Connect
Welcome to the Ehlers-Danlos Syndromes (EDS) blog for people with EDS and Hypermobility Spectrum Disorders (HSD). Find information relevant to you written by the EDS multidisciplinary team from gastroenterology, neurology, cardiology dermatology, integrative medicine, PT/OT, pelvic floor therapy, and other specialties. Follow the blog and stay up-to-date as our experts post stories, clinical trials, resources, and more.
Public blog
Newsfeed
Documentaries are powerful tools for raising awareness and fostering empathy for chronic illnesses. In this blog post, we've put together a summary of 4…
Have you had problems with sleeping? If so, you are not alone. Sleep problems can occur among people with EDS and HSD. Data from our…
EDS and Skincare Taking care of your skin is important for everyone, but it becomes even more crucial for individuals with EDS and HSD.…
The background To be born different is special yet sometimes challenging. Getting a correct diagnosis and a clear road to recovery is the largest hurdle…
Summer is here! Water parks, beaches and pools have been drawing large crowds in recent weeks. Previously, we discussed exercises that are beneficial for people…
Many individuals with hypermobility are attracted to yoga for a very simple reason: they’re good at it! The inherent flexibility allows beautiful and bendy poses,…
As you may have seen from our recent post, May is EDS/HSD Awareness Month. It is a month set aside, for people around the world…
Despite the fact that Ehlers-Danlos Syndrome is a widespread condition, many people might…
Author: Brianna Sessions, EDS patient As a child and teenager, before my Ehlers Danlos Syndrome became apparent, I spent hours each week studying the martial…
Author: Mahima Master, MBBS How can eyes be affected by a connective tissue disorder? This question needs to be understood and properly evaluated. Collagen works…
Authors: Dacre Knight, MD, MS; DeLisa Fairweather, PhD; Katelyn Bruno, PhD In our last research update, we summarized our study on establishing our EDS…
Author: Casey Uritis, OTR/L What is Occupational Therapy? Through the use of activity modifications, exercise, education, and management tools, occupational therapists enable patients to achieve…
Author: Dacre Knight, MD, MS Over the past few weeks, there has been more attention to the rising number of patients (and some celebrities) diagnosed…
Oftentimes in the medical world, we get frustrated that a symptom or problem isn’t discovered or remedied quickly enough to maintain our quality of life.…
Author: Dr. Cynthia Neville, PT, DPT, WCS A few months ago, we discussed pregnancy and pelvic floor PT. Here, we will go in more detail…
We previously posted information on Nutrition and EDS – including supplements. Now, we move this topic further to answer a commonly asked question – “Is…
Some women with hypermobility disorders may notice worsening joint laxity leading up to their menstrual cycle. Evidence has shown that hormonal fluctuations associated with the menstrual…
A diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) or Hypermobility Spectrum Disorder (HSD) typically comes with the advice to exercise regularly. But patients with these conditions…
We have recently posted information on headaches from our neurological headache expert, Dr. Todd Rozen. Headaches are a significant and common contribution to the pain suffered…
We previously shared the case of a patient, Debbie, who had hEDS and medication intolerance, leading to a pharmacogenomics (PGx) consultation. In this post, we’ll…
Connect