Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

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@helenannmarie55

I once was told by a dr in a larger city I am the doctor. I told him but I know my body and want to tell you what I am experiencing. I gave him my notes and just gave it back to me and went out the door. There is so much patient abuse. You have to spend thousands of dollars to find the one doctor that will listen, sad! I sometimes think smaller towns have better doctors because they aren’t over worked. A nurse told me book your appointments with a physicians assistant because they get scheduled for 30-45 minutes and a MD gets 15 minutes lots and if he is running late you may get 10 or 5 minutes.

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Yeah that can happen. I have a really nice surgeon he’s younger and he’s friendly and walks around with his big cuppa coffee from the convenient store and sits on the windowsill in your room and talke to you like a friend

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@maryswims

Yeah that can happen. I have a really nice surgeon he’s younger and he’s friendly and walks around with his big cuppa coffee from the convenient store and sits on the windowsill in your room and talke to you like a friend

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I kind of like that!

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I was diagnosed in July 2017. I had gone to the ER thinking I had an inner ear infection. Was sent to,a larger hospital where a vascular surgeon confirmed it. He said it was just shy of being big enough to operate.
I have consistent pain in my left side under my rib. No one can find what is wrong. Causes pain and nausea. I do not have insurance and after 2 trips to the ER this weekend I was sent home with Zofran and Bentyl. Helps with nausea but not the pain. They suggested I go to a gastro doc to have a scope but with no insurance I can’t afford it.
I will just withno reason start throwing up. Does anyone else have anything like this happen? I know it’s no related to my aneurysm. Just so tired of not finding any help. I have a history of diverticulitis but the CT scan at the ER doesn’t show anything.

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@ritaself

I was diagnosed in July 2017. I had gone to the ER thinking I had an inner ear infection. Was sent to,a larger hospital where a vascular surgeon confirmed it. He said it was just shy of being big enough to operate.
I have consistent pain in my left side under my rib. No one can find what is wrong. Causes pain and nausea. I do not have insurance and after 2 trips to the ER this weekend I was sent home with Zofran and Bentyl. Helps with nausea but not the pain. They suggested I go to a gastro doc to have a scope but with no insurance I can’t afford it.
I will just withno reason start throwing up. Does anyone else have anything like this happen? I know it’s no related to my aneurysm. Just so tired of not finding any help. I have a history of diverticulitis but the CT scan at the ER doesn’t show anything.

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Sorry to hear that. I have had a recent bout with GI issues which I am told is not related. Others have had similar issues as well as rib cage pain , liver problems and one in this group has been instructed to avoid lifting anything over 20 pounds. Empirically it appears that there is some relationship between these issues and celiac aneurysms

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virtually all of us are in a monitoring phase as the risk of repair is greater than the risk of waiting and monitoring until the aneurysm reaches 1.4cm or greater.

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I am in a wait and monitor mode at this point. Have things gone well for you since your procedure? Where was the procedure performed?

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I have not had any procedures done. The ER just sends me home. I tell them about the aneurysm but they just act as if no big deal. If I understand there are no symptoms of the aneurysm.
Dr. Lee is a vascular surgeon at Centinnial Hospital in Nashville and has performed the surgery. Mine is too small to repair.

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@codonpatrick

virtually all of us are in a monitoring phase as the risk of repair is greater than the risk of waiting and monitoring until the aneurysm reaches 1.4cm or greater.

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Mine is only 11 mm, which is much smaller than 1.4 cm. However, the vascular surgeon says if it gets any larger at all, I will need surgery. I asked him if he has ever performed this kind of operation, & he said "no". So I have another CT in 6 months, & if it is any larger, I'm gonna look into UT Southwestern in Dallas.They have a lot of vascular surgeons there, & maybe one of them has performed this operation. Dallas is 3 hrs away, & I've been there several times to a GI doc, & she and everyone else we came into contact with UTSW were all just amazing!

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@txkathy

Mine is only 11 mm, which is much smaller than 1.4 cm. However, the vascular surgeon says if it gets any larger at all, I will need surgery. I asked him if he has ever performed this kind of operation, & he said "no". So I have another CT in 6 months, & if it is any larger, I'm gonna look into UT Southwestern in Dallas.They have a lot of vascular surgeons there, & maybe one of them has performed this operation. Dallas is 3 hrs away, & I've been there several times to a GI doc, & she and everyone else we came into contact with UTSW were all just amazing!

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I saw my vascular surgeon yesterday. My celiac aneurysm is at 1.3 mm. Slightly larger from 1.24 cm. Will check again in 6 months. She says if it got to be 1.5 cm they would start to talk about repair. I wish I had never known it was there. Good luck with finding a good doctor. From my research, the celiac aneurysm is much more difficult to repair because of all the veins coming off of it. I will try to tune it out for six months and forget about it.

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Thanks for your input and I completely understand why you wish you had never learned that you had the aneurysm. Wait and monitor can cause a bit of anxiety but from everything I have studied the likelihood of rupture is small at this point.

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