Living with Neuropathy - Welcome to the group

Hi
I have only 1 hand that hurts with nerve pain. Began around 7 years ago in my index finger. Then spread to whole hand.
I can't imagine having this pain in both hands. If it was a foot I wouldn't be walking. I'm still looking for for why. Just had a thoracic MRI this morning. Already had head and cervical MRI'S. I am not diabetic and always ate whole foods. I certainly have empathy for you.

Like John, I was wondering if it could be carpal tunnel or other trapped nerve through wrist or elbow. Have they done an EMG of your arm! I hope you consider Physical Therapy regardless to see what exercises might help? Debbie

Buenas tardes mi nombre es Carlos de 65 años y desde finales del 2020 inicio mi problema, hace mas de 30 años me operé de varicocele izquierdo y al final fue un desastre y tuve una infección que llevo a una orquiectomía. bueno durante casi 30 años de estar tranquilo con alguna molestia eventual , despertó un dolor muy agudo en la zona genital me he pasado por varios urólogos, me dieron antiinflamtorios, analgesicos, me examinaron la prostata , riñones, etc. hasta que luego de muchos meses me derivaron a terapia del Dolor con el diagnostico de que en la orquiectomia me cortaron el nervio genito y con este tema se calma unos meses y luego despierta afectando mi calidad de vida. que se aconseja en estos casos?? que ya son 3 años sin solución

I’m having problems walking. I don’t have a diagnosis of neuropathy. I have severe lumbar scoliosis and stenosis. A doctor recommended surgery last year, but I also have osteoporosis and getting the right treatment for that has delayed any decision about surgery. I could walk fine with a cane up to a mile last fall(with short rest stops).

In December 2023 my legs “felt funny” and I started having difficulty walking, with some increased back pain. Beginning in January 2024, I had severe pain (sciatica?) radiating down my buttocks and both legs, along with tingling and numbness in my legs. I had to use a walker and started gabapentin and also a course of steroids. I never used a walker until this happened.

Now the pain has receded, still there off and on but more manageable. My legs have not gotten better. Using a cane for short distances works, but I wobble side to side and that hurts my hips. I still need to use the walker to really get anywhere. My legs feel weak, as though they will give out, often numb and/or tingly.

I had an MRI and spine doctor just says take Forteo and then surgery. So I guess all the problems stem from the stenosis getting worse, but I don’t know for sure. Any suggestions?

Hi, Leonard
I agree: It's never too late to learn something new, even how, at 79, to enjoy oneself in the water (other than in the shower, I mean, of course 🙂 ). Suggested by a good friend some months ago, I did bring up the possibility of aquatic PT when I met with my doctor, and he (surprisingly, perhaps) endorsed the idea but asked that I give top priority to dryland (!?!) strength-based PT of the sort I'd already been doing.
Ray

Hello @carlosaugusto, Welcome to Connect. I'm sorry to hear you have had to deal with the complications and the orchiectomy that followed. Three years is a long time to have to deal with no solutions that help. There is another discussion that I think you might find helpful:
--- Anyone considered bilateral orchiectomy: Why or why not?: https://connect.mayoclinic.org/discussion/bilateral-orchiectomy/

I did find some research on the topic that might be helpful:
"How do you treat testicular nerve pain?
Conservative therapy includes heat, ice, scrotal elevation, antibiotics, analgesics, NSAIDs, antidepressants (doxepin or amitriptyline), anticonvulsants (gabapentin and pregabalin), regional and local nerve blocks, pelvic floor physical therapy, biofeedback, acupuncture, and psychotherapy for at least 3 months."
--- Chronic Testicular Pain and Orchalgia: https://www.ncbi.nlm.nih.gov/books/NBK482481/

It sounds like you have seen many different doctors. Are you able to seek a second opinion?

One of my favorite activities for at least 20 years was a brisk 2 mile morning walk. Well, I CAN walk now of course. I could even run if something was chasing me! But the pleasure? That’s gone. It’s more like a grim task. Every tiny muscle fiber from my hips to my toes hurts. And the pain intensifies as I proceed. I finally have to find a place to sit - a stranger’s porch? So I could take a walk in my neighborhood on this beautiful Spring day. But why? Same with biking. I went a year without getting on my bike. I used to take a ride in my lovely neighborhood almost every evening in the summer. I tried it a few months ago. Oh my God. This time not only my lower body hurt, but my hands, shoulders, neck …
So off I go to the indoor pool! I do some pool calisthenics and swim laps. For years I said “please don’t tell me I have to swim for exercise”, yet here I am.