I was suicidal although I wasn't. The doc recognized Grovers in 2 seconds. I started with triamcinolone. It eased the itch/pain a little. After two weeks I was better but no where near normal so I got on this site and the rest is cilantro history. I also began the whole 30 diet and switched to only pure cotton next to my skin. It took a few months but I finally had results. I discontinued the triamcinolone when I started cilantro, and I hated even handling it Two days ago I felt some major burning painful itching right under my bra. I had been running around all day in the heat and was very stressed. When I removed my bra it was very wet (a synthetic material) and I saw the red bumps. I immediately applied triamcinolone for two days and increased my cilantro. The itching and pain has disappeared. I know the bra was too tight because I had gained 9 pounds. I also remembered that I had washed the bra in Dreft instead of my usual All free clear. It is a delicate tightrope that I walk. I thought I could make some changes. It's time for me to be more careful with my diet again and keep the cilantro dose higher.

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If you can go bra-less at home, I do even with no GD issues. I also garden without a bra, wearing a loose denim shirt with 2 patch pockets which is loose fitting and I haven't had the under bra rash for over a year and a half. I do eat foods from time to time not on my list of food sensitivities, but I am rigid about avoiding my allergic contacts for ACD. I was told that with each subsequent contact our reaction time is less and more severe. In my laundry room I have multiple bins, 6 in fact. Two are just for me with my light and dark's. I wash my husbands light and dark's separately from mine because he has mixed fiber clothes (I am allergic to blended material) and for his really dirty dark's I use Tide and sometime use fabric softener on his loads. All my towels are 100% cotton and my bleach load of whites used in kitchen and house for cleaning I use the Free and Clear and of course never any fabric softener. With ACD mixed fibers when washed with my 100% pure cotton or 100% polyester or silk will cross contaminate my clothing. The rubber chemical used to blend fibers does leach out.

Liked by MariannJ

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@gardeningjunkie

sabrina2- I am not sure of your back-group and assume you are on this blog to discuss GD. Are you afraid of cilantro because you will be allergic? I am not aware that cilantro is an allergic food, but would like information on that if so. I am allergic to many contacts and have lots of food sensitivities. Yet red meat, all meat except processed meat and poultry are safe for me. Only certain fish. I am not sure how I would get my protein if I have to give up meat and poultry as dairy, beans and legumes are out. Eggs are safe. How do you get your protein?

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Good morning
I have allergies to most everything my protein comes from legumes. It’s rice . I don’t eat beans I have tons of stomachache issues nevertheless my blood work is fine.. Well for me.. I don't believe there is a measure of eating for everyone .. we have different bodies and don’t require same percentage of foods ie protein minerals etc.. this disease has scared me knowing it’s nver leaving and not much known…
Elated to find this group comfort and blessed.

Liked by MariannJ

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It does help knowing we're not crazy or exaggerating our misery by hearing from other bloggers, plus on this Mayo site I learned about the cilantro which no specialist or any other internet site ever suggested. By seeking out info on the internet it shows you are a fighter and that's what it takes to manage a chronic disease.

Liked by MariannJ, pen2015

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@gardeningjunkie

It does help knowing we're not crazy or exaggerating our misery by hearing from other bloggers, plus on this Mayo site I learned about the cilantro which no specialist or any other internet site ever suggested. By seeking out info on the internet it shows you are a fighter and that's what it takes to manage a chronic disease.

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I just found this in my cabinet. I forgot all about it, I actually bought it before all this came about. It has never been opened. Until now!!

CD02AF6D-01B9-4B21-9A0B-EE7B9D1B20DC

Liked by MariannJ

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@sabrina2

Good morning
I have allergies to most everything my protein comes from legumes. It’s rice . I don’t eat beans I have tons of stomachache issues nevertheless my blood work is fine.. Well for me.. I don't believe there is a measure of eating for everyone .. we have different bodies and don’t require same percentage of foods ie protein minerals etc.. this disease has scared me knowing it’s nver leaving and not much known…
Elated to find this group comfort and blessed.

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@sabrina2 I mix Vega plant based protein powder in my cilantro shake. It is unsweetened and has no flavor. It comes in flavors but they usually are sweetened. I do not like the fake sugar substitutes. Grains and legumes are not allowed on the whole 30 diet. That diet changed my digestive issues from pain when having a bowel movement to being normal, absolutely heavenly, daily normal. The cilantro is big aid in digestion also. You can check out the ingredients in Vega at a Whole Foods or online to see if you are allergic to any ingredients. Will try to post a photo of it.

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Vega plant based protein and chlorella tabs.

Vega

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@pen2015

I just found this in my cabinet. I forgot all about it, I actually bought it before all this came about. It has never been opened. Until now!!

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I have read that some that take cilantro tablets do not get the same helpful results as using fresh or frozen. I have used the tablets for a few days when traveling. Until you start improving it seems better to use the fresh if possible.

Liked by MariannJ

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@gardeningjunkie

I have read that some that take cilantro tablets do not get the same helpful results as using fresh or frozen. I have used the tablets for a few days when traveling. Until you start improving it seems better to use the fresh if possible.

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I agree with using fresh or frozen cilantro. I used the pills for a few weeks but the fresh in smoothies is what really worked well

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@mariannj

Vega plant based protein and chlorella tabs.

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MarriannJ- I don't want to overly concern you but just get you thinking about the pea based protein powder. It may not be the perfect food for us with GD. I am not a nutritionist, just a fellow eczema sufferer who is always searching for knowledge about our chronic disease.

Your diet is limited and you must eat something so you may wish to ignore this information. I have cut down on pea based foods, but refuse to give up totally as I am doing so well right now I had the hair food sensitivity test which showed me sensitive to legumes and veggies in the pea family. Blood testing has also shown I have multiple metal allergies. Cilantro is a heavy metal detox so wonder if that is why it has worked to stall my last re-occurrence with GD. Peas are known to contain metals, just like many other veggies because metal is natural and is in soil and plants pick it up. I looked up the Vega veggie protein powder and it was rated one of the highest veggie protein powders on the market for containing heavy metal. I still eat peas about once every 2 weeks and snap peas also about every 2 weeks. Other protein powders are out for us like dairy based Whey (I know I don't digest whey as it gives me gas within an hour) and also out are Soy based protein powders are very high in heavy metals and all legumes make me gassy. Peas do not. I believe the cilantro is detoxing the heavy metal from my occasional pea ingestion. Yet if you are taking in pea daily,could that be overloading you with metals?

Liked by MariannJ

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@gardeningjunkie

MarriannJ- I don't want to overly concern you but just get you thinking about the pea based protein powder. It may not be the perfect food for us with GD. I am not a nutritionist, just a fellow eczema sufferer who is always searching for knowledge about our chronic disease.

Your diet is limited and you must eat something so you may wish to ignore this information. I have cut down on pea based foods, but refuse to give up totally as I am doing so well right now I had the hair food sensitivity test which showed me sensitive to legumes and veggies in the pea family. Blood testing has also shown I have multiple metal allergies. Cilantro is a heavy metal detox so wonder if that is why it has worked to stall my last re-occurrence with GD. Peas are known to contain metals, just like many other veggies because metal is natural and is in soil and plants pick it up. I looked up the Vega veggie protein powder and it was rated one of the highest veggie protein powders on the market for containing heavy metal. I still eat peas about once every 2 weeks and snap peas also about every 2 weeks. Other protein powders are out for us like dairy based Whey (I know I don't digest whey as it gives me gas within an hour) and also out are Soy based protein powders are very high in heavy metals and all legumes make me gassy. Peas do not. I believe the cilantro is detoxing the heavy metal from my occasional pea ingestion. Yet if you are taking in pea daily,could that be overloading you with metals?

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@gardeningjunkie Wow! I just bought a new can! I have gone through 3 or 4 cans of the protein powder so I don't think it is affecting me in a bad way, or the cilantro is neutralizing it. I guess I can just skip it altogether and just eat more protein. Thank you for the advice.

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Maybe just use it once a week. Previously I asked my allergist about foods and metal allergies. He said when eating foods that contain metals we don't absorb that much.I can't have metal in knee replacement because that would be in constant contact 24/7 and my ACD allergies would reject it. With foods most of the metal passes though. Yet we do know heavy metals do accumulate over time in our bodies. Most foods contain metals,as I mentioned, metal is a natural element and in soil and unavoidable, yet we have to wonder- what is the accepted amount to ingest and are people like you and me accumulating in our bodies more than for others? Or are we just more sensitive to what should be a normal amount of metal.
I had been thinking my GD might be starting up, getting an itch in the small of my back torso without the little rash bumps for several weeks, but now I don't think it is GD. Today itch far better. I have made 2 changes, but will share later once I know for sure these changes are the reason. We are always experimenting with ourselves.

Liked by MariannJ

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@gardeningjunkie

Maybe just use it once a week. Previously I asked my allergist about foods and metal allergies. He said when eating foods that contain metals we don't absorb that much.I can't have metal in knee replacement because that would be in constant contact 24/7 and my ACD allergies would reject it. With foods most of the metal passes though. Yet we do know heavy metals do accumulate over time in our bodies. Most foods contain metals,as I mentioned, metal is a natural element and in soil and unavoidable, yet we have to wonder- what is the accepted amount to ingest and are people like you and me accumulating in our bodies more than for others? Or are we just more sensitive to what should be a normal amount of metal.
I had been thinking my GD might be starting up, getting an itch in the small of my back torso without the little rash bumps for several weeks, but now I don't think it is GD. Today itch far better. I have made 2 changes, but will share later once I know for sure these changes are the reason. We are always experimenting with ourselves.

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Hoping for success

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@mariannj

@sabrina2 I mix Vega plant based protein powder in my cilantro shake. It is unsweetened and has no flavor. It comes in flavors but they usually are sweetened. I do not like the fake sugar substitutes. Grains and legumes are not allowed on the whole 30 diet. That diet changed my digestive issues from pain when having a bowel movement to being normal, absolutely heavenly, daily normal. The cilantro is big aid in digestion also. You can check out the ingredients in Vega at a Whole Foods or online to see if you are allergic to any ingredients. Will try to post a photo of it.

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So thankful

Liked by MariannJ

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