I have PD (Parkinson Disease)

Posted by Chris J @chrisj2491, Feb 13, 2015

I would like to introduce myself. My name is Chris and I just joined the group.
I have PD (Parkinson Disease) which of course is a neurological disorder.
If there's one thing I've learned. ....it's that everyone is "different." It's always good to listen and learn about others' experiences.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

@ggopher

I never heard of internal tremors or anxiety until now but they sure sound like me.
I've had some email problems and lost some email. I think JJ sent some other AO resources - whomever did please send them again. I'll think on the PTSD thing. I hate to add to an already over-stressed line of guys much worse off than I am.

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Got it. Thanks.<br><br>Steve

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@colleenyoung

Welcome @trouble43443. I'm glad you got logged on!
I've moved your message to this discussion where others are talking about PD. I also want to invite @burgle to join you here.

I completely agree with you Trouble. It's amazing to connect with others and "compare notes". Good for you for getting your own support group started. With your help I think we can get a virtual one started here too. 🙂

When were you diagnosed with Parkinson's? What kind of stuff are you hearing about protein?

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Thanks for the info about senemet and protein. My husband has been on both for several years but will talk to his new local doc about this. Also the fact of taking it with a sugary drink was interesting. Two things to do reserch on. Thanks again for sharing.

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@colleenyoung

Welcome @trouble43443. I'm glad you got logged on!
I've moved your message to this discussion where others are talking about PD. I also want to invite @burgle to join you here.

I completely agree with you Trouble. It's amazing to connect with others and "compare notes". Good for you for getting your own support group started. With your help I think we can get a virtual one started here too. 🙂

When were you diagnosed with Parkinson's? What kind of stuff are you hearing about protein?

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Not sure what I posted last. Guidance from new doctor is 20-30 minute standoff between protein and Sinimet if taken with caffeinated soft drink. Diet soda is OK and carbonation helps with constipation.<br>Worth asking about<br><br>Steve

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@colleenyoung

Welcome @trouble43443. I'm glad you got logged on!
I've moved your message to this discussion where others are talking about PD. I also want to invite @burgle to join you here.

I completely agree with you Trouble. It's amazing to connect with others and "compare notes". Good for you for getting your own support group started. With your help I think we can get a virtual one started here too. 🙂

When were you diagnosed with Parkinson's? What kind of stuff are you hearing about protein?

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@ggopher Yes, carbonated beverages or orange juice help the Sinemet go to work quicker.

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@colleenyoung

Welcome @trouble43443. I'm glad you got logged on!
I've moved your message to this discussion where others are talking about PD. I also want to invite @burgle to join you here.

I completely agree with you Trouble. It's amazing to connect with others and "compare notes". Good for you for getting your own support group started. With your help I think we can get a virtual one started here too. 🙂

When were you diagnosed with Parkinson's? What kind of stuff are you hearing about protein?

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I left off a few details. Take the Sinemet with 4 oz of caffeinated soda before mealtime then he added a 4th dose with water at bedtime so I'd quit kicking so much in my sleep. Not sure it is helping. I use the 12 oz bottles of soda, one a day.<br><br>Steve

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I have corticobasal syndrome similar to Parkinson's how old are you i m 76

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Thanks for your posting about corticobasal syndrome @tonyc55. You mention that it is similar to Parkinson's. If you would like to share more about this, please let us know how this disorder was diagnosed and if the typical Parkinson's meds are helpful to you. Is physical therapy and exercise a part of your health care routine? Thanks again for sharing about this.

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@aperob

Thanks for the uplift, I needed it. I just feel I am to young for this to happen to me. I'm 58! But yes I have thought of Michael J Fox and now to hear you are taking a cruise! I guess I need to be a fighter and not let it kick my hinney. But I won't lie I do go down a rabbit hole a bit now and then. May I ask how old you were when diagnosed? And thanks again, this is just what I needed to hear.

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Hello @aperob, I noticed that it has been awhile since we have heard from you. How are you doing? Feel free to update us on how you are adjusting to your diagnosis and if you have found a support group.

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I have M.S. and I am glad that there is a site where I can talk and share my problems as well as my success.! "We can definitely be Health Warriors!"

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I would give anything to talk with someone who has the same diagnosis as my husband . He was diagnosed at Mayo Clinic on Jan of 2015 with Cerebellum Brain Atrophy and given 3 to 4 years to live. He is now walking with a cane but will need a walker soon. Does anyone have such a diagnosis?

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