Is your loved one with dementia sleeping a lot (too much)?

Posted by bayviewgal @bayviewgal, Mar 13 8:29pm

Is anyone else's loved have a hard time falling asleep AND sleeping too much? My 63 yo husband has been living with dementia caused by alz for 3 years and just recently he is sleeping between 10-14 hours a night. At his last neurologist's appt 2 weeks ago she suggested taking his Aricept during the day instead of bedtime cuz she says it can act as a stimulant and keep him awake. He's been taking melatonin for a while now but it doesn't seem to be working much for him anymore with regards to helping him fall asleep but once he finally does fall asleep he sleeps SO much. His dr. said to keep him on it to help him fall asleep but he is so wound up that it takes up to 4 hours to kick in.
Does anyone has a similar experience with this? And if so, what have you done to help combat this? Because of all this, i'm not sleeping cuz i need to know what he's up while he's awake (at 3 or 4am)

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@cking325

Good Morning allQuick question I’m going thru Dementia with mother-in-law and she has started soiling herself as I did get depends and also my biggest concern now is she’s sleeping all the time does not want to get up my thing is she needs to take her meds and she won’t get up she’s sometimes coherent and says ok but does not get up won’t eat my husband has had to get her up to take her meds but in 3days she’s hardly eaten or drank anything we do have a docs appointment tomorrow Monday early 🙏🏼

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I have a 57 year old daughter who has been told she has onset dementia. Sometimes I feel the diagnosis does not fit ,somedays she is quite well and other days has trouble getting her words out ,is very concerned about the pets .is this normal?

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@cking325

Good Morning allQuick question I’m going thru Dementia with mother-in-law and she has started soiling herself as I did get depends and also my biggest concern now is she’s sleeping all the time does not want to get up my thing is she needs to take her meds and she won’t get up she’s sometimes coherent and says ok but does not get up won’t eat my husband has had to get her up to take her meds but in 3days she’s hardly eaten or drank anything we do have a docs appointment tomorrow Monday early 🙏🏼

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my cousin with dementia after going into a residential facility would ask about her cat continuously. It was a vicious cat, biting and scratching everyone including my cousin whose arms were all scratched. I don't know what happened to her cat, I assume her friends had it euthanized as no one could/would adopt it, and it was old about 13 with cancer. But now when she asks I tell her the cat was adopted by a family with 2 children, and they love her cat. It keeps her calm and relaxed, and she will only ask once or twice, (not 12 times in 1/2 hour). She finds the "lie" a source of peace, and that's important at this point in her journey.

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@crankyyankee

So interesting to read this. Over the last ½ year my husband has begun asking me if we have any visitors coming. This is so odd to me because we have never been very social animals and are not people who regularly have visitors. Except for my son and family, but he never says (specifically) 'is Neil coming to visit?' He also worries about intruders A LOT despite the fact that we live in a peaceful crime free suburban town. I have to raise my voice to have doors and windows open during the summer!

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I've read that we caretakers are supposed to go along with delusions. Like....oh the guests canceled. They will come tomorrow for dinner. I can't. It feels demeaning to my husband; I've always been 100% honest..don't ask my opinion unless you want the truth. I say, "It is just us two for dinner tonight."
We have never been entertainers other than family either and that was seldom before we moved closer to one daughter. He is constantly locking and shutting doors in the house. I have new hardware that has a tool to unlock a door if necessary. I will admit to having a hissy fit when he took a nap and locked me out of my own bedroom. Paranoia is part of ALZ. Hiding things so "they" won't take it. Who is they? No clue. My friend's mom had ALZ; she went to her son's home and yelled from the yard that his wife took her best bra. She drove around with her silver in the trunk, so the daughter in law wouldn't take it. My mother-in-law swore her daughter took her loofa. Buckle your seat belt, this is going to be a bumpy ride. This forum helps me to know I'm not alone on this journey.

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@billiekip

I've read that we caretakers are supposed to go along with delusions. Like....oh the guests canceled. They will come tomorrow for dinner. I can't. It feels demeaning to my husband; I've always been 100% honest..don't ask my opinion unless you want the truth. I say, "It is just us two for dinner tonight."
We have never been entertainers other than family either and that was seldom before we moved closer to one daughter. He is constantly locking and shutting doors in the house. I have new hardware that has a tool to unlock a door if necessary. I will admit to having a hissy fit when he took a nap and locked me out of my own bedroom. Paranoia is part of ALZ. Hiding things so "they" won't take it. Who is they? No clue. My friend's mom had ALZ; she went to her son's home and yelled from the yard that his wife took her best bra. She drove around with her silver in the trunk, so the daughter in law wouldn't take it. My mother-in-law swore her daughter took her loofa. Buckle your seat belt, this is going to be a bumpy ride. This forum helps me to know I'm not alone on this journey.

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So right!

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My sleeping is way more before. I have an accident years ago and I’m a TBI person and take meds for anti-seizure 3 times. a day. Before my accident I sleep a lot too. May dad was eep after his work day. I had 8 hours per day and now I sleep 9-10 hours per day for my TBI. Right after my accident slept 18+ hours a day and now 9-10 hours a day.

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@larryg333

Add me to the group whose loved often asks about other people that she believes are here, or in another room, or where her mom is in the house (15 years deceased)... and she sometimes thinks I'm not here, but that I'm our son.

I do tell her the truth... because if I play along with her beliefs, she goes on a searching expedition... which is unsafe for her to do (she's often dizzy, has weak extremities, osteoporosis, and is a significant fall risk).

I'm certain I'm not so unique. Hang in everybody!

/LarryG

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Interesting to read this. My husband often reminds me to fully close the bathroom door even though it's always just the two of us here. In those moments he thinks he's in skilled nursing where he went after hospitalizations a few times.

Lately, he thinks there's another woman who has taken care of him (always last night or earlier today) and she looks a little like me. Sometimes he's surprised when I know things about his life because he thinks I'm "her". He always tells her nice things about his wife so that feels good 🙂

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@steelbeam

I have a 57 year old daughter who has been told she has onset dementia. Sometimes I feel the diagnosis does not fit ,somedays she is quite well and other days has trouble getting her words out ,is very concerned about the pets .is this normal?

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My husband has days of clarity and other days its confusion. He also has progressive aphasia so on days when he's making sense with his words I'm overjoyed! So is it normal? I don't think there's any "normal" along this journey. It can change from day to day, which is what makes this so hard. There are times when I have to tell him little white lies so he won't worry and its not harming him either, and he's accepts my answers. What is concerning her about her pets? Assure her that they are being fed and taken good care of and there's nothing to worry about. Who told her she has onset dementia? If you're concerned, I suggest you see a doctor so your questions can have answers to why she's acting and thinking the way she is. The sooner you know for sure, the better ( for lack of a better word)
Take care and hugs to you

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@joastarnes

My husband sleeps so much during the day. I haven’t found the answer to what causes this. However, he does have a better day if he sleeps late in the morning. One time we had an early haircut appointment around 9:00. By the time she finished with both of us, he was so tired, like he lost all his energy, and we couldn’t get him to walk to my car. I had to call an ambulance to get him from salon to the car! I now never schedule any appointments before 11:00.

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wow, @joastarnes, that must've been unsettling for everyone that we needed ambulance assistance to get from the salon to the car. How did you manage once you got home? Was he able to get into the house on his own with your assistance?

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@steelbeam

I have a 57 year old daughter who has been told she has onset dementia. Sometimes I feel the diagnosis does not fit ,somedays she is quite well and other days has trouble getting her words out ,is very concerned about the pets .is this normal?

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Hi @steelbeam, I hope you saw the helpful reply from @bayviewgal to you here: https://connect.mayoclinic.org/comment/1114102/

Early onset dementia comes its particular set of challenges. You might be interested in this related discussion:
- Caregivers: Early Onset Alzheimer's, diagnosis age 19 to 65 https://connect.mayoclinic.org/discussion/caregivers-early-onset-alzheimers-diagnosis-age-19-to-65/

The things you described can be part of dementia. But as other caregivers here will be quick to add, no two people with dementia are alike.

Was your daughter diagnosed by a neurologist? Does she live on her own with her pets?

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I am not sure ,she is with her husband and I daughter ,they seem to accept the fact ,but l have the feeling that it is more like the 3rd eye gland .,they are keeping me in the dark,and I don't know what to do about it .thanking all for your support

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