1. < Heart Rhythm Conditions

Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

aprilarlady | @aprilarlady | Aug 19, 2016
In reply to @colleenyoung "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..." + (show)
@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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Thank you I will try that! 

REPLY
Gabriela Mora | @gabrielamorabarthel | Oct 3, 2016

Hi All,
Today a new member joined Connect's Spanish group wishing to connect with someone who also has an implanted defibrillator. Is there anyone in this group who may be able to talk with Conrado en Español about their experience with a defibrillator or pacemaker? Please click this link.

Desfibrilador Marcapasos implantable http://mayocl.in/2dnTxgF

Gracias,
Gabby

REPLY
marke92 | @marke92 | Oct 5, 2016
In reply to @colleenyoung "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..." + (show)
@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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I also would like to hear what other people have to say about internal feelings. How they feel with having a pacemaker. How if at all the meds effect them. Whats normal or expected and whats not.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 5, 2016
In reply to @colleenyoung "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..." + (show)
@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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Great question, Marke92. Do you have "internal feelings" with your pacemaker? How does it make you feel?

REPLY
marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

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At first i was prescibed way too much blood pressure medicine. I got dizzy ever time i stood up. I also still check my pulse. This after a year and a half. Im sill not use to this big bump in my chest.

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

Trying to tag @balubeje so thats all this reply is for.

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

Ok i got this now.

REPLY
marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

Do any of you feel like your heart flutters at times? I do.

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marke92 | @marke92 | Oct 6, 2016
In reply to @bibi12 "I'm a new pacemaker recipient. I'm so new to heart disease and pacemaker surgery a support..." + (show)
@bibi12

I'm a new pacemaker recipient. I'm so new to heart disease and pacemaker surgery a support group would be wonderful

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I also excercise and light lifting. I was told to keep my pule around 120. Thought my treadmill wont puck up my pulse. So i was informed i hit 160 regularly. @billmichalski. I also have the 3 lead with difi. I worry abkut a false shock. Even though last visit the pulse limit was raised to 160 in the pacemaker.

REPLY
jimana | @jimana | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

I feel an occasional flutter which I assume is a PVC or a PAC, but there don't seem to be nearly as many as before the pacer was implanted. BTW, I saw my cardiologist yesterday for the first time since the pacemaker was installed in April. His recommendation was that we not change anything and said he would like to see me in one year - I guess he must be happy, and if he's happy, I'm happy. He did say, however, that even though I have not had any A-fib post-pacemaker, I definitely will have at some time. I hope to prove him wrong.

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