Celiac Artery Aneurysm

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

@jurney01

Hello! Thanks for telling your story. I hope all is well. My aneurism was embolized in 2016. I am still worried it can reoccur. My stress is constant. I'm in my 40s. I was always active but now I'm scared of doing any activity to my abdominal area. My doctor sees me once a year but she too has no experience with the diagnosis. I take it day by day but once I feel pain on my right side I'm reminded of it.

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I am worried alot too. The first one was dissecting and immediate surgery. This time by the time I see the surgeon it will have been 3 weeks. I am told that is fast. I agree with you that when your stomach hurts you worry. My stomach has hurt since before the first diagnosis and now that i have a second one (which i was told i would be good and never have to worry about it again!) I am so worried. So stressed over it. I dont know whether to wish for surgery (where recovery was so terrible that I told people if I had to do it again…I probably wouldn't have surgery!!) Or to wish for the wait and see approach 'where I will live in constant worry as to be active or not. I was 46 when I had my first one and now I am 55 which might make it more risky for me.

I am sorry that you are so young and have to deal with this.

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I am new to this Mayo site, and happy to find this subject Celiac Artery Aneurysm! I'm 61 and have BEEN very healthy and active! Diagnosed in Feb with the Celiac here at Mayo Scottsdale after unusual high blood pressure. I'm concerned reading the sizes here: @randy1950: Dr "says if it got to be 1.5 cm they would start to talk about repair." I am in the wait and see period and these scans were my first showing 5 aneurysms (I thought most concerning from dr. notes, "Mild-moderate ascending aorta dilatation (diameter 41 mm at mid level). And much worry about the brain aneurysm, since my only health symptom has been headaches! Anyway, to keep on the topic here, my report says, "Mild ectasia of both common iliac arteries. Maximum diameter of the left common iliac
artery is 16 mm. Diameter of the right common iliac artery is 15 mm." I have a Neuro CT again 3mths from diagnosis- end of July, but no mention of the Iliac and incidentally renal also. Anyone else out there suspected of a Connective Tissue Disorder?
And yes to others also, life changing! These strong blood pressure meds slow life way down, which is a must, to avoid rupture. And will not be able to run, and even afraid yoga gets heartrate up too much. Anyway, just curious about those who have had stents or procedures, as no mention on my end of that yet, and at what size they did surgery for Iliac? Grateful to have found this, and sending healing vibes to all!! Janet

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@GratefulEveryDay

I am new to this Mayo site, and happy to find this subject Celiac Artery Aneurysm! I'm 61 and have BEEN very healthy and active! Diagnosed in Feb with the Celiac here at Mayo Scottsdale after unusual high blood pressure. I'm concerned reading the sizes here: @randy1950: Dr "says if it got to be 1.5 cm they would start to talk about repair." I am in the wait and see period and these scans were my first showing 5 aneurysms (I thought most concerning from dr. notes, "Mild-moderate ascending aorta dilatation (diameter 41 mm at mid level). And much worry about the brain aneurysm, since my only health symptom has been headaches! Anyway, to keep on the topic here, my report says, "Mild ectasia of both common iliac arteries. Maximum diameter of the left common iliac
artery is 16 mm. Diameter of the right common iliac artery is 15 mm." I have a Neuro CT again 3mths from diagnosis- end of July, but no mention of the Iliac and incidentally renal also. Anyone else out there suspected of a Connective Tissue Disorder?
And yes to others also, life changing! These strong blood pressure meds slow life way down, which is a must, to avoid rupture. And will not be able to run, and even afraid yoga gets heartrate up too much. Anyway, just curious about those who have had stents or procedures, as no mention on my end of that yet, and at what size they did surgery for Iliac? Grateful to have found this, and sending healing vibes to all!! Janet

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I was also diagnosed with a Celiac Artery Aneurysm in May… I had my left kidney removed in 17 and then a surgical hernia repair this past October.. My CT scan BEFORE the hernia repair showed nothing.. This may when I had a follow-up CT scan showed a 1.6CM celiac aneurysm… Came out of nowhere. I have no symptoms either.. What I find odd though is the difference in the size of what Dr.'s consider a time to intervene.. That is the most distressing part to me.. My Dr. told me that 1.6CM is to small and he wouldn't suggest I do anything.. So at this point we will monitor with biannual CT scans and I go and live my life… I ain't gonna worry about it.. BTW I am 64 and WAS a smoker..

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I think you may want to get a second opinion. He may be thinking of aorta aneurysm. My vascular surgeon will operate at 1.5. CAA is much more rare. Good luck.

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@randy1950

I think you may want to get a second opinion. He may be thinking of aorta aneurysm. My vascular surgeon will operate at 1.5. CAA is much more rare. Good luck.

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thanks for the reply.. But yes he does know it's a CAA…. I've seen numbers all over the place but most of the data I read say they will go in around 2.5 CM..

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@65coupe

I was also diagnosed with a Celiac Artery Aneurysm in May… I had my left kidney removed in 17 and then a surgical hernia repair this past October.. My CT scan BEFORE the hernia repair showed nothing.. This may when I had a follow-up CT scan showed a 1.6CM celiac aneurysm… Came out of nowhere. I have no symptoms either.. What I find odd though is the difference in the size of what Dr.'s consider a time to intervene.. That is the most distressing part to me.. My Dr. told me that 1.6CM is to small and he wouldn't suggest I do anything.. So at this point we will monitor with biannual CT scans and I go and live my life… I ain't gonna worry about it.. BTW I am 64 and WAS a smoker..

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Your observation regarding the inconsistencies among Doctors regarding how to treat Celiac Aneurisms troubles me as well. The inconsistencies are probably related to the rarity of the disease. The UCLA vascular surgeon I consulted told me that nothing should be done until the aneurysm reaches at least 1.6 cm and he doesn't expect that I will ever have it addressed. I was also told to live my life normally and have a CT every once in a while.

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Was in the hospital for a bladder polyp biopsy last week and he said basically the same thing… Mine is at 1.6 but told me to just get scans yearly, which I do anyway due to my bladder polyps..

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Hello ALL..I was diagnosed with an aneurysmal dilitation of the distal celiac axis 2 years ago. Caught when I had a CTA of the chest due to severe back pain between my shoulder blades. I was diagnosed with a descending aortic dissection and had TEVAR to repair. No one really said anything about the celiac artery aneurysm because they were more concerned about the descending aortic dissection. My PCP actually told me that if it were to rupture I'd be dead before hitting the ground. I am currently in a new position and won't have insurance until October. I plan on getting a new PCP and going to MAYO in Jacksonville. I am scared everyday. I don't know my measurements on the celiac artery. Good luck to you all. Glad there are others like me. I am 53, female. Not overweight nor ever smoked. I am a nurse and worked night shift for years. Now on days.

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@kberley0828

Hello ALL..I was diagnosed with an aneurysmal dilitation of the distal celiac axis 2 years ago. Caught when I had a CTA of the chest due to severe back pain between my shoulder blades. I was diagnosed with a descending aortic dissection and had TEVAR to repair. No one really said anything about the celiac artery aneurysm because they were more concerned about the descending aortic dissection. My PCP actually told me that if it were to rupture I'd be dead before hitting the ground. I am currently in a new position and won't have insurance until October. I plan on getting a new PCP and going to MAYO in Jacksonville. I am scared everyday. I don't know my measurements on the celiac artery. Good luck to you all. Glad there are others like me. I am 53, female. Not overweight nor ever smoked. I am a nurse and worked night shift for years. Now on days.

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Thanks for your story. I also was diagnosed 2 years ago and worked nights as a correctional officer for several years. I'm 47 and female. My aneurism was embolized but I still have that fear of rupture everyday. ☹☹

Liked by kberley0828

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My dad was diagnosed with a celiac artery aneurysm a couple years ago. His doctor wasn’t worried about it until a couple years ago, when he started to become sick after eating or drinking anything. If he even drinks water he gets pain from his stomach to his back and up under his ribs. He has lost over 40lbs in the last 2 months. He doesn’t sleep. Has anyone experienced this? It’s very scary for me to watch him in pain. He does see a vascular surgeon today. Finally

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hope all goes well… let us know how things went..

Liked by kberley0828

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Greetings … I'm virtually sure I didn't post this in the right place, but I was recently diagnosed with a 1.5mm celiac artery aneurysm that was coincidentally found by CAT scan for an unrelated blood vessel rupture in the top of my left lung that produced quite a lot of bright red blood while coughing. They did an emergency bronchotomy and repair the leak. And now I'm left with the knowledge of the CAA. In shock after reading up on the disorder. This was all at University California San Diego hospital in Hillcrest, San Diego, 92103. Confused and worried. Thank you, Andreas.

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@andreas92103

Greetings … I'm virtually sure I didn't post this in the right place, but I was recently diagnosed with a 1.5mm celiac artery aneurysm that was coincidentally found by CAT scan for an unrelated blood vessel rupture in the top of my left lung that produced quite a lot of bright red blood while coughing. They did an emergency bronchotomy and repair the leak. And now I'm left with the knowledge of the CAA. In shock after reading up on the disorder. This was all at University California San Diego hospital in Hillcrest, San Diego, 92103. Confused and worried. Thank you, Andreas.

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sorry to hear of your issues, but the good thing is they found it.. I have a 1.6cm CAA. What I have found in my research is that the decision to operate is all over the place.. some go in at 1.5, some dr.'s want to wait until is gets upwards of 2.5cm or more.. get some more opinions before doing anything…. at present I'm just living my life as I normally would… I also have no symptoms…

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@andreas92103

Greetings … I'm virtually sure I didn't post this in the right place, but I was recently diagnosed with a 1.5mm celiac artery aneurysm that was coincidentally found by CAT scan for an unrelated blood vessel rupture in the top of my left lung that produced quite a lot of bright red blood while coughing. They did an emergency bronchotomy and repair the leak. And now I'm left with the knowledge of the CAA. In shock after reading up on the disorder. This was all at University California San Diego hospital in Hillcrest, San Diego, 92103. Confused and worried. Thank you, Andreas.

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I too diagnosed at 1.5 cm. I have found general consensus just watch and wait until it reaches 2.0. Operate at 2.5cm. Many of these don't change at certain point and you may never have to do anything.
Best Wishes

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@itsallaboutmyki

My dad was diagnosed with a celiac artery aneurysm a couple years ago. His doctor wasn’t worried about it until a couple years ago, when he started to become sick after eating or drinking anything. If he even drinks water he gets pain from his stomach to his back and up under his ribs. He has lost over 40lbs in the last 2 months. He doesn’t sleep. Has anyone experienced this? It’s very scary for me to watch him in pain. He does see a vascular surgeon today. Finally

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Hi @itsallaboutmyki,

How is your dad? Are you able to share any updates? I look forward to hearing back from you.

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