Peripheral Neuropathy vs. Erythromelalgia

Posted by jlander @jlander, Mar 20 2:29pm

I am new to the Connect site so will have lots of questions but will pace myself! I have been reading about PN and EM. I don't understand the difference between them. When I asked the Neurologist who diagnosed me with EM, he said with EM your feet are red all the time. Can anyone else provide me with more differences please? Thank you!

@jlander, From what I've read Erythromelalgia is considered to be a form of peripheral neuropathy. Both can have similar pain and burning symptoms.

"Erythromelalgia is often considered a form of peripheral neuropathy because it affects the peripheral nervous system, which connects the brain and spinal cord to muscles and to cells that detect sensations such as touch, smell, and pain." – Erythromelalgia: https://medlineplus.gov/genetics/condition/erythromelalgia/

More resources on Erythromelalgia:
National Organization for Rare Disorders (NORD) – Erythromelalgia: https://rarediseases.org/rare-diseases/erythromelalgia/
The Erythromelalgia Association – FAQs: https://erythromelalgia.org/resources/faqs/

You may also be interested in these discussions to read what other members have shared:
– Erythromelalgia: https://connect.mayoclinic.org/discussion/erythromelalgia/
– Burning Feet syndrome https://connect.mayoclinic.org/discussion/burning-feet-syndrome/

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Thank you John. You are so helpful to everyone. I've read a lot and have compiled a file of all kinds of notes on EM but like others, I find it very confusing.
I am not diabetic, nor do I drink alcohol or eat spicy foods. I've read it can be hereditary, but don't know if that is my case. My father always complained of his feet but never described his symptoms as being like Erythromelalgia, they never looked red. He did have gout from time to time. I, too, am trying to get an appointment confirmed at Mayo as I really need help in understanding my situation and how best to handle it. I've talked to doctors in my area but they have little to no knowledge, and several said I am the only one they have come into contact that has EM which makes me feel very isolated.

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I’d like more information too. I have both also. Very frustrating. The change in weather is really difficult to cope with,

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@jlander

Thank you John. You are so helpful to everyone. I've read a lot and have compiled a file of all kinds of notes on EM but like others, I find it very confusing.
I am not diabetic, nor do I drink alcohol or eat spicy foods. I've read it can be hereditary, but don't know if that is my case. My father always complained of his feet but never described his symptoms as being like Erythromelalgia, they never looked red. He did have gout from time to time. I, too, am trying to get an appointment confirmed at Mayo as I really need help in understanding my situation and how best to handle it. I've talked to doctors in my area but they have little to no knowledge, and several said I am the only one they have come into contact that has EM which makes me feel very isolated.

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Where do you live,John? I am in a suburb of Baltimore MD called Towson. Have you consulted a rheumatologist or a neurologist?

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@drolker

Where do you live,John? I am in a suburb of Baltimore MD called Towson. Have you consulted a rheumatologist or a neurologist?

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@drolker, I live in Southern Minnesota near Rochester. My small fiber PN was diagnosed by a Mayo neurologist and my polymyalgia rheumatica was diagnosed by a Mayo rheumatologist.

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I read in one of the threads that Gabapentin can affect your vision. Can someone tell me about this side affect?

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@drolker

I read in one of the threads that Gabapentin can affect your vision. Can someone tell me about this side affect?

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@drolker here's some information on gabapentin side effects that mentions vision problems.

"Gabapentin may cause vision changes, clumsiness, unsteadiness, dizziness, drowsiness, sleepiness, or trouble with thinking. Make sure you know how you react to this medicine before you drive, use machines, or do anything else that could be dangerous if you are not alert, well-coordinated, or able to think or see well. Feb 1, 2021" – Gabapentin (Oral Route) Precautions – Mayo Clinic: https://www.mayoclinic.org/drugs-supplements/gabapentin-oral-route/precautions/drg-20064011#:~:text=Gabapentin%20may%20cause%20vision%20changes,to%20think%20or%20see%20well.

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