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Comments (749)
@like2dance2, I'm sorry you have not yet heard back from Mayo Clinic. You may wish to...
https://connect.mayoclinic.org/comment/1163095/
with other members diagnosed with AL Amyloidosis ... discussions:
- Diagnosed with MGUS/Amyloidosis ... What is the current protocol for al Amyloidosis ... what-is-the-current-protocol-for-al-amyloidosis ... search=Amyloidosis&index=discussions
@naiviv, in this discussion about cardiac amyloidosis you can connect with @danab and @jeannepasquinucci. Here's another...
https://connect.mayoclinic.org/comment/875646/
, in this discussion about cardiac amyloidosis ... helpful posts by @jhoffmanj
- Cardiac Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis ... - Successful treatment of cardiac amyloidosis ... newsfeed-post/successful-treatment-of-cardiac-amyloidosis-depends-on-early-diagnosis
@divyanshi, macular amyloidosis sounds like it is quite rare. If you'd like, there are a few...
https://connect.mayoclinic.org/comment/244392/
@divyanshi, macular amyloidosis sounds ... other discussions on Connect regarding amyloidosis ... members have discussed other types of amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis ... diagnosis is multiple myeloma and amyloidosis
@shirleygirl One of the things you need to be aware of is pulmonary amyloidosis. Look at...
https://connect.mayoclinic.org/comment/143714/
you need to be aware of is pulmonary amyloidosis ... about amyloidosis. ... there about nodules and pulmonary amyloidosis ... , which is the primary witness for amyloidosis ... at https://bit.Ly/1w7j4j8 Look at Amyloidosis
My plasma cells from my bone marrow biopsy are 15% so the doc thinks I now...
https://connect.mayoclinic.org/comment/1151172/
No test results yet for AL amyloidosis ... He said kappa amyloidosis is rare, but ... it just less common than lambda amyloidosis
@irene5, @boomerexpert Subtle neuropsychiatric and neurocognitive changes in hereditary gelsolin amyloidosis (AGel) amyloidosis is a great...
https://connect.mayoclinic.org/comment/65359/
neurocognitive changes in hereditary gelsolin amyloidosis ... (AGel) amyloidosis is a great read ... Oral Health for Hereditary Gelsolin Amyloidosis
@cemeterygal01, as you gather information on your particular combination of both amyloidosis and multiple myeloma, you...
https://connect.mayoclinic.org/comment/853948/
your particular combination of both amyloidosis ... older discussions:
- Treatment for amyloidosis ... connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa ... /
- Current diagnosis is Amyloidosis
Welcome to Connect, @tollie It sure helps to feel that you’re not alone when you have...
https://connect.mayoclinic.org/comment/885970/
number of members in our forum with Al-Amyloidosis ... links to informational articles on Amyloidosis ... can meet other members who have Al-Amyloidosis ... You can find more by typing in Al-Amyloidosis ... /
~
Diagnosed with AL Amyloidosis
Hi Jim, I'm not sure why no one has responded to your discussion about cardiac amyloidosis....
https://connect.mayoclinic.org/comment/173897/
responded to your discussion about cardiac amyloidosis ... for others reading this:
* Cardiac Amyloidosis ... /multimedia/what-is-cardiac-amyloidosis-video ... /vid-20112205
* Cardiac Amyloidosis ... * Video Q&A about Amyloidosis
@oldkarl and other members with Amyloidosis, hATTR, and polyneuropathy. I thought you might be interested in...
https://connect.mayoclinic.org/comment/644797/
@oldkarl and other members with Amyloidosis ... Hereditary ATTR (hATTR) amyloidosis ... In hATTR amyloidosis, the TTR gene change ... As a hereditary disease, hATTR amyloidosis ... If one parent has hATTR amyloidosis,
@gala75, @oldkarl, @cgarcia56 and others. I thought you might find the following upcoming webinar interesting and...
https://connect.mayoclinic.org/comment/1152023/
Hereditary ATTR (hATTR) amyloidosis ... In hATTR amyloidosis, the TTR gene change ... As a hereditary disease, hATTR amyloidosis ... If one parent has hATTR amyloidosis, ... mean that they will develop hATTR amyloidosis
Hi Becky, Here's a good discussion to connect with others talking about amyloidosis - Diagnosed with...
https://connect.mayoclinic.org/comment/738582/
connect with others talking about amyloidosis ... - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Hello @boo55 -- I believe @oldkarl and @doodersnana have discussed amyloidosis and may be able to...
https://connect.mayoclinic.org/comment/268588/
oldkarl and @doodersnana have discussed amyloidosis ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... /
Amyloidosis Foundation
-- http:// ... amyloidosis.org/facts/al/
Diagnosis
Clifford, you may be interested in this related discussion as you research more about amyloidosis: -...
https://connect.mayoclinic.org/comment/846424/
discussion as you research more about amyloidosis ... :
- Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Hi @jewel8888 You can connect with other members who have amyloidosis in these discussions on Connect....
https://connect.mayoclinic.org/comment/59720/
connect with other members who have amyloidosis ... - Current diagnosis is Amyloidosis ... mayocl.in/2bAqF5j
- Diagnosed with AL Amyloidosis ... webinar with Mayo Clinic experts "Amyloidosis
@oldkarl All bronchiectasis cases are chronic and incurable. But I have trouble understanding how bronchiectasis and...
https://connect.mayoclinic.org/comment/212555/
understanding how bronchiectasis and amyloidosis ... But I know I don't have amyloidosis ... Besides, Gelsolin amyloidosis is mostly
@brad830, sorry to hear of your most recent diagnosis. If you are comfortable sharing, has it...
https://connect.mayoclinic.org/comment/994501/
been shared with you which type of amyloidosis ... quite a few discussions dedicated to amyloidosis ... /connect.mayoclinic.org/discussion/amylodosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis-maybe
in reply to @asergio714 Hi there, I just pulled this off of the internet for you.Amyloidosis...
https://connect.mayoclinic.org/comment/989520/
pulled this off of the internet for you.Amyloidosis ... oneAMYLOIDOSISvoice
Amyloidosis is ... AA amyloidosis may be preventable if ... There's no cure for amyloidosis, ... Amyloidosis: Causes, Types, Symptoms
Being a WM patient and knowing other WM and Amyloidosis patients, I concur with Colleen that...
https://connect.mayoclinic.org/comment/687248/
WM patient and knowing other WM and Amyloidosis ... specialist who specializes in both WM and Amyloidosis ... Clinic, specializes in both WM and Amyloidosis
Hi @newtosohcm, here is a link to amyloidosis - https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178. If you have a chance to...
https://connect.mayoclinic.org/comment/945923/
Hi @newtosohcm, here is a link to amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... through that, you may learn that "amyloidosis ... system and digestive tract."
Amyloidosis ... comfortable sharing, were you diagnosed with amyloidosis
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