1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 20, 2018
In reply to @vsinn2000 "Getting the treatment area healed is proving a challenge. Even trying to keep it "air dried"..." + (show)
@vsinn2000

Getting the treatment area healed is proving a challenge. Even trying to keep it "air dried" only works until you need the restroom. That's a whole other tightrope to walk there. Keeping absolutely sanitary to avoid infection can be challenging. Chemo induced peripheral neuropathy is a huge problem. The pain is excruciating. My last scans identified 4 more questionable areas. So, do I go with hyperbaric to try and get some healing done before I end up septic accidentally, or take the chance it will set something in motion in the new areas? I think this may be a no win situation.

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@vsinn2000 Vicky,

You are asking good questions. Keep at it! There are some Members here who will keep responding with thoughts to help you. By the way, have you tried any of the meds to help with the neuropathy?

Teresa

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 20, 2018
In reply to @grandmar "Hi All! It's 3am and I've been up for 2 hours. Pain invades my ability to..." + (show)
@grandmar

Hi All!
It's 3am and I've been up for 2 hours.
Pain invades my ability to sleep (and my hubby's).
I take the pain meds and it takes the edge off, but it does not take the pain away.
I sometimes get a nap in during the day but not all days.
I am exhausted and I have brain fuzz.
My poor hubby is exhausted, too.
He hears each and every noise I make when I move or get up to use the bathroom.
I feel terrible! He is so afraid I will fall, again, and hurt myself.
He rarely leaves me alone in the house, even though I have one of those 'I've fallen and can't get up' buttons.
I haven't driven myself in forever.
He feels I don't pay attention and that I don't lift my feet when I walk.
Frankly, all these precautions are probably a good idea.
It's not that I don't pay attention, it is just that it is hard for me to focus with pain meds and no sleep.
Tomorrow is the big day, I get my results from the mylogram CT I took last week.
I sure hope it helps to solve the puzzle.
If not, I think it will be time to discuss the possibility of a pain pump.
Something HAS to help.
I don't know how much longer I can deal with this acute pain and lack of sleep.
Soon they will be calling me the Zombie Grandma! LOL
Thanks for letting me vent.
I hope I made sense!

Here's to a pain free day for us all!!!!

Ronnie (GRANDMAr)

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@grandmar

Looking forward to hearing back from you later today after your appointment! I hope you get some encouraging news.

Teresa

REPLY
Mamacita, Alumna Mentor | @mamacita | Aug 20, 2018
In reply to @grandmar "Hi All! It's 3am and I've been up for 2 hours. Pain invades my ability to..." + (show)
@grandmar

Hi All!
It's 3am and I've been up for 2 hours.
Pain invades my ability to sleep (and my hubby's).
I take the pain meds and it takes the edge off, but it does not take the pain away.
I sometimes get a nap in during the day but not all days.
I am exhausted and I have brain fuzz.
My poor hubby is exhausted, too.
He hears each and every noise I make when I move or get up to use the bathroom.
I feel terrible! He is so afraid I will fall, again, and hurt myself.
He rarely leaves me alone in the house, even though I have one of those 'I've fallen and can't get up' buttons.
I haven't driven myself in forever.
He feels I don't pay attention and that I don't lift my feet when I walk.
Frankly, all these precautions are probably a good idea.
It's not that I don't pay attention, it is just that it is hard for me to focus with pain meds and no sleep.
Tomorrow is the big day, I get my results from the mylogram CT I took last week.
I sure hope it helps to solve the puzzle.
If not, I think it will be time to discuss the possibility of a pain pump.
Something HAS to help.
I don't know how much longer I can deal with this acute pain and lack of sleep.
Soon they will be calling me the Zombie Grandma! LOL
Thanks for letting me vent.
I hope I made sense!

Here's to a pain free day for us all!!!!

Ronnie (GRANDMAr)

Jump to this post

Oh, dear@grandmar, I will be sending warmest thoughts, prayers, and hugs your way today. I certainly hope that you will be on the path to a better quality of life very, very soon. I am a fairly new volunteer mentor here for Mayo Clinic Connect. Several group discussions are called "home" by me. Last week was one of the worst for my Fibromyalgia. I can definitely relate to your statement about the meds just barely touching your pain. You are not by yourself in this battle. We stand with you. Please let us know how you are doing. We would very much like to keep in touch. Virtual hugs to you!

REPLY
grandmaR | @grandmar | Aug 20, 2018

@mamacita
Thank you for the very kind words.
I will certainly keep you informed on what is happening with me.

I am so sorry you are having such a difficult time from the Fibro.
I have it too.
Although I am not 100% symptomatic, I experience very little pain from it.
With all the pain I DO have, how do I know?
The other pain I am currently experiencing feels very different than the one I have with the Fibro.
I still do have all the tender points and so long as no one tries to get in to deep, I leave it alone and it leaves me alone.
See, I get massages so they need to be very careful.
I don't get deep tissue massage in order to keep inflammation away.

How did I manage to almost negate the Fibro?
1. I took amitriptalyn (sp.?) at a VERY low dose (10mg....I 5ft. 6.5 inches and have weighed up to 210 lbs. while on the meds).
It helped to get me into a deep restorative sleep.
2. I went for therapeutic massage every other week. (expensive, but very worth it).
3. I went to a chiropractor every other week. (on the off week from my massage).Luckily it was covered by my insurance.
4. I went for aquatic physical therapy. The soaking in the warm water alone felt great!
5. I started to lose weight. I went on Weight Watchers.
6. I started to walk (as a form of exercise). I started off VERY slowly because of the pain. My hubby would literally have to drag me around at the beginning. After a while, I was able to walk all I wanted without a 'push'.
7. I started to go into the workout room where I lived. I did the tread mill and weights.

All this took several months, but it did work!

I pray you feel better today and each day!
Ronnie (GRANDMAr)

REPLY
5 replies
grandmaR | @grandmar | Aug 20, 2018
In reply to @grandmar "Hi All! It's 3am and I've been up for 2 hours. Pain invades my ability to..." + (show)
@grandmar

Hi All!
It's 3am and I've been up for 2 hours.
Pain invades my ability to sleep (and my hubby's).
I take the pain meds and it takes the edge off, but it does not take the pain away.
I sometimes get a nap in during the day but not all days.
I am exhausted and I have brain fuzz.
My poor hubby is exhausted, too.
He hears each and every noise I make when I move or get up to use the bathroom.
I feel terrible! He is so afraid I will fall, again, and hurt myself.
He rarely leaves me alone in the house, even though I have one of those 'I've fallen and can't get up' buttons.
I haven't driven myself in forever.
He feels I don't pay attention and that I don't lift my feet when I walk.
Frankly, all these precautions are probably a good idea.
It's not that I don't pay attention, it is just that it is hard for me to focus with pain meds and no sleep.
Tomorrow is the big day, I get my results from the mylogram CT I took last week.
I sure hope it helps to solve the puzzle.
If not, I think it will be time to discuss the possibility of a pain pump.
Something HAS to help.
I don't know how much longer I can deal with this acute pain and lack of sleep.
Soon they will be calling me the Zombie Grandma! LOL
Thanks for letting me vent.
I hope I made sense!

Here's to a pain free day for us all!!!!

Ronnie (GRANDMAr)

Jump to this post

@hopeful33250
Thank you Teresa!
My appointment is actually tomorrow.
Any info will be welcome info.

The hospital actually called me this afternoon to see how I am doing after the mylogram CT.
I told the nurse (and I checked to make sure it was a nurse), how awful I feel.
I told her how painful the procedure was and that it was the worse pain I ever experienced.
She asked if I did what I was told to do regarding laying flat in bed for 2 hours.
I told her I did it before leaving the hospital and that I've basically been sitting in my chair since.
She told me she never heard anyone complain of pain (other than the injection site and injection itself.....whimps lol).
She couldn't understand.
I told her the doc told me that the chemicals used in the mdylogram could have inflamed already acutely flamed nerve endings.
She hadn't heard of that, either. But if the doc said so, it must be!

Thanks for her call but worthless!!!

Here's to a pain free day for us all!
Ronnie (GRANDMAr)

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 20, 2018
In reply to @grandmar "Hi All! It's 3am and I've been up for 2 hours. Pain invades my ability to..." + (show)
@grandmar

Hi All!
It's 3am and I've been up for 2 hours.
Pain invades my ability to sleep (and my hubby's).
I take the pain meds and it takes the edge off, but it does not take the pain away.
I sometimes get a nap in during the day but not all days.
I am exhausted and I have brain fuzz.
My poor hubby is exhausted, too.
He hears each and every noise I make when I move or get up to use the bathroom.
I feel terrible! He is so afraid I will fall, again, and hurt myself.
He rarely leaves me alone in the house, even though I have one of those 'I've fallen and can't get up' buttons.
I haven't driven myself in forever.
He feels I don't pay attention and that I don't lift my feet when I walk.
Frankly, all these precautions are probably a good idea.
It's not that I don't pay attention, it is just that it is hard for me to focus with pain meds and no sleep.
Tomorrow is the big day, I get my results from the mylogram CT I took last week.
I sure hope it helps to solve the puzzle.
If not, I think it will be time to discuss the possibility of a pain pump.
Something HAS to help.
I don't know how much longer I can deal with this acute pain and lack of sleep.
Soon they will be calling me the Zombie Grandma! LOL
Thanks for letting me vent.
I hope I made sense!

Here's to a pain free day for us all!!!!

Ronnie (GRANDMAr)

Jump to this post

@grandmar Hi Ronnie,

I suppose the call was worthless to you, but I hope that she learned something about how everyone deals differently with tests depending on their root problem. I hope she will remember the lessons that you taught her when she makes her next follow up phone call!

Teresa

REPLY
GailBL, Alumni Mentor | @gailb | Aug 20, 2018

@grandmar

I'm so sorry to read that your pain is still acute. Having been there off and on for 12 years, with the final acute attack resulting in a wheelchair and laminectomy 2 months later. Pain medications didn't really work for me either. Acute pain is caused by spinal cord impingement I think, so you can't medicate that away. I can relate to what you're going through. I hope your test reveals the problem and that you find relief and comfort from a resolution of your pain. I will be waiting to read about your results. You remain positive even in pain which is amazing.

Gail
Volunteer Mentor

REPLY
4 replies
lioness | @lioness | Aug 20, 2018
In reply to @grandmar "Hi All! It's 3am and I've been up for 2 hours. Pain invades my ability to..." + (show)
@grandmar

Hi All!
It's 3am and I've been up for 2 hours.
Pain invades my ability to sleep (and my hubby's).
I take the pain meds and it takes the edge off, but it does not take the pain away.
I sometimes get a nap in during the day but not all days.
I am exhausted and I have brain fuzz.
My poor hubby is exhausted, too.
He hears each and every noise I make when I move or get up to use the bathroom.
I feel terrible! He is so afraid I will fall, again, and hurt myself.
He rarely leaves me alone in the house, even though I have one of those 'I've fallen and can't get up' buttons.
I haven't driven myself in forever.
He feels I don't pay attention and that I don't lift my feet when I walk.
Frankly, all these precautions are probably a good idea.
It's not that I don't pay attention, it is just that it is hard for me to focus with pain meds and no sleep.
Tomorrow is the big day, I get my results from the mylogram CT I took last week.
I sure hope it helps to solve the puzzle.
If not, I think it will be time to discuss the possibility of a pain pump.
Something HAS to help.
I don't know how much longer I can deal with this acute pain and lack of sleep.
Soon they will be calling me the Zombie Grandma! LOL
Thanks for letting me vent.
I hope I made sense!

Here's to a pain free day for us all!!!!

Ronnie (GRANDMAr)

Jump to this post

@im so sorry your in so much lain I ditto last night Finally took a Advil P.M slept till 9:30 but feel horrible Did you ever think of Shingles with that electric shock ? Shingles can live inside the body and not all come out but very painful just askking Hope your results will show a treatment you can get Blessings Linda

REPLY
lioness | @lioness | Aug 20, 2018
In reply to @wsh66 "Lyrica has almost eliminated my pain from Neuropathy which I have as a result of a..." + (show)
@wsh66

Lyrica has almost eliminated my pain from Neuropathy which I have as a result of a lot of chemo. It's been a great gift for me. Amitriptyline deals with the residual pain in my toes. Love and Blessings.

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@wsh66 so glad you found relief Im going to Dr tomorrow and will talk to her about this combo see if its right for me glad for you

REPLY
lioness | @lioness | Aug 20, 2018
In reply to @gailb "@grandmar Ronnie, I am again amazed by your positive feelings in spite of your extreme pain...." + (show)
@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

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@oregongirl I ran out of Hemp oil Used it as a massage and it did help have to get it again Unless you take more then the Dr perscribes you wont become addictived My back fracture in 05 I was on Tramadol 50 mg 6 a day then Dr started weaning me of at a certain point 1at a
time till now Im down to one ,he told me you wont get addicted to narcs if you take them as I perscribe them I never did become addicted praying for good results for you I go tomorrow pray for same thing.@texasfreedom

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