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@colleenyoung

@IndianaScott Thanks for starting this discussion on caring for someone who has dementia. I'm tagging fellow members to join us here too @tavi @lindabf @rozalia @sma1952 @clayton48 @19lin @caregiver49 @mmurray22dad @denver90 @nhunter121 @saltyfrog @coladyrev @shellsk24 @jhammer

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Replies to "@IndianaScott Thanks for starting this discussion on caring for someone who has dementia. I'm tagging fellow..."

"...already done the DPOA...". Please let it go until she pointedly asks about it. Have official documentation at hand for her to read.
If this disturbs her and causes an emotional upheaval, then lesson learned. Do not do THAT again. The episode will be soon forgotten, but the angst will remain. As you will find out, this is a journey of trials and lots of errors.
Then when you finally get it figured out , her condition will change and it's back to the drawing board.
A roller coaster ride like nothing anyone can imagine.

Candace, I don't know if it will work for your mom and if it does work it won't last forever, but try making some signs with the answers to those questions. Put them in a place she can see (assuming she can still read). For example "Breakfast is at 8AM. An aide will be there to get you between 7:30-8AM"'. It may help for a while. It did with my mom. Eventually it stopped but even temporary relief is wonderful.
Best wishes, K

Hi Kdawn, Yes I do write down times when aides come for meals and when my sister and I are coming. I just feel at the moment Mom knows what she is reading but in a second she has forgotten. All conversations are the same repeating over and over. I sometimes wonder if less is more for her, but then again she will hit every question just perfect. I am sure that is how this disease works. I know that aides have a time getting her to take a shower and shampoo twice a week, is this normal?? She tells them OH my daughter is coming and will do it for me. Tricky !! hahah guess I just need to roll with the good times. Thanks for your advice!

I have trouble on and off with getting my mom to shower. You might suggest to them if she really doesn't want to do it to see if she is willing to do a wipe down/sponge bath. They might also try "that's great, don't you might to clean and pretty for your daughters? If we have you ready then they can spend more time visiting with you." It is a struggle. What works for a while will eventually stop working. We found out yesterday that my mom is going blind on top of her dementia and diabetes. You've got a pretty good attitude about rolling with it. Of course some days you just can't.

Showering can be a problem. Some people with dementia think they are going to drown if they take a bath or have a shower. When I was visiting my mother one day in nursing care, I walked past the shower room, where a woman was screaming, "I don't want to die! I don't want to die!" I felt so sorry for her.

Great tips and thoughts about bathing and showering. If anyone is interested in reading more about ideas from the community or adding your thoughts, you can also refer to this discussion in the Caregivers group
* Dementia Anger Issues - bathing: https://connect.mayoclinic.org/discussion/dementia-anger-issues-bathing/

Yes, my brother-in-law was so afraid of water that he would start screaming as soon as they started to take him down the hall.

Does anyone have advice on how to deal with complete denial of memory loss? I am so afraid we will get past the point of being able to help if we wait until my husband can admit he has a problem. (Will he ever...?) I know he KNOWS he is forgetting things and is suffering from fears about his mental health, and a future of being a burden to me... but he WILL NOT speak to a doctor (or to me) about this. Twists conversations, too (since he can't remember exactly what was said) and holds grudges against our kids for things he is SURE they said (they didn't). I've never pointed out his memory losses to him so he sees me as a safe support... but I can't go on like this and watch him decline when there are people out there who could help him at this stage.

My mother had vascular dementia and I became increasingly concerned as her mind failed. I contacted her primary care physician at Mayo Clinic and asked him if I should tell my mother that she had dementia. His reply: "Will that accomplish anything?" I decided it wouldn't because my mother would forget what I told her." However, I think she suspected her mental decline.

Hello @friendofmayo. Welcome to Mayo Clinic Connect!

Have concerns been addressed with your husbands physician?