Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

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Smoke that dope girl, when you can get it. Remember for the Doctors protection of their license, they have to try all the dumb shit before they break out the good drugs. Opioids will help but eventually they will let you down. Love and Blessings.

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@vsinn2000

Hello Kelsey. I'm not sure about hyperbaric chamber oxygen therapy and what it can do to either kill cancer cells or cause it to spread. I'd love to hear what others have to offer for opinions. The thought of getting relief from after effects of radiation and chemo is tempting to make me agree bur afraid to make cancer spread. Please chime in.
Thanks!

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Hmm. "hyperbaric chamber oxygen therapy", Hmmm. Never heard of it. Who provides it andis it generally accepted? Love and Blessings.

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@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

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It is important for the Doctors protection that they try everything else before they reach for the narcotics. We need them, we need to do the dance they are forced to call. Love and Blessings.

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@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

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You never want them to give you enough narcotics to actually end your pain. Aim for a pain level of 2 to 3. This is the best way to avoid addiction. When you have enough drugs in your system to extinct your pain and have some left over, your brain says, "party time" and starts pumping out the endorphins. I went from 252 mgs. a day to 46 mgs. a day over night. My entire withdrawal was 2 hours of restless leg one night. Love and Blessings

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Hi All!
It's 3am and I've been up for 2 hours.
Pain invades my ability to sleep (and my hubby's).
I take the pain meds and it takes the edge off, but it does not take the pain away.
I sometimes get a nap in during the day but not all days.
I am exhausted and I have brain fuzz.
My poor hubby is exhausted, too.
He hears each and every noise I make when I move or get up to use the bathroom.
I feel terrible! He is so afraid I will fall, again, and hurt myself.
He rarely leaves me alone in the house, even though I have one of those 'I've fallen and can't get up' buttons.
I haven't driven myself in forever.
He feels I don't pay attention and that I don't lift my feet when I walk.
Frankly, all these precautions are probably a good idea.
It's not that I don't pay attention, it is just that it is hard for me to focus with pain meds and no sleep.
Tomorrow is the big day, I get my results from the mylogram CT I took last week.
I sure hope it helps to solve the puzzle.
If not, I think it will be time to discuss the possibility of a pain pump.
Something HAS to help.
I don't know how much longer I can deal with this acute pain and lack of sleep.
Soon they will be calling me the Zombie Grandma! LOL
Thanks for letting me vent.
I hope I made sense!

Here's to a pain free day for us all!!!!

Ronnie (GRANDMAr)

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@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

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@lioness
Good luck to us both!
Did some research, yesterday, about the pain pump.
I have concerns about becoming addicted to the meds.
You get a more potent drug than you get orally directly into the spinal canal.
As far as becoming addicted, one of the sites I was on said you WOULDN'T (or that you would).
My hubby keeps telling me to take the pain meds and not wait until the pain is so bad.
I take all sorts of meds for all sorts of issues, but I am terrified of becoming addicted to the pain meds.
I never had to take them very much before (maybe 1 or 2 a month, if that much).
I feel I have an addictive personality.
Up until now, my drug of choice has been food.
I had weight loss surgery to help (but it is only a tool).
My dad had an addiction to sleeping pills, which I believe impacted his dementia.
I'll let you know if I go for it and if I find out anything new.

Here's to a pain free day for us all!
Ronnie (GRANDMAr)

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@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

Jump to this post

I understand not wanting to get addicted to a drug. I live alone and I only discuss my on going pain with God and my dog.
I have found things that do help. I walk, even when it's hot. Keeping busy will help. I have no idea about anatriptaline. I take one in the morning and one at bedtime. My pain is excelleratef by my RA flares. I was once addicted to Morphine. It was horrible. Given to me by a Dr who knew very little about RA. The road is difficult. I see nothing wrong with taking a drug to relieve pain as long as you are attempting to find alternatives
I used by Hemp lotion on my neck and I felt less pain.

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@lioness

@gailb When I see my rheumatologist this week Im going to elaborate on the constant pain Im n,maybe I need new meds ,the ones Im on aren't working as well I stopped Lyrica as it wasn't helping all that much but like wsh said combining it with amitriptyline maybe it will .Im more of a loner I like being by myself but Im not antisocial . The pain in my hands are getting worse.

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Hang in there lioness
Lee

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@vsinn2000

Hello Kelsey. I'm not sure about hyperbaric chamber oxygen therapy and what it can do to either kill cancer cells or cause it to spread. I'd love to hear what others have to offer for opinions. The thought of getting relief from after effects of radiation and chemo is tempting to make me agree bur afraid to make cancer spread. Please chime in.
Thanks!

Jump to this post

@wsh66
Here is some information on the “hyperbaric Chamber”. You can find most Chambers at your nearest Wound Treatment Centers. https://www.mayoclinic.org/tests-procedures/hyperbaric-oxygen-therapy/about/pac-20394380
From my experience with my patients 90% of them have been treated in the Chamber. I work with 3 of our local Wound Clinics and it is a relatively routine practice.

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@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

Jump to this post

@wsh66
Based on my experience with gene testing it has proven very effective in welling our physicians prescribed and dose patients.
The purpose of PGx testing is to determine the risk of side effects and/or likelihood of effectiveness of a given medication. Physicians are often asked about side effects of prescribed drugs and factors that may alter the effectiveness of a drug, and can only guess until they actually know your genetic make up.

Here is a link for alittle more information. http://mayoresearch.mayo.edu/center-for-individualized-medicine/drug-gene-testing.asp

You indicated you had the testing completed. The results are supposed to be given to the doctor and the patient. Have you tried contacting your doctor that ordered the testing?
Dawn

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