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Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
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The vascular team at mayo told me every two years for CTs, mine hasnt grown at all. I also have blood clots on the back side which is actually a good thing. Its been 5 years and mine hasnt changed at all.
I was told the liver doesn't cause pain. I've had 2CT scans and all was fine with internal organs.
Did your vascular surgeon say it would hurt in the upper right under ribs? Asking as I am going to discuss this with mine at next appointment. Thank you
Bob... I’ve resigned myself to live for the day and get the most out of it. I was very freaked out when I found out. It's been about 1-1/2 years now. After 3 months or so I just simple let go of the fear knowing that if it ruptures, which I have no control over, I won't die a long slow death which to me would be horrid.
I hope you find some relief. Maybe you could go to Msyo and see their team. The surgery I hear is very invasive and carries high risk... That's why they don't want to do if... Supposedly.
I agree with those that say if it's so rare why are there so many talking here on this site? I think lots of people go undiagnosed.
Has anyone been told what would have caused it? I wasn't. In one CT scan it wasn't even found and one year later, I had another CT for this right sided pain and that's when it was found.
Also since then I has a thoracic MRI of back and it wasn't indicated on those reports either. Seems like it would have since the Celaic artery is closer to our spine than chest ( per my doctor)
That's very interesting. Thanks for the info. I wasn't told about lifting weight either. In fact they simply said just live your life like normal. Did they advice you to take any type of precaution? Mine is 1.3 and my vascular surgeon said they wouldn't do anything unless it was 2cc.
Also, I will bring that up.
No, he only said the pain might be the aneurysm. I have a fatty liver, thats why I thought it might be the culprit. But its definately a pain i experience often. Its not bad, more dull achy. It is a very odd unique pain. Its not debilitating just odd.
Thank you!
I'm confused for myself as only on one test did it say I have a fatty liver... Which was ultrasound and not on any CT scan. So weird my doctor who did say I had fatty liver said it wouldn't cause osin. Seems like way too many differing opinions that the doctors give out. My supposed fatty liver is non alcoholic. I say supposed ss the gastroenterologist said if the CT scan didn't see that I don't have it.
Its all abstract to Doctors , they only practice medicine, none of them really know. Since these aneurysms are so rare and there is no data, there's nothing they can really be certain that I suppose
I was told by my vascular surgeon that the pain under my right ribs and into my right shoulder blade could be referred pain from the liver, possibly due to a small embolism from the celiac aneurysm to the liver. He is concerned about that for me because I have already had one aneurysm to my spleen causing a splenic infarct. (This is not common.) I will have a CT scan this week to see if my liver has any signs of an infarct. He took the symptoms related to the pain in my right side seriously. If it is, I will post to you all again this weekend. I am hoping it is nothing. (Also for me, the pain in my right ribs and shoulder blade occurred last summer and I told my vascular surgeon about it when I saw him recently. Even though I am fine now, he took what I said about the right side pain seriously.)
Thank you for the information.
I had 2 CT scans one a little over a year ago and one 2 years ago. Mine were fine so am hoping yours will be fine too but please let me know what they find. The area of pain is the same as mine.
My pain was pretty much 24/7 for about 4 years. I still have it but its not quite as bad. Mine also hurts in my right waist area.
I do not live by any big hospital. Am wondering if you live close to major hospital as it sounds to me as though you are getting quality care and are being listened to.
I once was told by a dr in a larger city I am the doctor. I told him but I know my body and want to tell you what I am experiencing. I gave him my notes and just gave it back to me and went out the door. There is so much patient abuse. You have to spend thousands of dollars to find the one doctor that will listen, sad! I sometimes think smaller towns have better doctors because they aren’t over worked. A nurse told me book your appointments with a physicians assistant because they get scheduled for 30-45 minutes and a MD gets 15 minutes lots and if he is running late you may get 10 or 5 minutes.