Anyone here dealing with peripheral neuropathy?

Yeah, I’m not a scientist but the way I take supplements and vitamins is when my piss starts changing crazy colors. I pack off a little bit back off a little bit. It’s really important lots of calcium. Lots of magnesium little salt potassium get your blood checked.
Plainly your conductor can tell from your blood work if you’re deficient in anything a year ago, my blood work sucked with supplements and a rigorous amount The proper vitamins I have to say a year later my blood work is great. I’m stronger. I’m able to battle my symptoms a little and knowing that my body is getting the proper nourishment helps me very much psychologically and don’t for a minute. Think that you don’t have some sort of control over what’s happening is amazing. It’s the supplements anyway have a great day. I think I just might’ve overstated Expounded but hell I got time

What I meant to say at the end was mines the mind is a powerful thing focus you can displace pain not always but simply I know for me that sometimes I’m in a lot of pain. I’ll sit down and play piano and concentrate on that and release a lot of my symptoms that works for me. I’m sure there’s something you can think about or do that would work for you

I believe my might have started with flu shots..

I just read your article about your neuropathy and I find that I cannot wear closed shoes. Fortunately, I live in Florida, so I can be a sandals that have good support. That seems to help me.

If I may add my two cents … I have idiopathic polyneuropathy (no pain, but lots of balance/gait issues). At my neurologist's urging, for more than a year, I've been taking EB-N5, the medicinal food that, among other supplements, carries a significant amount of B-6 – but the "friendly" kind, pyridoxal phosphate (P5P), and not P5P's wicked twin, pyridoxine hydrochloride, the sort that, if taken to excess, may aggravate or produce PN symptoms. To date (more than a year), I've detected no worsening of my PN; in fact, I'm pleased to report that my balance/gait issues have remained remarkably stable. So much for my layperson's two cents. 🙂 I'm not a physician, only a fellow with PN, like the rest of us. I wish us all well! – Ray (@ray666)

I can’t do a Tens Unit. I have seizures and fall straight backwards. Since mine is severe sensorimotor (something ) polyneuropathy., SFN, and CAN - cardiac autonomic neuropathy. Since mine is motor also I have tremors in my arms/legs it really mess with my balance. I have not been able to endure tens units after I had bacterial spinal meningitis. It sends my nervous system into over load. The antibiotics from the spinal meningitis caused my neuropathy then autoimmune disorder.

Dear Artemis,
So sorry to hear about the severity of your Autoimmune PN. Are you on steroids ?
You must be so upset by the outcome of your original diagnosis.
Also, my PN is autoimmune, but nothing like what you are going through. I am having balance issue and assume my motor nerves are now involved.

I have peripheral neuropathy of my feet but I don’t have diabetes.
I have done some research on the use of alpha lipoic acid but it always refers to diabetic neuropathy. Does this imply that
Lipoic acid is of no use for none diabetic neuropathy

I think there is evidence that it helps more than diabetic neuropathy although there seems to be a lot more research on diabetic neuropathy. Here are a few other references on ALA.

Alpha Lipoic Acid
http://lpi.oregonstate.edu/mic/dietary-factors/lipoic-acid
Research seeks to identify the mode of action of two age-essential micronutrients,
lipoic acid (LA) and acetyl-L-carnitine (ALCAR)
https://lpi.oregonstate.edu/research/hap/aging-stress-response-and-mitochondrial-decay
(R)-Lipoic Acid: Unique ‘Mitochondrial Antioxidant’ Fights Premature Aging
https://nutritionreview.org/2019/07/r-lipoic-acid-unique-mitochondrial-antioxidant-fights-premature-aging/
You can also find a lot more using Google Scholar - https://scholar.google.com/

My pain doctor did an EMG then he prescribed Lyrica/Amitriptyline because I could not sleep. I had this weird electricity shooting through my body ever time I laid down at night. It finally stopped but I'm afraid I will be on these drugs the rest of my life.