High calcium score: I'm in shock

Posted by sjy70 @sjy70, Jun 14, 2021

Hi everyone... just wanted to share my last few days - I'm scared and lost and was just hoping to hear from some people who have been in my place. Long story short - I went in for a "routine" checkup at age 50 to make sure my heart was okay. I had a stress test two years ago that was fine. But I do have a family history, and somewhat high LDL and blood pressure so the doctor sent me for a cardiac calcium score. It came back at 407 at age 50!!! That's like the 98th percentile for my age, which is shocking. I do Crossfit and have done half marathons so it was totally unexpected. Now I'm going for another stress test in two weeks to make sure no blockages are over 70%, and I'm not sure of the steps after that.... I'm terrified of needing open heart surgery - I've gotten myself into a place of being okay with a stent if needed. I know it's better to know than not know, but I just feel like my life was suddenly ripped out from under me and to be honest I'm spinning right now... every waking second I feel like I'm going to drop over..

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@writer413

Hi. I’m a young looking 60 year old woman with a family history of CAD. I’ve always had high cholesterol and starting taking statins about 15 years ago. I’m probably ten pounds over my ideal weight. My blood pressure is good. I exercise for at least thirty minutes every day with rare exceptions. I am proactive about my heart health due to those risk factors. But my LDL is 99 and a recent calcium score is LAD 7. I meet with my cardiologist in a couple of days to go over the results. I know it’s not terrible but it definitely has my attention. Any suggestions? Thanks.

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Hi , I’m 46 male with LAD 13.4. I’m also looking for suggestions. Currently on statin 10MG. @writer413 . Heard from my PCP that until 10 it’s not a concern. Is it your first time having calcium test ?

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I’m wondering if I need CAC test. I recently got a carotid ultrasound after requesting same from my primary for a pain I had felt in my neck. It’s gone now. The results showed no plaque. I’m not sure how to interpret that. My Dad had heart attack at age 63, quadruple bypass, 4 subsequent stents stayed active on major meds under cardiologist care and is hanging in there at age 87, though he does have some other issues.
No one has ever mentioned it to me. I’ve had 2 stress tests (both stress echocardiograms) years ago for symptoms determined to be anxiety. No issues with either. (The kind that shows image of heart after stress.)

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@celia16

I’m wondering if I need CAC test. I recently got a carotid ultrasound after requesting same from my primary for a pain I had felt in my neck. It’s gone now. The results showed no plaque. I’m not sure how to interpret that. My Dad had heart attack at age 63, quadruple bypass, 4 subsequent stents stayed active on major meds under cardiologist care and is hanging in there at age 87, though he does have some other issues.
No one has ever mentioned it to me. I’ve had 2 stress tests (both stress echocardiograms) years ago for symptoms determined to be anxiety. No issues with either. (The kind that shows image of heart after stress.)

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Would seem a reasonable test - even if insurance doesn't pay, they are usually in the $100 range.

Did the stress with echo result in any estimates of blockages?

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@mayoconnectuser1

Would seem a reasonable test - even if insurance doesn't pay, they are usually in the $100 range.

Did the stress with echo result in any estimates of blockages?

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Ok, I’ll explore it. I had to pay about $300. my share of the carotid ultrasound. That’s with insurance. I haven’t met max out of pocket yet.

The tech told me everything looked great. Though, she said she wasn’t allowed to give an opinion. And, I was told by my primary, who was notified by cardiologist, that I had no plaque. So, that’s all I know.

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@celia16

Ok, I’ll explore it. I had to pay about $300. my share of the carotid ultrasound. That’s with insurance. I haven’t met max out of pocket yet.

The tech told me everything looked great. Though, she said she wasn’t allowed to give an opinion. And, I was told by my primary, who was notified by cardiologist, that I had no plaque. So, that’s all I know.

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The reports are available from your cardiologist - or, whatever organization wrote the script for the stress with echo - you might want to read it yourself.

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@mayoconnectuser1

The reports are available from your cardiologist - or, whatever organization wrote the script for the stress with echo - you might want to read it yourself.

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I normally go to online portals to see labs and test results, but the hospital where this was done has issues and getting access is difficult. Will do though.

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@celia16

I normally go to online portals to see labs and test results, but the hospital where this was done has issues and getting access is difficult. Will do though.

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Sounds like you have nothing to be worried about - but, I always read the reports - and, have caught the occasional item of interest that doc did not.

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@mayoconnectuser1

Sounds like you have nothing to be worried about - but, I always read the reports - and, have caught the occasional item of interest that doc did not.

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Oh, ok. Good point. Thanks.

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@mayoconnectuser1

Sounds like you have nothing to be worried about - but, I always read the reports - and, have caught the occasional item of interest that doc did not.

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I agree here and will never not read a report again. I did not ask for my CAC score 2.5 years ago when my (former) primary doctor ordered it. I just learned it was 769. I remember him telling me it was "a little high but you're in great shape". I am more upset at myself than the doctor. I will never ever not read any report or test result again.

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@chrisaw

I'm in shock also and am looking for perspective. Just got results of 1,208 CAC. I'm 57, asymptomatic, active, with a very healthy diet, feel great, and have a family history of CVD on both sides. 2.5 years ago, I had a normal echo and treadmill stress test and just learned now that my CAC was 769 then(!) My primary put me on 20mg Rosuvastatin, 10mg Ezetimibe and 80mg Valsartan and did not refer to a cardiologist. Now total cholesterol is 100 (LDL 44, HDL 40), avg bp 130/70 with 55-60 bpm. My new primary bumped me up to 140mg valsartan and ref'd me to a cardiologist. I have an echo today and a CT Angiogram in two weeks. I am eliminating red meat, eggs, and dairy, and trying not to be scared until we see what the CT Angiogram reveals. In the meantime, I'm scared. I've already outlived one grandfather and watched the other live miserably for 14 more years after a stroke left him half paralyzed at 63. How common is high CAC with low blockage? Any insights are appreciated.

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As a follow up to this post, I have now had a normal echo and a CT Angiogram showing no blockages. I am very glad for this, however, my gut tells me there is more to uncover and the 1,208 CAC deserves a deeper look. I've read "Beat the Heart Attack Gene" by Bale and Doneen and believe it warrants going deeper into root cause. I am especially interested in genetic testing for a personalized treatment plan, which is the book's thesis, more or less. How do we get to underlying causes? This score is too high to stop at cholesterol, bp, and blockage without getting confident the root problem is managed. Any guidance or thoughts?

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