Share this:
jjgallegos

Undiagnosed - sjrogrens, lupus?

Posted by @jjgallegos in Autoimmune Diseases, Jun 28, 2012

HELLO,
I AM A 57 YEAR OLD FEMALE THAT HAS DRY EYES, BODY ACHES, DEPRESSION, INSOMNIA, FATIQUE, SHORTNESS OF BREATH, DRY MOUTH.I HAVE BEEN TO THE DOCTOR AND HAD NUMEROUS TESTS RUN, BUT MY DOCTOR CAN NEVER FIND ANYTHING WRONG. I KNOW SOMETHING IS WRONG BUT I DONT KNOW WHAT TO DO.
CAN ANYONE HELP ME?
JJ GALLEGOS

Tags: womens health, Skin Conditions, sleep problems

tedib

Posted by @tedib, Jun 28, 2012

Hi JJ, I'm also a 57 yr old female with all the same symptoms you write about. I recently visited a rheumatologist and was diagnosed with fibromyalgia. I have had these symptoms for many years and seen many doctors including other rheumies. While everyone I saw said my illness was autoimmune in nature (I also have some form of urticaria), not one would put a name to my group of ailments. My bloodwork always comes back pretty normal but with hypothryroidism and low vitamin D levels. Even though it is a relief to finally have a name for it, it's not much easier to deal with it. I'm already doing and taking everything I can for fibro. Try to see a specialist, either a rheumy or neurologist that specializes in fibromyalgia. It's a very complex condition. Best, Tedib

kalflen likes this
jjgallegos

Posted by @jjgallegos, Jun 28, 2012

TEDIB, THANK YOU FOR THAT REPLY. I DONT HAVE ANY INSURANCE AT PRESENT, BUT AS SOON AS I GET SOME, I WILL SEE A SPECIALIST. JJ

callers

Posted by @callers, Oct 11, 2012

Are you feeling any better now? My friend has Sjogrens and Fibromyalgia. Her symptoms are very similar to yours. Praying for you.

pskiles

Posted by @pskiles, Jun 28, 2012

did they do any tests for Rheumatoid Arthritis?

bettyann

Posted by @bettyann, Jun 30, 2012

Hi JJ,
Please know I say this most respectfully... but all of the symptoms you have are not unusual...they are very common to even the 'healthiest' of people now and then.
For one thing, even though there is a tendency to not take it seriously ... not drinking enough water (other liquids DO NOT count) can cause nearly ALL the symptoms you have mentioned. I know that for a fact when it comes to many body aches and pains.
Dry eyes and mouth are a sign you are not drinking enough water.
In Colorado MANY people suffer from dry eye because of the arid climate. The fires are helping! So, get some GOOD eyedrops -- Refresh, Systane, etc, and use them at LEAST 4 to 6 times a day. The cheap eyedrops are not that beneficial.
Being 'sure' something is wrong with you in spite of what the dr says is also something many MANY people go through. You feel scared and uncertain... and much of this is very mental, psychological and is coming from or causing your depression.
I just wish I could sit and talk with you, but you a cup of coffee, and give you some undivided attention!
I am not saying to NOT go to the dr again...do what YOU need to do... just leave open the possibility that the MIND can do ANYTHING, include create and heal disease of any kind. Google St John's Wort and 5-HTP...for depression and see what you think. I take St John's wort, and to me, it really helps. Try to avoid chemicals for depression...if you possibly can.
Best wish to you JJ!!

lovinJesus likes this
powerofpositive

Posted by @powerofpositive, Jul 10, 2012

Dry eyes, dry mouth, insomnia think Sjogrens/autoimmune issues. Many of the symproms overlap. Sjogrens is most known for dry eyes/mouth and painful joints, sleep issues, foggy brain. See a Rhumatologist.

Kathi Snyder and Anonymous like this
lovinjesus

Posted by @lovinjesus, Jul 12, 2012

JJ, I can't give medical advise for sure but I can give personal experiences. Depression caused me to have all those symptoms. Especially the insomnia and body aches. People don't realize that depression upsets the whole body; throws everything out of whack (so to speak) I pray you are feeling better. Please stay on here and let us know how you are doing. Lots of smiles to ya, Gerri

piglit

Posted by @piglit, Jul 13, 2012

Hi JJ a series of blood tests may assist maybe a good idea to ask your dr. I had a series done on me and it showed high chlostersol which I know have under control Good luck with everything hope you feel brighter soon. Piglit

anon51434298

Posted by @anon51434298, Jul 15, 2012

Hi JJ. I too for many years kept saying something was wrong. It wasn't until 2007, when the doctors did an ANA panel ( blood test) where they found I had sjogrens. Sjogrens is an autoimmune disorder. I have to live with dry eyes, mouth, dry skin, and a cough. I am in pain everyday, some days more than others. This disease effects every part of your body, starting from head to toe. This symptom does not show up right away until it progresses. This disease is mild for some and severe for others. I have only experienced twice where my body locked and I had no power to walk or roll out of bed. In other words I froze. I do experience depression, but on the days I feel better I feel I can continue with normal activities.

I don't have any recommendations to share but I am trying to keep a log of the things that increase my symptoms. Be persistent and don't give up. Take care.

Anonymous likes this
dijederverizonnet

Posted by @dijederverizonnet, Oct 10, 2012

Do you take magnesium ? It does help to have energy may help leave some of the pain. Plus you will that you make sleep better at night. It a nature vitamin that get from food, but your could be lacking in it. I have thyroid problem and peas only taking 250 I.U. a day . But for over year
I have been real tired and sluggish with no energy
and not sleeping well. So friend told me to increase my magnesium three times a day. I only do two right now but I see a different in my sleeping , muscle and breathing plus my body dose ache! Sometime are bodies are low on nature vitamins we normally get in our foods. Good luck hope you feel better.

p

mkat5955

Posted by @mkat5955, Mar 29, 2015

Have you seen a Rheumatologist?

conniesgore

Posted by @conniesgore, Apr 26, 2015

This sounds like sjorgens, sjorgens takes a special blood test. It will not show up in a regular blood work tests. I was diagnosed about 15 years ago. Sjorgens is in the lupus family. I am now 62 years old and in the past few years i have started having severe faigue, and in the past couple of years i am now having skin problems with it...break outs and itching and burning, i have an appt with my rh dr in a few weeks. You need to get an rh dr. There is also meds for the dry mouth and you need eye drops evey day for the eyes...my dr recommends restasis but my ins will not pay for it so i use eye drops called oasis which i get from the eye dr. The extreme dryness in the eyes can cause damage to your eyes.

Please login or become a member to post a comment.