Living with Neuropathy - Welcome to the group

Those look nice. I prefer something skirted to hide more, but that gives me an idea to look for a skirted zipped suit.

I also have pain and numbness in my right hand only.
That started 3 yrs ago and there’s a lot I can’t do with that hand.
Very upsetting as I’m right handed.

No it’s not carpal tunnel as stated by my neurologist who I saw 2 weeks ago.
He stated it’s due to my CIDP and involved the radial and ulnar nerves in my arm.

I’m having problems walking. I don’t have a diagnosis of neuropathy. I have severe lumbar scoliosis and stenosis. A doctor recommended surgery last year, but I also have osteoporosis and getting the right treatment for that has delayed any decision about surgery. I could walk fine with a cane up to a mile last fall(with short rest stops).

In December 2023 my legs “felt funny” and I started having difficulty walking, with some increased back pain. Beginning in January 2024, I had severe pain (sciatica?) radiating down my buttocks and both legs, along with tingling and numbness in my legs. I had to use a walker and started gabapentin and also a course of steroids. I never used a walker until this happened.

Now the pain has receded, still there off and on but more manageable. My legs have not gotten better. Using a cane for short distances works, but I wobble side to side and that hurts my hips. I still need to use the walker to really get anywhere. My legs feel weak, as though they will give out, often numb and/or tingly.

I had an MRI and spine doctor just says take Forteo and then surgery. So I guess all the problems stem from the stenosis getting worse, but I don’t know for sure. Any suggestions?

Buenas tardes mi nombre es Carlos de 65 años y desde finales del 2020 inicio mi problema, hace mas de 30 años me operé de varicocele izquierdo y al final fue un desastre y tuve una infección que llevo a una orquiectomía. bueno durante casi 30 años de estar tranquilo con alguna molestia eventual , despertó un dolor muy agudo en la zona genital me he pasado por varios urólogos, me dieron antiinflamtorios, analgesicos, me examinaron la prostata , riñones, etc. hasta que luego de muchos meses me derivaron a terapia del Dolor con el diagnostico de que en la orquiectomia me cortaron el nervio genito y con este tema se calma unos meses y luego despierta afectando mi calidad de vida. que se aconseja en estos casos?? que ya son 3 años sin solución

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Hello @carlosaugusto, Welcome to Connect. I'm sorry to hear you have had to deal with the complications and the orchiectomy that followed. Three years is a long time to have to deal with no solutions that help. There is another discussion that I think you might find helpful:
--- Anyone considered bilateral orchiectomy: Why or why not?: https://connect.mayoclinic.org/discussion/bilateral-orchiectomy/

I did find some research on the topic that might be helpful:
"How do you treat testicular nerve pain?
Conservative therapy includes heat, ice, scrotal elevation, antibiotics, analgesics, NSAIDs, antidepressants (doxepin or amitriptyline), anticonvulsants (gabapentin and pregabalin), regional and local nerve blocks, pelvic floor physical therapy, biofeedback, acupuncture, and psychotherapy for at least 3 months."
--- Chronic Testicular Pain and Orchalgia: https://www.ncbi.nlm.nih.gov/books/NBK482481/

It sounds like you have seen many different doctors. Are you able to seek a second opinion?

Hi Claire,
Wondering if your MRI mentioned tarlov cysts.
Most neurologists say they can't be symptomatic but they can definitely cause major problems. Look up Dr. Feigenbaum if tarlov cysts were noted on MRI

I definitely endorse doing land PT over water, if you can. I do water only because it’s too painful to do land exercises. Being in the water takes away the pain, but I know pain isn’t a problem for you. I have no doubt I was getting a better workout when I went for a brisk walk, or used the machines at the gym.

Hi, julbpat (@julbpat)

Is it 'fess-up time? Pain isn't a problem for me—– until it is. Just now, I'm nursing an achy right hip—by "achy," I mean seriously achy. I have a brand new appointment to talk with my orthopedist's NP about this. It's times like these when I wish I were a practiced hand at aquatic PT. To spare my hip, I'd happily hop into the water. 🙂

Cheers!
Ray (@ray666)

Buenos días Jhon ;

Gracias por tu pronta respuesta , aprecio mucho tus sugerencias y link que me adjuntas para encontrar algún alivio y definitivamente una segunda opinión siempre es bienvenida

Saludos cordiales

Carlos

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