Some of you are seasoned social network users. Others may only use one or two networks in a limited way. Read through some hints below for giving your Champions posts some added flavor.
Even though the “Share” option in the Champions Newsfeed pre-populates a message for your social media channels, you’re encouraged to make it your own. You have your own viewpoint based on your experience. You know your audience best. You know what they want to hear about. Highlight what’s important to you. Add a personal detail on what the content means to you.
There are social media communities for almost every disease or condition that are filled with people looking to connect. These are places to share your story, meet others like you, and spread news or resources about a disease or condition. The easiest way to find these communities is to search for your disease or condition within your social media platform.
Get involved in discussions related to your health condition by connecting with the individuals and using the popular hashtags when you talk about the disease or condition. Often, the more you get involved, the more you will get out of it, and the more people you will connect with.
Platforms such as Twitter, Facebook, Instagram, etc. have search features on their sites and apps. Search for your disease or condition, and it will bring you to different posts or tweets, people, accounts, pages, groups, and hashtags with discussions. Search different words related to your disease to find the best fit for you. For example, someone with breast cancer might search for “cancer,” “breast cancer,” “fighting breast cancer,” “surviving cancer,” and “surviving breast cancer.”
If you don’t find any posts because you have a rare disease or condition, or there just isn’t a community out there yet, try being a little less specific in your search. For example, instead of searching for “epithelioid sarcoma,” try “soft-tissue sarcoma” or just “sarcoma.” Or you can start the conversation yourself. Starting the conversation will help others find you. Tie your specific disease or condition into your posts or tweets, including the more generic term. For example, you could post: "#Sarcoma is rare, but there are ways to test for it. #EpithelioidSarcoma".