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Welcome to the Ehlers-Danlos Syndromes (EDS) blog for people with EDS and Hypermobility Spectrum Disorders (HSD). Find information relevant to you written by the EDS multidisciplinary team from gastroenterology, neurology, cardiology dermatology, integrative medicine, PT/OT, pelvic floor therapy, and other specialties. Follow the blog and stay up-to-date as our experts post stories, clinical trials, resources, and more.
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Previously, we gave an overview on POTS and the diagnosis of POTS. Now, we want to answer the question - How are POTS and orthostatic intolerance…
Pilates has become well known in the fitness industry over the last decade, but it was actually invented back in 1912 by Joseph Pilates. He…
Meditation as a Practice for Chronic Illness As our lives get busier and busier and our time gets shorter for moments of respite and calm,…
I often get asked “what is Integrative Medicine?” (https://www.mayoclinic.org/vid-20529261) The American Board of Integrative Medicine® (ABOIM) and the Consortium of Academic Health Centers for Integrative…
This post describes a review article (Mast cell disorders in Ehlers-Danlos syndrome) about the role of mast cells in Ehlers Danlos syndrome (EDS), which was…
As discussed previously (GI and EDS/HSD Part II ), bloating and distension occur for several reasons. No one treatment works in every patient. Fortunately, several…
A frequently asked question by patients with EDS/HSD is “who should I follow with for my annual visits?” Every patient should follow with a primary…
We have heard before from some of our expert therapists on the basics of PT and EDS/HSD (Physical Therapy and Ehlers-Danlos Syndrome). In this post…
What is normal? Before discussing what is abnormal, it is always good to understand what is normal. Everybody makes gas in the intestinal tract. In…
Bloating and Distension Many patients with EDS report symptoms of being gassy, bloated or distended (these terms are all defined in the section below). These…
We are well underway with our primary research targets for this year. We will share the progress on those projects here in the near future.…
Nutrition can impact symptoms of Ehlers-Danlos Syndrome (EDS) such as chronic fatigue and is important for normal activities of daily living. When patients have been…
Many patients with hypermobility spectrum disorder (HSD) and hypermobile EDS (hEDS) either have symptoms of or have been diagnosed with “POTS” or “dysautonomia”. It is…
Patients with EDS/HSD shoulder a burdensome workload living with a misunderstood condition. Typically, workloads include managing treatment plans, frequent appointments, maintaining a healthy lifestyle, and…
Exercise is an important component of health and wellness in many chronic conditions, and especially for hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorders…
For many patients living with HSD/EDS, functional disorders of the gastrointestinal tract can be very hard to manage. Here we would like to provide some…
We are seeing a high percentage of patients with EDS and Hypermobility Spectrum Disorder who also have Fibromyalgia. We are studying the question of why?…
There are many modalities patients can choose from for treatment of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD). Overarching all of them, is…
Among many special considerations for patients with EDS undergoing medical treatments, there are especially unique aspects to skin surgery or other procedures. If you have…
“Pelvic health” refers to the health of the body parts that are “below the belt” in both women and men. This includes the bladder…
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