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248 total results

Comments (230)

I’m between a rock and a hard place as far as being diagnosed with WM. The...

https://connect.mayoclinic.org/comment/750837/

place as far as being diagnosed with WM ... I assume in your dad’s case of WM, it ... All indications are that my WM is progressing

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

Well I gave up on taking high doses of Curcumin and now am betting that lowering...

https://connect.mayoclinic.org/comment/1360386/

I may even be in WM range. ... 'll probably being treated for WM

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 30 10:48pm

I've been on oral chemo for a couple of years. Currently taking 2 capsules in morning...

https://connect.mayoclinic.org/comment/746430/

with thousands of folks affected by WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Hi @colleenyoung Closing the loop... The "final" result appears to be that I am a member...

https://connect.mayoclinic.org/comment/1059086/

a member of all three clubs – CLL, WM

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2024

Recently diagnosed with WM...78 years old & healthy my entire life..being treated with Brukinsa..wondering why I...

https://connect.mayoclinic.org/comment/1271952/

Recently diagnosed with WM...78 years

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Apr 1 3:53pm

Hi @robertk, A second opinion can be reassuring. If you’d like to request an appointment at...

https://connect.mayoclinic.org/comment/870906/

you have any specific mutations for WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

Hi @laurinea, I understand what you are going through. My neuropathy started 18 months ago and...

https://connect.mayoclinic.org/comment/945494/

#39;t seen neuropathy this bad for WM

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2023

Hi Justin. Thank you so much! And thanks to the hematologist/oncologist for the information. This was...

https://connect.mayoclinic.org/comment/284538/

( MPN, ET, JAK2, WM, NHL).

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2020

Hi. I asked my hematologist/oncologist which stage I'm in for each cancer and the number of...

https://connect.mayoclinic.org/comment/284528/

at indicates there is staging for WM

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2019

Welcome, @djf31. It is all too common to dismiss symptoms as a sign of getting older...

https://connect.mayoclinic.org/comment/982760/

@squidlee and others who live with WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

Sorry for not seeing your message, but yes, WM was confirmed and testing indicated positive for...

https://connect.mayoclinic.org/comment/1240804/

not seeing your message, but yes, WM

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 19 1:08pm

Welcome to Connect, @careysuzi. It’s great to have you here in the Waldenström's Macroglobulinemia support group...

https://connect.mayoclinic.org/comment/989959/

you have minimal symptoms with your WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2024

Welcome to Connect, @adklg. I love your photo! You have a very positive inner radiance that...

https://connect.mayoclinic.org/comment/1246583/

also have colon cancer along with WM ... side effects from the Brukinsa for WM

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27 11:05am

I was diagnosed with WM July of this year. After treatments for kidney failure that included...

https://connect.mayoclinic.org/comment/664765/

I was diagnosed with WM July of this

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2021

Hi Mike, I can appreciate your thoughts on whether the vaccinations had anything to do with...

https://connect.mayoclinic.org/comment/923509/

the forum with members who also have WM ... champ9810 @ejrquast and more who have WM ... for you with your newer diagnosis of WM

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2023

Did u happen to see Wm. Cheshire in neurology? I've spoken to almost a dozen people...

https://connect.mayoclinic.org/comment/899029/

Did u happen to see Wm.

Discussion: Did PAXLOVID also relieve your arthritis and autoimmune symptoms?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 20, 2023

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

waldenstroms-and-amyloidosis/ @sstouten, how was WM

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

Hello. I know you started your first treat in 2022. I just wanted to see how...

https://connect.mayoclinic.org/comment/992210/

daughter is 43 and she was diagnosed with WM

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2024

Hi Mike. I went to MD Anderson and there I was diagnosed with WM. I received...

https://connect.mayoclinic.org/comment/912068/

Anderson and there I was diagnosed with WM

Discussion: Anyone Else with Waldenstrom's and COPD?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Hello @mike02041950 @barbdk @lesliemont. Because WM is a type of blood cancer where your bone marrow...

https://connect.mayoclinic.org/comment/922967/

Because WM is a type of blood cancer ... information from the Mayo website on WM

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023