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92 total results
Comments (84)
Hello @coho222, I sorry to hear of your struggle with dystonia. This sounds uncomfortable and I'm...
sorry to hear of your struggle with dystonia ... your post that you, "have failed Botox ... assuming that you mean that you tried Botox ... , regarding how Mayo Clinic treats dystonia ... search=dystonia I would encourage
Hello Maxine and Walt Your story is very similar to ours ( my wife Kari) like...
journey Gary and (Kari with focal dystonia ... Kari was diagnosed in 2016 with Focal dystonia ... others about 15 pills daily Taking Botox ... I’ve had DBS are you still taking Botox
Support Group: Parkinson's Disease
Posted: Aug 7 4:28pm
I have dystonia in both hamstrings and it is very painful to sit or walk. Symptoms...
I have dystonia in both hamstrings and ... I have failed Botox 2 times. ... Anyone else have treatment resistant dystonia
I’ve been receiving Botox since 2001 with good results. Hah gone through a period of seven...
I’ve been receiving Botox since 2001 ... who made the diagnosis of cervical dystonia ... He started treatment with Botox.
Support Group: Headache & Migraine
Posted: Aug 19 12:12pm
I’ve getting Botox for 24 years now, and it literally has given me a normal life...
I’ve getting Botox for 24 years now, ... examination, he diagnosed me with cervical dystonia ... He started me on Botox, and I got my
Support Group: Headache & Migraine
Posted: Jun 26 12:55pm
My toes started curling about a year ago, my foot also was turning inward. My neurologist...
neurologist suggested that I start Botox ... When the dystonia in my foot started ... whole leg and hip I decided to try the Botox
Hi. Im in my mid 50s , I have had 3 TBİs , the first I...
I also have cervical dystonia. ... cared , tried to help me . ( I get Botox ... got a fill im Dr for injections ( Botox ... He didn’t spend time as it was a Botox ... If the cervical dystonia that came on
Support Group: Brain & Nervous System
Posted: Jul 5 12:52pm
I have head and neck issues. I feel for you. I have had chronic migraines since...
I also have cervical dystonia and the ... I need to get Botox every 3 months for ... I will say the Botox helps.
Support Group: Headache & Migraine
Posted: Jul 6 4:29pm
Had constant migraines for over 6 months before was diagnosed with cervical dystonia, and started treatment...
before was diagnosed with cervical dystonia ... , and started treatment with Botox. ... consisted of pain meds, Ubrelvy and now Botox
Support Group: Headache & Migraine
Posted: Aug 6 1:13pm
I have had knots in my shoulders, back and calves for over 20 years. I saw...
on me and diagnosed me with severe dystonia ... The neurologist Botox’s the muscles ... Ask the doctor about Botox.
Posted: Jun 19, 2024
PS I use Botox for dystonia in my neck and have used steroids for this in...
PS I use Botox for dystonia in my neck ... be careful about the dosage of the Botox
Support Group: Spine Health
Posted: Jan 23, 2024
Welcome, @simonetta. I'm glad to hear that you are finding some relief with the medical Botox...
finding some relief with the medical Botox ... further information about cervical dystonia ... you may wish to explore: - Cervical dystonia ... with others talking about cervical dystonia ... discussions: - Anyone else have cervical dystonia
Support Group: Spine Health
Posted: Jan 18, 2024
@Colleenyoung, @jcd, and all...Yes, my 54-year-old son has a pain pump delivering Dilaudid from the puck-sized...
the drug of choice for his pain from dystonia ... The normal pain from the Dystonia causes ... Botox injections by a doctor who really
Support Group: Chronic Pain
Posted: Dec 1, 2022
For those of you who have been admitted to Mayo from other states, like CA for...
orofacial dsykinesia / oromandibular dystonia ... But all 6 meds and 4 botox have failed
Discussion: Movement disorder
Support Group: Brain & Nervous System
Posted: Feb 25, 2022
Thank you for posting the nih website. The information was helpful. I have PD and "something...
different diagnostic names: abdominal dystonia ... Two weeks ago he injected Botox into ... If Botox doesn't help I assume I
Support Group: Spine Health
Posted: Jun 24, 2020