Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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@maybelline_0217

What kind of cilantro capsules are you using?
I was diagnosed with GD 2 months ago. All cortisone and steroid topical creams have helped with itchiness but haven’t seen any improvement.
I’m starting the retinoid pills tomorrow, but I’m a little skeptical. I’m thinking about trying the cilantro option.

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Those Retinoids are brutal on the body. I read up on them and they would be my last resort! Please try the Cilantro

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@maybelline_0217

What kind of cilantro capsules are you using?
I was diagnosed with GD 2 months ago. All cortisone and steroid topical creams have helped with itchiness but haven’t seen any improvement.
I’m starting the retinoid pills tomorrow, but I’m a little skeptical. I’m thinking about trying the cilantro option.

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Vitacost cilantro 425 mg. Ordered through Amazon. $7.94 for 60. Unsure how much good the capsules are doing. I was clearing up from the cilantro smoothies before I started taking these.

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@maybelline_0217

What kind of cilantro capsules are you using?
I was diagnosed with GD 2 months ago. All cortisone and steroid topical creams have helped with itchiness but haven’t seen any improvement.
I’m starting the retinoid pills tomorrow, but I’m a little skeptical. I’m thinking about trying the cilantro option.

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See my post and photos from April 7. Terra Vita supplements. Bought on Internet. However, I am in the fresh cilantro club now.

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@mariannj

See my post and photos from April 7. Terra Vita supplements. Bought on Internet. However, I am in the fresh cilantro club now.

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Did they work at all? Or just not as effective as real cilantro?

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I think they worked this group convinced me that fresh is best. I will use supplements when traveling.

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Full disclosure. I am now experiencing a different kind of rash. Not the same itchy painful bumps as my Grover's. It started on Monday. I thought it was because I went off smoothies for a couple days. But not sure it's the Grover's. This rash seems to migrate and not leave any bumps behind. It itches but not like before, and it's more of a patchy rash. It started on my arms and sides. Then migrated to my legs, then my neck, then back to my arms the next day. Super weird and not the same as before where it would leave the papules behind and not the nagging itch as before. NOTHING new or different in my diet or environment so I'm not sure where it's coming from. I went to derm today to talk about it and he agreed it did not present like Grover's and said I should get blood work done and put me back on steroids...the saga continues. I'll keep you posted.

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@kimass1

Full disclosure. I am now experiencing a different kind of rash. Not the same itchy painful bumps as my Grover's. It started on Monday. I thought it was because I went off smoothies for a couple days. But not sure it's the Grover's. This rash seems to migrate and not leave any bumps behind. It itches but not like before, and it's more of a patchy rash. It started on my arms and sides. Then migrated to my legs, then my neck, then back to my arms the next day. Super weird and not the same as before where it would leave the papules behind and not the nagging itch as before. NOTHING new or different in my diet or environment so I'm not sure where it's coming from. I went to derm today to talk about it and he agreed it did not present like Grover's and said I should get blood work done and put me back on steroids...the saga continues. I'll keep you posted.

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So sorry you are going though this. You may have developed another form of eczema. I started with Allergic Contact Dermatitis, ACD and then a decade later got GD. Have you had the 5 Day Extended Patch Test for ACD? Goggle this exact test for ACD. It tested me for about 78 chemical and natural elements that are common allergens, like latex for metals for example. I am not allergic to those but to 5 others and I must never come in contact with them again. Arm yourself with information. Rashes can have specific symptoms and appearance.
Go to dermnetnz.org and study the various types of eczema. Their photos are helpful. If you have one form of eczema you are likely to get others.
Also I wonder about overdosing on the vitamins in cilantro. Has anyone studied the vitamins and minerals it contains. For example my sister tested too high in her blood for vitamin D. She took calcium with D, and a multivitamin with vitamin D and the doc made her back off stating too much caused side effects. Yet no one on the earthclinic site mentioned getting too many vitamins.

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@mariannj

Never stopped drinking smoothies but cut back on the cilantro and darn, if I didn't start getting more new itchy ones. Upped my cilantro this morning. This morning I had frozen cherries instead of strawberries. Yum! I wonder if stress precipitates them. I have been under a great deal of stress this week. Losing sleep over it.

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hi in regard to smoothies can you advise what ingredients you use in addition to the cilantro regards pat

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I keep it simple. In blender I put half of bunch of cilantro. Add one container of yogurt such as strawberry. Then I add orange juice so it’s about 1/3 full. I put on “liquefy” and that’s it. A putrid green looking mixture BUT it tastes surprisingly good. By the way, I keep the half bunches frozen until ready. They blend easier when frozen.

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@frogger

I keep it simple. In blender I put half of bunch of cilantro. Add one container of yogurt such as strawberry. Then I add orange juice so it’s about 1/3 full. I put on “liquefy” and that’s it. A putrid green looking mixture BUT it tastes surprisingly good. By the way, I keep the half bunches frozen until ready. They blend easier when frozen.

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What a clever idea. I could buy 2 weeks worth at a time. Tomorrow I'm traveling early so am trying a suggestion by one of us, forgot who, saying they made up 2 days worth. Tomorrow I won't have to take the time to blend and clean up.

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