Fibromuscular dysplasia (FMD): Want to connect

I didn’t know I had FMD until hospitalized for multiple strokes after chiropractor cracked my neck to alleviate headaches. The right half of my head is still numb.

Also didn’t know that most people do not have ringing in their ears. I thought the whooshing was normal too.

Yes, healthcare is lacking in many countries, even in my country - Sweden. That's why it's lucky this page exists! There's a lot to read about our disease here. There's a lot of ignorance about our disease among vascular doctors etc. The only contact I've had with a vascular doctor didn't have much knowledge of the disease.
I think tinnitus is common with our disease but we have different sounds depending on whether we have or have had dissection or aneurysm or very narrow carotid artery stenosis.
I have it in the largest artery in the brain and in both carotid arteries but nothing else has been x-rayed so I could have more places. I've had a metallic high-pitched noise for a year that can vary in tone from time to time and sometimes knocks. Pulsatile tinnitus is probably the most common in a dissection where one of the vessel walls ruptures. I'm just now changing health center and doctor and hope for better support than before.
You'll get more answers from others here later but Welcome here!

I have had a TIA that affected my speech and impaired my memory, speech came back but not my memory. Unsteady when I walk.
I have numbness in my entire face and in my lower legs and arms that become icy cold later in the day. Headaches daily.
How are you feeling now?