1. < Parkinson's Disease

I have PD (Parkinson Disease)

Posted by Chris J @chrisj2491, Feb 13, 2015

I would like to introduce myself. My name is Chris and I just joined the group.
I have PD (Parkinson Disease) which of course is a neurological disorder.
If there's one thing I've learned. ....it's that everyone is "different." It's always good to listen and learn about others' experiences.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

johnjames | @johnjames | Oct 24, 2016
In reply to @denie57 "Hello! My first time on the site. I was recently diagnosed with Parkinson's disease. I am..." + (show)
@denie57

<p>Hello! My first time on the site. I was recently diagnosed with Parkinson's disease. I am 58 years old! Raised 4 children as a single parent and was looking forward to my golden years (travel, hobbies, networking, social etc,) Devastating blow that makes me hopeful that something good will come from this and then in the same hour feeling hopeless and vulnerable. Trying to figure this whole thing out.</p>

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Yes the shower does help- but because I have serve Scoliosis of the lower spine ( from jumping out of Helicopters while in the Army for many years- when I retired just a few years ago- my spine bend almost over night- thank God my wife is a nurse and new what it was, it bend 24% to the left and the lower dic' were gone or so deteriorated that I could barley walk. They tried all kinds of the things- shots, pain doctors -tried many things that did not work.. The pain never stops and stays about a 7-8 most of the time- I still go to spooners therapy to learn to work out and box the best I can and stay in some kind of shape. In recon we would jump out from 10-12 feet above the ground with a 60-80 lbs pack on, and when you hit the ground you would stick one leg in a rice pattie- Well enough of war stories, the body is worn out and you do the best you can Thanks for the tip- I will try that more often- have a good day and I hope a little fun along the way, HOOAH JJAMES

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 24, 2016
In reply to @denie57 "Hello! My first time on the site. I was recently diagnosed with Parkinson's disease. I am..." + (show)
@denie57

<p>Hello! My first time on the site. I was recently diagnosed with Parkinson's disease. I am 58 years old! Raised 4 children as a single parent and was looking forward to my golden years (travel, hobbies, networking, social etc,) Devastating blow that makes me hopeful that something good will come from this and then in the same hour feeling hopeless and vulnerable. Trying to figure this whole thing out.</p>

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@johnjames You show incredible bravery as you did during the war and now in your own personal pain. God bless!

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 24, 2016
In reply to @colleenyoung "Hi @denie57, How has your week been? In the 2 messages you've posted so far, I..." + (show)
@colleenyoung

Hi @denie57,
How has your week been?
In the 2 messages you've posted so far, I was immediately struck by your ability to take the bull by the horns, so to speak. Pick yourself up and put things into action to care for yourself. This despite dealing with lack of diagnosis, ongoing physical and mental symptoms, including depression.

Have you had any luck finding fitness classes and an in-person support group for people with early PD?

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Hi @denie57. Its been awhile since we have heard from you. How are you doing? Any changes in how you are feeling and adjusting to the PD? I suppose you are back to work, now. We would love to have an update from you. I hope that all is going well.

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johnjames | @johnjames | Oct 26, 2016
In reply to @colleenyoung "Hi @denie57, How has your week been? In the 2 messages you've posted so far, I..." + (show)
@colleenyoung

Hi @denie57,
How has your week been?
In the 2 messages you've posted so far, I was immediately struck by your ability to take the bull by the horns, so to speak. Pick yourself up and put things into action to care for yourself. This despite dealing with lack of diagnosis, ongoing physical and mental symptoms, including depression.

Have you had any luck finding fitness classes and an in-person support group for people with early PD?

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Colleen thank you for your encouragement to stay with it- Allot pf folks have been pushing me to go to a live group with people, I just cant right now- to much in my mind that still is locked down- but your group seems to be something I look forward to too. God Bless you. JJames

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johnjames | @johnjames | Oct 26, 2016
In reply to @colleenyoung "Welcome @trouble43443. I'm glad you got logged on! I've moved your message to this discussion where..." + (show)
@colleenyoung

Welcome @trouble43443. I'm glad you got logged on!
I've moved your message to this discussion where others are talking about PD. I also want to invite @burgle to join you here.

I completely agree with you Trouble. It's amazing to connect with others and "compare notes". Good for you for getting your own support group started. With your help I think we can get a virtual one started here too. 🙂

When were you diagnosed with Parkinson's? What kind of stuff are you hearing about protein?

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THere is a site that is written just for that purpose- Protein's and a full list of food for Parkinson's folks that will help- it's on the cover of daily living with parkinson's.

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johnjames | @johnjames | Oct 26, 2016
In reply to @colleenyoung "Welcome to Connect @ggopher. We've got a small group here forming about PD. I'm glad you..." + (show)
@colleenyoung

Welcome to Connect @ggopher. We've got a small group here forming about PD. I'm glad you could join us and specifically for your offering useful information for @trouble43443 about taking Sinemet.

Gopher, when were you diagnosed with PD? I like how @denie57 and @trouble43443 have shared the activities (cats, computers and walking when possible) that they do to stay fit and sharp. What are your favorite activities?

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Does anyone with Parkinson's have vision problems"? Mine has been going down hill ever since I was diagnosed/ JJames

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 26, 2016
In reply to @colleenyoung "Welcome to Connect @ggopher. We've got a small group here forming about PD. I'm glad you..." + (show)
@colleenyoung

Welcome to Connect @ggopher. We've got a small group here forming about PD. I'm glad you could join us and specifically for your offering useful information for @trouble43443 about taking Sinemet.

Gopher, when were you diagnosed with PD? I like how @denie57 and @trouble43443 have shared the activities (cats, computers and walking when possible) that they do to stay fit and sharp. What are your favorite activities?

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@johnjames While you don't mention specifically the type of vision problem you are having I can offer a few thoughts. Often PD can cause a problem with vision, sometimes double vision can result. I have known people through a PD support group who have prisms put in their eye glasses to help correct this problem. There are ophthalmologists who specialize in vision problems with people who have neurological diagnoses, you might consider seeing one of them. I hope this helps.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 26, 2016
In reply to @colleenyoung "Hi @denie57, How has your week been? In the 2 messages you've posted so far, I..." + (show)
@colleenyoung

Hi @denie57,
How has your week been?
In the 2 messages you've posted so far, I was immediately struck by your ability to take the bull by the horns, so to speak. Pick yourself up and put things into action to care for yourself. This despite dealing with lack of diagnosis, ongoing physical and mental symptoms, including depression.

Have you had any luck finding fitness classes and an in-person support group for people with early PD?

Jump to this post

@johnjames It is important to live within your comfort zone. When you feel ready to move on to a "live group" that will be good as well. I have learned a lot from meeting people who have PD through support groups. I've found myself inspired by the strength that I see in their attitude, so when you feel ready, I encourage you to give it a try. As always, best wishes and thanks for sharing your experiences!

REPLY
johnjames | @johnjames | Oct 26, 2016
In reply to @colleenyoung "Hi @denie57, How has your week been? In the 2 messages you've posted so far, I..." + (show)
@colleenyoung

Hi @denie57,
How has your week been?
In the 2 messages you've posted so far, I was immediately struck by your ability to take the bull by the horns, so to speak. Pick yourself up and put things into action to care for yourself. This despite dealing with lack of diagnosis, ongoing physical and mental symptoms, including depression.

Have you had any luck finding fitness classes and an in-person support group for people with early PD?

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Thanks- I'm still thinking about- but I do like this way- in many ways for Coleen for making so personal-but not in ones face.

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 26, 2016
In reply to @colleenyoung "Hi @denie57, How has your week been? In the 2 messages you've posted so far, I..." + (show)
@colleenyoung

Hi @denie57,
How has your week been?
In the 2 messages you've posted so far, I was immediately struck by your ability to take the bull by the horns, so to speak. Pick yourself up and put things into action to care for yourself. This despite dealing with lack of diagnosis, ongoing physical and mental symptoms, including depression.

Have you had any luck finding fitness classes and an in-person support group for people with early PD?

Jump to this post

@johnjames Keep yourself comfortable, that is what is important now!

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