1. < Heart Rhythm Conditions

Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

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I was told the samething at first. I guess they install so nany pacemakers they have gotten it down to just routine. I would recommed you have bloid work done after 6 months. Then every six months there after. I do and the results have been good. With the mefs added to my life. I feel better on the safe side. @jimana

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

I can say i feel good and i do not have any trouble getting things done.

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marke92 | @marke92 | Oct 6, 2016
In reply to @martishka "I see I have been tagged in these discussions. However, I don;t have a pacemaker, which..." + (show)
@martishka

I see I have been tagged in these discussions. However, I don;t have a pacemaker, which was offered to me but I chose to go the ablation route for my A fib and svt (tachycardia) I do have a friend who had one put in when she was 30- she kept fainting. She's a black belt in karate- extremely fit and feels awesome. She is now 63 and has had 2 or 3 more put in over the years and no complaints. Hope that helps. Martishka

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Thats a great story. Thanks for sharing. I feel better about my pacemaker now. @martishka

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jimana | @jimana | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

@marke92 What specifically do you look for in the blood work?

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

All i know is levels. Having to do with meds. I will ask and post the correct answer.

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marke92 | @marke92 | Oct 8, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

My cardiolygist told me if i were to get the defibrilator jolt over a weekend. Not to waist time in the emergency room. It did its job. Just come in on Monday so he can check it out. Kevin Young in Lake Charles La. is my Dr. I think he is really good. He also spends a lot of time with me. Answerd my questions and then informs me about things i didnt ask. It makrs sense after giving it sone thought. I believe until God is ready for me. Ill be living and active. I still have so many questions that i enjoy reading all your post. @ronbee @

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marke92 | @marke92 | Oct 8, 2016
In reply to @colleenyoung "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..." + (show)
@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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@balubeje This maybe jusy me. Do you ever feel like the lrads from the pacemaker pull on yout heart muscle while in certain resting positions. If i lay on my left side. Sometimes ill dozr off. Upon waking my shoulder is up by my chin. I noticed post op it took a few days of healing before i was flexible and painless in this position. As i got more use to laying on my side. I noticed it seem to hurt my heart and even felt as if it was holding it back a little. I dont think itd at all a problem. Like you i curious what othets feel. I also willing to share.

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marke92 | @marke92 | Oct 8, 2016
In reply to @colleenyoung "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..." + (show)
@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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Yes i do @colleenyoung. During the data link on check ups. As the test is done It hurts and feels like a heart attack.i thought they were shocking me. Id anybody elsr out there sensitive to the leads during the circle over the pacemaker test. I kinda hope some of you do. That it is normal. Because im worried the left side was so damaged. Id why it hurts me.
Plrasr reply.

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marke92 | @marke92 | Oct 8, 2016
In reply to @colleenyoung "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..." + (show)
@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

Jump to this post

With added speed up during excercise. Do you find yourself breathing harder or deeper. You may not get enough oxygen sometimes when you think your breathing was fine. Im just a patien so nothing scientific. Best wishes.

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marke92 | @marke92 | Oct 8, 2016
In reply to @colleenyoung "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..." + (show)
@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

Jump to this post

Colleen for the most part. I feel like my pacemaker is set perfect. Life is Great. It is a forein object so feeling it move. Or shut a door on the car and it just nicks your pacemaker. Ok a couple times it got eacked pretty good. Its scary and it hurts. Another feeling ive noticed. At timrs its cold, real cold to touch. Believe me. You feel that cold inside at timrs. I know so of these are little things. They might help some one out there. There little things maybe just what i need to hear. Plus hopefully this will get people going and putting their thought down.

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