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364 total results

Comments (338)

I have a lot of the same disorders as you. I have simalar type of seizures...

https://connect.mayoclinic.org/comment/867345/

I eat foods I’m allergic to due to MCAS

Discussion: Am i Having Seizures?

Support Group: Epilepsy & Seizures

Posted: May 26, 2023

I have this and so does my adult son. For my case and his, our diet...

https://connect.mayoclinic.org/comment/780407/

sites around the entire world for MCAS ... hope you check out the web sites for MCAS

Discussion: MTHFR mutation and supplements to take

Support Group: Mental Health

Posted: Dec 3, 2022

You're right that there are no posts here naming specific Mayo experts treating MCAS. That's because...

https://connect.mayoclinic.org/comment/851274/

naming specific Mayo experts treating MCAS

Discussion: Mast Cell Activation Syndrome: What treatments help you?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Good question, @lidiana. I'm tagging fellow members who have experience with diagnostic testing for Mast Cell...

https://connect.mayoclinic.org/comment/773394/

for Mast Cell Activation Syndrome (MCAS

Discussion: What testing should I look forward to be properly tested for MCAS

Support Group: Autoimmune Diseases

Posted: Nov 15, 2022

I have it also and it required taking Singular and Pepcid AC every morning to stop...

https://connect.mayoclinic.org/comment/886492/

MCAS

Discussion: Phlegm in my throat and post nasal drip after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 28, 2023

Thank you so much for your post! I am covid 3x & got a patch of...

https://connect.mayoclinic.org/comment/898625/

As I study MCAS and the trigger has

Discussion: Post covid itch and hives

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 19, 2023

Have some of your issues and MCAS . Keto was recommended but didn’t help much ....

https://connect.mayoclinic.org/comment/794318/

Have some of your issues and MCAS .

Discussion: Anyone with Chronic Pain, Fibromyalgia or Hypothyroidism tried Keto?

Support Group: Chronic Pain

Posted: Jan 9, 2023

Thank you for your good advice on case management. I'm curious, what if anything was the...

https://connect.mayoclinic.org/comment/1225291/

Do you also have MCAS?

Discussion: Dercum’s Disease: Looking to connect with others

Support Group: Chronic Pain

Posted: Jan 30 9:13am

Hi - I have looked into the MCAS & Histamine Intolerance before and potentially will be...

https://connect.mayoclinic.org/comment/737101/

Hi - I have looked into the MCAS &amp

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 13, 2022

I just want to share some of my experience. The vaccines certainly made things worse for...

https://connect.mayoclinic.org/comment/896602/

I also now have MCAS autoimmune disease ... infection and now, I am in constant MCAS ... I think the covid shots made my MCAS ... All I know for sure is that my MCAS

Discussion: Carpal tunnel like symptoms post COVID

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 16, 2023

Yes, I definitely fit the systemic mastocytosis symptoms, and it’s been brought up before, but just...

https://connect.mayoclinic.org/comment/1197621/

as Mast Cell Activation Syndrome (MCAS ... can make a case of using this for MCAS ... I was diagnosed with MCAS long before

Discussion: Are the symptoms in my head? Polycythemia Vera + Mastocytosis (age-23)

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

The fact that you took Benadryl and could breathe means that and H1 antihistamine makes your...

https://connect.mayoclinic.org/comment/134365/

And that is one of the criteria for MCAS—if