Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Interested in more discussions like this? Go to the Neuropathy Support Group.

NJ Ed | @njed | Apr 13 5:36am

In reply to @janeiswelsh5499 "@njed what’s an AFO?" + (show)

@janeiswelsh5499 Hi - AFO stands for ankle foot orthotic. I have drop foot due to numbness and the AFO keeps my foot, lower leg and ankle almost at a 90-degree angle eliminating the slapping of the foot on the floor when walking providing a more natural walk.

wascaly | @wascaly | Apr 13 7:54am

In reply to @angels0228 "@grandma41 , gabapentin gave me awful nightmares and too dizzy to walk w/o walker,," + (show)

@angels0228
I just watched a L-O-N-G video about a supplement called BackBiome. It’s supposed to be an OTC alternative medicine for Gabapentin.
I’ve been on Gabapentin for years with no relief from tingling and numbness, my main complaint. Thankfully, I don’t have much pain - just this awful numbness with severe imbalance. I’ve always been active, but now I’m in a wheelchair, strictly due to the numbness and lack of balance.
As you might have guessed, BackBiome is a bit pricey but if it’d help me get out of this wheelchair, it’d be worth every penny.
Your responses would be welcomed!

phyllisq | @phyllisq | Apr 13 12:23pm

Neuropathy for about 10 years - idiopathic, no known cause. No pain to speak of but much back pain, recently alleviated by steroid shot. Less pain has not improved my leg weakness or unsteady gait. New neurologist is doing extensive testing to identify cause but I won’t be seeing him until June. My own diagnosis is that a fall I took many years ago injured my back and put pressure on my spinal cord leading to neuropathy. It doesn’t matter because it is too late to do anything about it. I will just do the best I can and be grateful I am not in great pain. I agree that the worst part of neuropathy is the trouble walking and for me, standing for more than a few minutes.

cleveland26 | @cleveland26 | Apr 14 11:37am

In reply to @wascaly "@angels0228 I just watched a L-O-N-G video about a supplement called BackBiome. It’s supposed to be..." + (show)

@wascaly There are several websites that state BackBiome is a complete scam. One of them: http://www.supplementdolphin.com.

I would not buy it based on what I have read.

tmary | @tmary | May 1 5:40am

I went into three hospitals in 2025. Was at the VA in Houston from April 3rd until December 23rd with septic shock syndrome. They found the multiple myeloma then and since I was out of it and didn't understand what was happening to me they tried a new drug called Valcade which did stop the cancer from spreading but also caused PN from above my knees down to my feet. I have mostly numbness very little shocks or pain. I'm in a wheelchair now. I am on a different treatment which has no neuropathy side effects. I wish they had used daratumumab first.