1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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debd | @debduiven | Jun 7 4:51pm

I have had 4 treatments of Evenity and so far no real side effects-fatigue after 10 days/2weeks, minor aches in joints. Had knee surgery 2 weeks ago which went well (was a little concerned about that one!). I, too, am hoping for some gains!

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ripley | @ripley | Jun 8 10:48am
In reply to @kitchengal "If anyone is still reading this thread, I did my 12 injections of Evenity (2023-2024) and..." + (show)
@kitchengal

If anyone is still reading this thread, I did my 12 injections of Evenity (2023-2024) and built back 6 years of bone loss. My follow up dexascan showed gains in all areas measured. I am following up treatment with 3 years of annual Reclast IV infusions to maintain my gains. Very pleased with Evenity.

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Did you have any side effects from the Evenity? Would you mind sharing your DEXA scores before and after treatment? Also, did you see a cardiologist before starting Evenity to rule our heart issues? Thank you.

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1 reply
gurine | @gurine | Jun 8 11:49am
In reply to @kitchengal "If anyone is still reading this thread, I did my 12 injections of Evenity (2023-2024) and..." + (show)
@kitchengal

If anyone is still reading this thread, I did my 12 injections of Evenity (2023-2024) and built back 6 years of bone loss. My follow up dexascan showed gains in all areas measured. I am following up treatment with 3 years of annual Reclast IV infusions to maintain my gains. Very pleased with Evenity.

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wonderful! I just had my 11th and am anxious to see dexa after 12th
I had no side effects with Evenity.

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beanieone | @beanieone | Jun 8 4:14pm
In reply to @kristie2 "I have 2 more injections to go and I am hopeful that I will have great..." + (show)
@kristie2

I have 2 more injections to go and I am hopeful that I will have great gains . I will start reclast after 1 month of a drug break .

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I’ll have my last two injections of Evenity on June 27!! My rheumatologist is pushing Prolia for maintenance, although when I ask about Reclast, he hesitantly says that’s a possibility. He prescribed Reclast in the past (5 years, 3-year holiday and then two more infusions in 2018 and 2020); I had no issues with it.

I’m working on determining how many lifetime infusions of Reclast are permissable and will go from there. I like the idea of having an annual infusion and drug holidays in my OP battle plan. Also, Reclast has been available for at least 15 years and doesn’t cost an arm and a leg, especially when administered in a clinic or outpatient setting (at least that’s been my experience).

Peace out y’all!

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1 reply
kristie2 | @kristie2 | Jun 8 4:37pm
In reply to @beanieone "I’ll have my last two injections of Evenity on June 27!! My rheumatologist is pushing Prolia..." + (show)
@beanieone

I’ll have my last two injections of Evenity on June 27!! My rheumatologist is pushing Prolia for maintenance, although when I ask about Reclast, he hesitantly says that’s a possibility. He prescribed Reclast in the past (5 years, 3-year holiday and then two more infusions in 2018 and 2020); I had no issues with it.

I’m working on determining how many lifetime infusions of Reclast are permissable and will go from there. I like the idea of having an annual infusion and drug holidays in my OP battle plan. Also, Reclast has been available for at least 15 years and doesn’t cost an arm and a leg, especially when administered in a clinic or outpatient setting (at least that’s been my experience).

Peace out y’all!

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Beanieone , Prolia is one that I will never go on . From what I have read that’s one you never get off of . My endocrinologist doesn’t like it either .

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kitchengal | @kitchengal | Jun 8 8:43pm
In reply to @ripley "Did you have any side effects from the Evenity? Would you mind sharing your DEXA scores..." + (show)
@ripley

Did you have any side effects from the Evenity? Would you mind sharing your DEXA scores before and after treatment? Also, did you see a cardiologist before starting Evenity to rule our heart issues? Thank you.

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I really only experienced some fatigue the first 24 hours so I planned accordingly. Yes, I did discuss this option with my cardiologist because I have a metal mitral valve (I three a clot to the heart in 1995). My cardiologist agreed that the risk was worth it. As far as my dexa scores, I don't have them handy but know that my spine was at -3.7 before and after -2.5. I also recall that my right femoral neck improved 14% from what is was at the worst.

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annspear | @annspear | Jun 17 2:01pm
In reply to @californiakaren "I completed one year of Evenity in July. My bone density improved! My spine T-score went..." + (show)
@californiakaren

I completed one year of Evenity in July. My bone density improved! My spine T-score went from -3.0 to -2.1 which is a 13.5% improvement (the percentages are calculated using the bone density values measured in g/cm sq). My total femoral mean improved from -1.8 to -1.5 which is a 4% gain. I had no side effects except for minor swelling at the injection site in my belly which went away after a day. I have gone on Reclast to lock in my gains. It is an annual infusion for 3 years. I didn't like the sound of Prolia because you must take it for life and Fosamax due acid reflux issues. Over the year, I took 500 mg calcium plus Vit D supplements daily, took walks and did yoga once a week. I added frequent weight training over the last 3 months. It is hard to do everything suggested, but did the best I could. I highly recommend Evenity based on my experience.

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Happy to hear this I have 3 more shots to go!!

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1 reply
mac447 | @mac447 | Jul 4 3:48pm

Do Evenity injections have to be administered every 30 days? Is there any flexibility and if so, how much?

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jenat | @jenat | Jul 5 2:43pm

At 83 I started taking Evenity for 12 months with no side effects. Amazing drug. Now they want me to go on reclast But I think that there’s too many side effects, including Atrial Fibrillation that can lead to stroke and heart failure, and possible Osteonecrosis of the jaw. So After looking through all the research it looks like my best bet is taking Prolia twice a year for life.

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jenat | @jenat | Jul 5 2:44pm
In reply to @mac447 "Do Evenity injections have to be administered every 30 days? Is there any flexibility and if..." + (show)
@mac447

Do Evenity injections have to be administered every 30 days? Is there any flexibility and if so, how much?

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Yes

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