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Comments (2,439)

I see you said she most likely has myeloma, why that? I was diagnosed with smoldering...

https://connect.mayoclinic.org/comment/728958/

Also sjogrens, lip biopsy it's my ... Because sjogrens can rupture the organs

Discussion: Seeking Help for Unknown Medical Issue

Support Group: Autoimmune Diseases

Posted: Jul 20, 2022

Hello after an illness (upper respiratory) I developed an autoimmune disease for which I am seronegative....

https://connect.mayoclinic.org/comment/727801/

I went to Mayo and was dx with sjogrens

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Jul 17, 2022

Hi Robert, I have Sjogren’s. I have lots of neuropathy (tingling, numbness, strange feelings) in my...

https://connect.mayoclinic.org/comment/727043/

Hi Robert, I have Sjogren’s. ... www.smartpatients.com/conversations There are many Sjogren ... ’s patients and a Dr who has Sjogren

Discussion: Tongue issues with Sjogren's or neuropathy?

Support Group: Autoimmune Diseases

Posted: Jul 15, 2022

I am so sorry. Yes the pain everywhere from the dryness is incredible. I am not...

https://connect.mayoclinic.org/comment/725717/

but now with this scleroderma and sjogrens

Discussion: Dry mouth and bitter taste

Support Group: Ear, Nose & Throat (ENT)

Posted: Jul 11, 2022

GM, I am seronegative for Sjogrens disease. Because of this fact, local specialists said nothing physically...

https://connect.mayoclinic.org/comment/724485/

GM, I am seronegative for Sjogrens disease ... So diagnosed with Sjogrens, sjogrens ... fibro), small fiber neuropathy, and sjogrens ... to say, maybe consider a visit to a Sjogrens

Discussion: Undiagnosed - sjrogrens, lupus?

Support Group: Autoimmune Diseases

Posted: Jul 7, 2022

I was diagnosed with fibro in 1984. Then looked for a Neuro to tell me that...

https://connect.mayoclinic.org/comment/721971/

I have sjogrens, had a lip biopsy.

Discussion: Seeking Help for Unknown Medical Issue

Support Group: Autoimmune Diseases

Posted: Jun 29, 2022

I also have Sjögren's and I use the zylimelts. They help overnight. My mouth is very...

https://connect.mayoclinic.org/comment/721364/

I also have Sjögren's and I use

Discussion: Dry mouth remedies

Support Group: Autoimmune Diseases

Posted: Jun 27, 2022

I’m using Restasis twice a day for Sjogrens and at night I apply a warm moist...

https://connect.mayoclinic.org/comment/718713/

I’m using Restasis twice a day for Sjogrens

Discussion: Does anyone think restasis (eye drops) is helpful?

Support Group: Eye Conditions

Posted: Jun 18, 2022

I am 76 and I have Sjogrens scherderma and Raynauds. I believe i understand how you...

https://connect.mayoclinic.org/comment/710387/

I am 76 and I have Sjogrens scherderma ... I am struggling with sjogrens especially

Discussion: MCTD, Fibromyalgia, Reynauds

Support Group: Autoimmune Diseases

Posted: May 22, 2022

sorry you are suffering with this mysterious malady. Possibly Sjogrens which when researched will show many...

https://connect.mayoclinic.org/comment/700373/

Possibly Sjogrens which when researched ... Doctors often consider Sjogrens Disease

Discussion: Undiagnosed: Allergy symptoms without being allergic. Ideas?

Support Group: Autoimmune Diseases

Posted: Apr 19, 2022

my ana titer 1:1280 from recent tia, sinus infection, with no clarification on whether systemic sclerosis/polymyositis...

https://connect.mayoclinic.org/comment/692442/

i’ve had sjogrens since 40s and managed ... is more than i’ve managed with sjogrens

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Mar 24, 2022

Have you ruled out Sjogrens? I had a neuro presentation first and docs found it difficult...

https://connect.mayoclinic.org/comment/688894/

Have you ruled out Sjogrens?

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Mar 12, 2022

You will find tons of resources here: many of us have had a time getting diagnosed....

https://connect.mayoclinic.org/comment/686618/

/www.smartpatients.com/communities/sjogrens-syndrome ... site was created by a doctor with Sjogren

Discussion: RM states I don't have Sjogren's

Support Group: Autoimmune Diseases

Posted: Mar 5, 2022

It's a long story. In short: in the last 7 years I had Cauda Equina Syndrome...

https://connect.mayoclinic.org/comment/682016/

Process for the Sjogrens diagnosis is ... gastroparesis (apparently some people with Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 18, 2022

Ask your dr to prescribe Evoxac for your dry mouth. It really helps. I also have...

https://connect.mayoclinic.org/comment/681451/

I also have Sjogrens.

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 16, 2022

Sjogrens has done a number on my teeth, it has taken almost all of them. You...

https://connect.mayoclinic.org/comment/680801/

Sjogrens has done a number on my teeth ... You have no control over sjogrens.

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 14, 2022

Thank you for your reply, I hope you get your diagnosis soon. Well, apparently for Sjogren's...

https://connect.mayoclinic.org/comment/680184/

Well, apparently for Sjogren's there

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 12, 2022

I also have multiple autoimmune diseases (lupus/lupus nephritis, Hashimotos thyroiditis, Sjogren's syndrome) and post Covid (nov...

https://connect.mayoclinic.org/comment/680114/

nephritis, Hashimotos thyroiditis, Sjogren

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Feb 12, 2022

My SFN/POTS/dysautonomia is from Sjogrens....this is new for me (the red face pretty much daily). I...

https://connect.mayoclinic.org/comment/679576/

My SFN/POTS/dysautonomia is from Sjogrens

Discussion: Peripheral Neuropathy vs. Erythromelalgia

Support Group: Autoimmune Diseases

Posted: Feb 10, 2022

I also have both , PN and Erythromelagia . It’s a constant daily struggle for sure....

https://connect.mayoclinic.org/comment/679502/

My diagnosis is Sjogrens ( includes

Discussion: Peripheral Neuropathy vs. Erythromelalgia

Support Group: Autoimmune Diseases

Posted: Feb 10, 2022