Connect
Fibromuscular dysplasia (FMD): Want to connect
I have had 2 neck CT scans and both found MFD- my neurologist states it’s nothing to worry about. In the mean time I have suffered from chronic dizziness, headaches, anxiety symptoms, ringing ears. I have seen a cardiologist, neuro vascular specialist and had a wide variety of tests that all seem normal- except the neck CT. No MFD in renal artery. Curious if I should ignore it like my doctor is telling me or if I should seek a second opinion?
Like
Helpful
HugInterested in more discussions like this? Go to the Heart & Blood Health Support Group.
Connect
That is so interesting-I just posted something about an EMG that my neurologist has scheduled. I've been dealing with neuropathy for several years-seen several doctors and she is the first one that has recommended that I have it done. I'm assuming that will give the information on maybe help with the relief? I would be very interested in reading what your spine specialist has to say.
I also have cirrhosis and degenerative disc disease. I get quite tired but walking and light yoga work for me. I just need to be more consistent with it. I have nerve issues with my left foot and will see a pain specialist for an EMG test soon. I use gabapentin when I really can’t sleep through the leg and foot pain but I would rather see a PT.
My neurologist told me the same thing about craning my neck. It scared me a little. I used to do that when driving all the time.
Thanks for sharing.
I forgot to say, sorry that you can’t take the aspirin. That really helps with the headaches. I also take a beta blocker due to portal hypertension. I am lucky that I do not suffer from dizziness. Hoping you can find an answer for that.
-
Like -
Helpful -
Hug
1 ReactionI just found out that I have fibromuscular dysplasia also. I now have 3 aneurysms two in my head and one in my lower heart. https://www.inspire.com/groups/fibromuscular-dysplasia-society-of-america/discussion/severe-leg-pain-with-fmd/ Try this might help
-
Like -
Helpful -
Hug
1 Reactionfibromuscular dysplasia
@lpyne, I moved your post to the Stroke & Cerbrovascular support group and the Heart & Blood Health support group. I'm also tagging fellow members like @stpaulpoet52 @queenkeb @geechiegal @jwillits8 @jayhawk57 who have experience with fibromuscular dysplasia (FMD).
If you would like to seek a second opinion at Mayo Clinic, you can submit a request here: http://mayocl.in/1mtmR63
@lpyne, how are you managing your dizziness and headaches?
I have been thinking about you. It occurred to me that fish oil or flaxseed oil tablets also thin your blood. Perhaps you could ask your doctor if one or the other might be a good substitute for aspirin since you are allergic to it.
Hello @marie1956, you commented on fibromuscular dysplasia, have you been diagnosed with this? Do you also struggle with leg pain as a result?
I'd like to invite @parrot53, @lpyne, @stpaulpoet52 @queenkeb @geechiegal @jwillits8 @jayhawk57 all have talked about fibromuscular dysplasia as well and may have some experiences to share with you as well.
-
Like -
Helpful -
Hug
2 Reactions@JustinMcClanahan
I have Fibromuscular dysplasia affecting mainly my neck veins. I have not had any symptoms for a long time. I take a low dose aspirin daily per Madison WI specialist. I have also had scans to check my other main veins and all is good. I do not have leg or other pain.
Thank you- I thought I posted on the wrong one but then couldn’t remove it
-
Like -
Helpful -
Hug
1 Reaction