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Possibly Helpful Resource

Posted by bitsygirl @bitsygirl, Mar 27 12:55pm

I ran across this website: https://www.aortichope.org when I was watching YouTube videos to try to understand what is/not advisable for exercise with an aorta dilation. They have a Live Q&A series with doctors that work in this area. (https://www.youtube.com/playlist?list=PLXbCdIgPAMon_wM1wl4fS_3T7CnnO_e1n). (It confirms to me that no one really knows about exercise, but I have learned a bit from their videos, e.g. what systolic BP creates concerns for doctors.)

I just found the website and I haven't caught one of the Live sessions yet, but it appears to be a great opportunity to pose questions to doctors that would have as good an answer as one could hope, I think.

FWIW. Hope this is more signal than noise. :). Apologies if this is not the kind of post that's appropriate for this forum.

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

georgeh | @georgeh | Aug 7 9:32am

Thanks for posting this great source. Another great source is PERPLEXITY. It's a search app like Google but much more powerful. It gives you an answer to your query with footnotes to their reference material, so you can read the articles they researched. It's free...

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pittsburghdad | @pittsburghdad | Aug 8 10:11am

Yes, the Aortic Hope videos are helpful on the subject of permissible exercise limits. In particular, the presentations by Timothy Churchill of Harvard/Massachusetts General and Alan Braverman at Washington University in St. Louis are very good. There is also a good video on the subject put out by the John Ritter Foundation by Dr. Siddarth Prakash who is at the University of Texas.

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2 replies
upartist | @upartist | Aug 9 7:37am

To Bitsy Girl. Thank you for your post of the extremely informative resource; Aortic Hope/Athlete site!!!!! Dr Diana Milewicz touched upon every single concern and question I have. I have forwarded it to my kids and my brother. Thank you!!!!

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1 reply
georgeh | @georgeh | Aug 9 2:08pm
In reply to @pittsburghdad "Yes, the Aortic Hope videos are helpful on the subject of permissible exercise limits. In particular,..." + (show)
@pittsburghdad

Yes, the Aortic Hope videos are helpful on the subject of permissible exercise limits. In particular, the presentations by Timothy Churchill of Harvard/Massachusetts General and Alan Braverman at Washington University in St. Louis are very good. There is also a good video on the subject put out by the John Ritter Foundation by Dr. Siddarth Prakash who is at the University of Texas.

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Thanks for the recommendation! I'm watching Dr. Churchill at this very moment.

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bitsygirl | @bitsygirl | Aug 9 5:37pm
In reply to @upartist "To Bitsy Girl. Thank you for your post of the extremely informative resource; Aortic Hope/Athlete site!!!!!..." + (show)
@upartist

To Bitsy Girl. Thank you for your post of the extremely informative resource; Aortic Hope/Athlete site!!!!! Dr Diana Milewicz touched upon every single concern and question I have. I have forwarded it to my kids and my brother. Thank you!!!!

Jump to this post

So happy it helped @upartist !!!

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upartist | @upartist | Aug 10 7:03am
In reply to @pittsburghdad "Yes, the Aortic Hope videos are helpful on the subject of permissible exercise limits. In particular,..." + (show)
@pittsburghdad

Yes, the Aortic Hope videos are helpful on the subject of permissible exercise limits. In particular, the presentations by Timothy Churchill of Harvard/Massachusetts General and Alan Braverman at Washington University in St. Louis are very good. There is also a good video on the subject put out by the John Ritter Foundation by Dr. Siddarth Prakash who is at the University of Texas.

Jump to this post

Excellent information!!! Thank you Pittsburgh Dad. What a great site.... Aortic Hope!

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