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Welcome to the Ehlers-Danlos Syndromes (EDS) blog for people with EDS and Hypermobility Spectrum Disorders (HSD). Find information relevant to you written by the EDS multidisciplinary team from gastroenterology, neurology, cardiology dermatology, integrative medicine, PT/OT, pelvic floor therapy, and other specialties. Follow the blog and stay up-to-date as our experts post stories, clinical trials, resources, and more.
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It has been a while since we shared news from our research arm of The EDS Clinic, but we have been actively researching. Since our…
What is pharmacogenomic testing and who is it for? Debbie, a preschool teacher, seemed nervous. It was her first-time meeting with me, a clinical pharmacist…
Many patients (in some studies over 70%) with EDS develop chronic daily headache (CDH) or headaches more than 15 days per month. Many also reach…
In the spirit of guiding your well-being journey with hEDS/HSD, I thought I would share a form of exercise that is for everyone, that can…
Medical Marijuana has gained a lot of attention recently, and for good reason. There is evidence that it might help treat various conditions, not only…
“Why do I need to see a speech pathologist? There is nothing wrong with my speech.” This question and statement combination start many of my…
Women with EDS/HSD should consult with a Pelvic Physical Therapist early in their pregnancy to establish care and for evaluation of pelvic girdle joint and…
Previously, we gave an overview on POTS and the diagnosis of POTS. Now, we want to answer the question - How are POTS and orthostatic intolerance…
Pilates has become well known in the fitness industry over the last decade, but it was actually invented back in 1912 by Joseph Pilates. He…
Meditation as a Practice for Chronic Illness As our lives get busier and busier and our time gets shorter for moments of respite and calm,…
I often get asked “what is Integrative Medicine?” (https://www.mayoclinic.org/vid-20529261) The American Board of Integrative Medicine® (ABOIM) and the Consortium of Academic Health Centers for Integrative…
This post describes a review article (Mast cell disorders in Ehlers-Danlos syndrome) about the role of mast cells in Ehlers Danlos syndrome (EDS), which was…
As discussed previously (GI and EDS/HSD Part II ), bloating and distension occur for several reasons. No one treatment works in every patient. Fortunately, several…
A frequently asked question by patients with EDS/HSD is “who should I follow with for my annual visits?” Every patient should follow with a primary…
We have heard before from some of our expert therapists on the basics of PT and EDS/HSD (Physical Therapy and Ehlers-Danlos Syndrome). In this post…
What is normal? Before discussing what is abnormal, it is always good to understand what is normal. Everybody makes gas in the intestinal tract. In…
Bloating and Distension Many patients with EDS report symptoms of being gassy, bloated or distended (these terms are all defined in the section below). These…
We are well underway with our primary research targets for this year. We will share the progress on those projects here in the near future.…
Nutrition can impact symptoms of Ehlers-Danlos Syndrome (EDS) such as chronic fatigue and is important for normal activities of daily living. When patients have been…
Many patients with hypermobility spectrum disorder (HSD) and hypermobile EDS (hEDS) either have symptoms of or have been diagnosed with “POTS” or “dysautonomia”. It is…
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