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9,690 total results
Discussion
Undiagnosed rare problems.
Undiagnosed rare problems. ... hard to believe what I have is so rare
Support Group: Brain & Nervous System
Last active: Mar 20, 2021
Discussion
Rare Prostate Cancer
Rare Prostate Cancer ... dreaded news today that my husband has a rare ... which is supposedly what makes this so rare ... limited to no experience with this rare
Support Group: Prostate Cancer
Last active: Jan 11, 2023
Discussion
Rare Disease Day and Involvement
Rare Disease Day and Involvement ... speaks of today being International Rare ... know the exact definition of "rare
Support Group: Autoimmune Diseases
Last active: Sep 30, 2018
Discussion
Possible Rare Condition or Just Chronic Pain?
Possible Rare Condition or Just Chronic ... happens in other parts of my body rarely ... My arms and fingers rarely twitch, but ... I also rarely get twitches in my back ... A few months ago my jaw started rarely
Support Group: Chronic Pain
Last active: Nov 19, 2021
Newsfeed Post
POEMS: An expertise in the rare leads to a rare opportunity
POEMS: An expertise in the rare leads ... to a rare opportunity ... famous works of Robert Frost but a rare ... , when she wrote a paper about the rare ... “We are the land of the rare ─ a place
Mayo Clinic Hematology Staff | @mayoclinichematologystaff
Published: May 15, 2017
Newsfeed Post
Researching innovative solutions for rare heart defect
Researching innovative solutions for rare ... Hypoplastic left heart syndrome is a rare ... Because of its rare occurrence, Mayo
Tony Hart | @TonyHart87
Published: Feb 28, 2018
Newsfeed Post
Rare Disease Day February 28th, 2019
Rare Disease Day February 28th, 2019 ... week's post to the anniversary of Rare ... an effort to raise awareness about rare ... Rare diseases are individually rare ... In the United States, a “rare disease
Konstantinos N. Lazaridis, M.D. | @klazaridis
Published: Feb 25, 2019
Newsfeed Post
Surgeon’s Work on Rare Heart Defect
Surgeon’s Work on Rare Heart Defect ... regarding his work on Ebstein’s anomaly, a rare
Suzanne Ferguson | @suzannerferguson
Published: Jul 21, 2015
Newsfeed Post
Be aware of the rare cancer called sarcoma
Be aware of the rare cancer called sarcoma ... A sarcoma is a rare form of cancer that ... "These are rare cancers, and in adults ... Because this form of cancer is rare, ... dealing with something that is so rare
Jennifer O'Hara | @jenohara
Published: Jul 12, 2021
Comment
if anything very rare is going to happen it will happen to me! I am just...
if anything very rare is going to ... I am just mentioning a very rare rare
Support Group: Chronic Pain
Posted: Apr 13, 2020
Comment
@mkempson42 Marcy, if your doctor isn’t being of any help, I think it’s time to get...
You can contact the Genetic and Rare ... Or the National Organization for Rare ... lists of providers who specialize in rare
Support Group: Autoimmune Diseases
Posted: Apr 18 4:37pm
Comment
Welcome to Connect, @bruges. Uterine clear-cell carcinoma is very rare. @kate123 has also posted on Connect...
Uterine clear-cell carcinoma is very rare ... also posted on Connect about this rare ... ovarian clear-cell carcinoma here: - Rare ... /connect.mayoclinic.org/discussion/rare-cancer ... / - Endometrial Carcinoma: Rare, aggressive
Support Group: Gynecologic Cancers
Posted: Mar 20, 2021
Site Page
Tell Others you’re a Mayo Clinic Champion
find any posts because you have a rare ... For example, #Sarcoma is rare, but there ... to test for it, including the very rare
Site Page
Ebstein Anomaly Ebstein's anomaly is a rare ... of Fallot Tetralogy of Fallot is a rare ... the great arteries is a serious but rare ... Arteriosus Truncus arteriosus is a rare ... Atrioventricular canal defect is rare
Support Group
Caregivers: Dementia
Creutzfeldt-Jakob disease, Down syndrome and rare ... Creutzfeldt-Jakob disease, Down syndrome, rare
Public Support Group
326 discussions | 2326 followers
Last active: 1 day ago
Site Page
Social Media Tips
find any posts because you have a rare ... example, you could post: "#Sarcoma is rare
Blog
Transplant
Rare complications from surgery include ... Rare complications from surgery include ... Rare complications from surgery include ... Rare complications from surgery include ... In some rare cases, it can be used to
Public Blog
185 posts | 1056 followers
Last updated: May 1 1:38pm
Blog
Hematology
Dyspro News POEMS: An expertise in the rare ... leads to a rare opportunity Measles
Public Blog
74 posts | 1086 followers
Last updated: Feb 2 9:49am
Blog
HLHS
Hypoplastic left heart syndrome (HLHS) is a rare ... HLHS is a rare heart defect, affecting
Public Blog
231 posts | 121 followers
Last updated: Apr 24 12:48pm
Blog
Genetic Heart Rhythm Diseases
tragic endpoint, this is extremely rare ... include a wide variety of relatively rare ... It is possible, however, that in rare ... General Genetic and Rare Conditions ... The Genetic and Rare Diseases (GARD)
Public Blog
59 posts | 236 followers
Last updated: Sep 11, 2023
Blog
Congenital Heart Disease
expertise in treating people with rare
Public Blog
57 posts | 273 followers
Last updated: Jun 20, 2022
Site Page
Advice on Second Opinions
treat your condition, or you have a rare ... one-tenth of newly diagnosed patients rarely