Liver transplant - Let's support each other

Richard,
I understand and had to be transplanted again a week after my first so I kind of get where you’re coming from.
I think you will find it helpful here.

Blessings Ed

Well. It affects my balance I
Tend to fall alot I move around a lot in am and early afternoon before I go to work. Does not seem to help at all . My family Dr. Wants to prescribe gabapectin for neuropathy
Take at night. Have not gotten the pills yet!!!! But if I do will keep ya all posted. Thanks for your info. I only have been on tacrolimus for 3 yrs. This is one of the side effects. Other meds are not so hot either....

I agree, I have a bit of balance issue as well but like you said “ don’t read side effects 😊”
Way too many to read and cause worry right ?
We do what we can and better than the alternative we faced 👍🏽🙏🏽😊

On a June 25, I have a liver evaluation at the Phoenix campus. I’m terribly nervous! Any advice?

EDWARD....it seems yes we r grateful beyond words. But....our lives, moving forward is a crap shoot with all the meds we have to take.i know my situation is linked to tacrolimus...but looking at all other drugs those side effects are worse than the list with tacrolimus. When something happens to me I want to know why......oh well another day. Have a good one!

Hi, @anniejax04 and Welcome to Mayo Connect. I am a transplant recipient, and I understand how you are feeling as you approach the date of your liver transplant evaluation. I can assure you that you are not alone.
Are you currently a patient at Mayo? If not, you will be amazed at the coordinated care and the focused attention on you-the patient. You should have received a detailed schedule of all of your appointments. Yes, it is going to be like a marathon and you will sleep well afterwards!

My advice is to bring a notebook to take notes and write questins, and a tote bag for all of the information that you will be given. Bring some snacks and a bottle of water in case you don't have time for eating. Of course a light sweater is a necessity because the buildings are always cold!

I will be looking for some transplant patients from Phoenix to connect with, In the meantime, I have located a discussion that has been ongoing for a long time. Like any conversation, it does veer off course. Yu might want to look at the beginning (oldest) comments first.
- Transplant Evaluation - What to expect
https://connect.mayoclinic.org/discussion/transplant-evaluation-what-to-expect/

Annie,
Will you be traveling to Phoenix? Have you arranged lodging? Is someone coming with you to be a 2nd set of ears? What is your biggest concern right now? Do you have any questions about any of the tests?

@jackie421blfdgurl, Oops! I am so concerned when I think about you falling a lot. I fell, actually missed the bottom step and - down I went. Fractured wrist, and it is no fun! I don't want you to do that! Have you thought about using a cane for the time being, at least until the dizziness is resolved.
Remember to tell your transplant team about any additional medications. They could interfere with immunosuppressent meds or affect your labs.
I'm going to be thinking about you and hoping that you are soon dancing!

@coreyb77, Yesterday, I misspelled your name, so I'm checkingn to make sure that you get my reply.

Hey Rosey. Thank u as always for your reply. Let me tell u girl...I am dancing..one thing I love to do... it's I am not paying attention be it going up stairs or down..I walk outside and watch the sidewalk more than looking up. It is difficult when I fall I can't bend my knees to get up due to my knee implants.i can squat but no kneeling on the knees... doctors forgot to mention that to me when they gave me new knees..but the pain is gone and I can walk. Oh well take it day by day. Like all of us. I know I had a very hard time with the surgertmt and my horrible 2 months in hospital ...dealing with new hernia .but have to find a little time to stop. ..thank God and b grateful and thankful. Of other people out there in the universe I have no complaints
Try and make day by day count.
Have a great day. Yesterday in Jersey we had thunder storms.
Today 84 and no humidity..yea!!!!! Hugs. Hugs. Hugs..

Hello,,,,,, My son age 35 has a MELD score of 44 because of Alcohol consumption. We are trying to get a liver transplant he needs to survive. We are getting turned down at all the hospitals as they see him as very high risk. Any suggestions of where to go would be greatly appreciated.
Thank you
Robert