1. < Aortic Aneurysms

Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

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65coupe | @65coupe | Aug 1, 2019

hope all goes well... let us know how things went..

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andreas92103 | @andreas92103 | Sep 25, 2019

Greetings ... I'm virtually sure I didn't post this in the right place, but I was recently diagnosed with a 1.5mm celiac artery aneurysm that was coincidentally found by CAT scan for an unrelated blood vessel rupture in the top of my left lung that produced quite a lot of bright red blood while coughing. They did an emergency bronchotomy and repair the leak. And now I'm left with the knowledge of the CAA. In shock after reading up on the disorder. This was all at University California San Diego hospital in Hillcrest, San Diego, 92103. Confused and worried. Thank you, Andreas.

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3 replies
65coupe | @65coupe | Sep 25, 2019
In reply to @andreas92103 "Greetings ... I'm virtually sure I didn't post this in the right place, but I was..." + (show)
@andreas92103

Greetings ... I'm virtually sure I didn't post this in the right place, but I was recently diagnosed with a 1.5mm celiac artery aneurysm that was coincidentally found by CAT scan for an unrelated blood vessel rupture in the top of my left lung that produced quite a lot of bright red blood while coughing. They did an emergency bronchotomy and repair the leak. And now I'm left with the knowledge of the CAA. In shock after reading up on the disorder. This was all at University California San Diego hospital in Hillcrest, San Diego, 92103. Confused and worried. Thank you, Andreas.

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sorry to hear of your issues, but the good thing is they found it.. I have a 1.6cm CAA. What I have found in my research is that the decision to operate is all over the place.. some go in at 1.5, some dr.'s want to wait until is gets upwards of 2.5cm or more.. get some more opinions before doing anything.... at present I'm just living my life as I normally would... I also have no symptoms...

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perkman66 | @perkman66 | Sep 25, 2019
In reply to @andreas92103 "Greetings ... I'm virtually sure I didn't post this in the right place, but I was..." + (show)
@andreas92103

Greetings ... I'm virtually sure I didn't post this in the right place, but I was recently diagnosed with a 1.5mm celiac artery aneurysm that was coincidentally found by CAT scan for an unrelated blood vessel rupture in the top of my left lung that produced quite a lot of bright red blood while coughing. They did an emergency bronchotomy and repair the leak. And now I'm left with the knowledge of the CAA. In shock after reading up on the disorder. This was all at University California San Diego hospital in Hillcrest, San Diego, 92103. Confused and worried. Thank you, Andreas.

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I too diagnosed at 1.5 cm. I have found general consensus just watch and wait until it reaches 2.0. Operate at 2.5cm. Many of these don't change at certain point and you may never have to do anything.
Best Wishes

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2 replies
Kanaaz Pereira, Connect Moderator | @kanaazpereira | Sep 26, 2019
In reply to @itsallaboutmyki "My dad was diagnosed with a celiac artery aneurysm a couple years ago. His doctor wasn’t..." + (show)
@itsallaboutmyki

My dad was diagnosed with a celiac artery aneurysm a couple years ago. His doctor wasn’t worried about it until a couple years ago, when he started to become sick after eating or drinking anything. If he even drinks water he gets pain from his stomach to his back and up under his ribs. He has lost over 40lbs in the last 2 months. He doesn’t sleep. Has anyone experienced this? It’s very scary for me to watch him in pain. He does see a vascular surgeon today. Finally

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Hi @itsallaboutmyki,

How is your dad? Are you able to share any updates? I look forward to hearing back from you.

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Sep 26, 2019
In reply to @andreas92103 "Greetings ... I'm virtually sure I didn't post this in the right place, but I was..." + (show)
@andreas92103

Greetings ... I'm virtually sure I didn't post this in the right place, but I was recently diagnosed with a 1.5mm celiac artery aneurysm that was coincidentally found by CAT scan for an unrelated blood vessel rupture in the top of my left lung that produced quite a lot of bright red blood while coughing. They did an emergency bronchotomy and repair the leak. And now I'm left with the knowledge of the CAA. In shock after reading up on the disorder. This was all at University California San Diego hospital in Hillcrest, San Diego, 92103. Confused and worried. Thank you, Andreas.

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Hello @andreas92103,

That must have been so scary! I’m so glad you reached out to Mayo Clinic Connect – you've found a very supportive community – welcome! Here’s some information about aortic aneurysms:
https://www.mayoclinic.org/diseases-conditions/aortic-aneurysm/symptoms-causes/syc-20369472
I’d like to invite @annac3 to join this conversation; she recently posted about "Growth rate & genetics - Aortic Aneurysm, Ectasia” https://connect.mayoclinic.org/discussion/growth-rate-genetics/
May I ask what your options are, with regard to treatment, @andreas92103? I can imagine you are worried - what concerns you most about CAA?

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1 reply
codonpatrick | @codonpatrick | Sep 26, 2019
In reply to @perkman66 "I too diagnosed at 1.5 cm. I have found general consensus just watch and wait until..." + (show)
@perkman66

I too diagnosed at 1.5 cm. I have found general consensus just watch and wait until it reaches 2.0. Operate at 2.5cm. Many of these don't change at certain point and you may never have to do anything.
Best Wishes

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A familiar approach. Monitor and wait. The last conversation I had with my vascular surgeon concluded with “ have it scanned from time to time and it is unlikely that it will ever need repair”

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Sep 26, 2019
In reply to @perkman66 "I too diagnosed at 1.5 cm. I have found general consensus just watch and wait until..." + (show)
@perkman66

I too diagnosed at 1.5 cm. I have found general consensus just watch and wait until it reaches 2.0. Operate at 2.5cm. Many of these don't change at certain point and you may never have to do anything.
Best Wishes

Jump to this post

Hi @perkman66,

May I ask how often your doctor orders tests to monitor the aneurysm? Did you have any symptoms?

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2 replies
codonpatrick | @codonpatrick | Sep 26, 2019
In reply to @kanaazpereira "Hi @perkman66, May I ask how often your doctor orders tests to monitor the aneurysm? Did..." + (show)
@kanaazpereira

Hi @perkman66,

May I ask how often your doctor orders tests to monitor the aneurysm? Did you have any symptoms?

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The UCLA vascular surgeon said every year or two. My CAA was discovered in 2014 and I had it checked again in 2016 and plan another CT scan in a couple of months. It was 1.4 cm in size both times. I wasn’t given any restrictions so it is life as usual. I do have some moderately severe GI issues about 6 months ago that lasted for a few mo this but much improved now. I was told that it was probably unrelated.

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2 replies
codonpatrick | @codonpatrick | Sep 26, 2019
In reply to @codonpatrick "The UCLA vascular surgeon said every year or two. My CAA was discovered in 2014 and..." + (show)
@codonpatrick

The UCLA vascular surgeon said every year or two. My CAA was discovered in 2014 and I had it checked again in 2016 and plan another CT scan in a couple of months. It was 1.4 cm in size both times. I wasn’t given any restrictions so it is life as usual. I do have some moderately severe GI issues about 6 months ago that lasted for a few mo this but much improved now. I was told that it was probably unrelated.

Jump to this post

Sorry for the I phone typos

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