Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.
I agree with your observation.
The Vascular surgeon that I have consulted with at UCLA has made no recommendations whatsoever other than to periodically monitor with a CT scan. He told me that if it doesn't enlarge just let it go and that I will likely never need a repair. At some point I plan to get a second opinion from a surgeon who has had experience treating the condition. It may mean a trip to Nashville , Dallas or Chicago based on what others in the group have discussed. It would be nice to have a list of surgeons who have successfully repaired celiac aneurysms. There is no substitute for experience.
I am just checking in with the group. I have been diagnosed with a celiac aneurysm for about 1-1/2 years. I believe I've had it for about 4 or 5 years, which was when I had the onset of the rib pain syndrome. I just wanted to say that my rib pain was much worse for the first 4 years. It was 24/7 discomfort. Over the last year it has improved a lot. Just wanted to give a little hope to some of you. I have not had any procedure, but I do take gabapentin now and it's working for me.
Paul DiMuzio, MD, FACS is a doctor in Philadelphia, Pa. He has experience with celiac aneryisum. Google him. He has medical journals published on the work he has completed
Thanks! I will do that
Nice to know of a doctor with experience.
yes ... and they bare few and far between
I had an excellent doctor at Advocate Hospital (Lutheran General) in Park Ridge, IL Interventional Radiologist. He removed my massive celiac artery aneurysm and put a stent in my celiac artery. His name is Dr. Marshall Dines http://advancedradiologyconsultants.net/doctors/jenkins.html So far all my CT scans have been good. My aneurysm has vanished and the stent in my artery looks good.
Thanks for that information. I have picked up 3 potential second opinion Doctors. It is great that you had such great success. There is reason for optimism !!!
@marylisa I saw that you go to Emory. A CT showed I have celiac stenosis and I was curious which vascular doctor you see there.