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291 total results

Comments (270)

Hello everyone. I was diagnosed with WM in February of 2023 at the VA Medical Center...

https://connect.mayoclinic.org/comment/1074718/

I was diagnosed with WM in February ... the emphysema and did not treat the WM ... Does anyone else here have WM AND emphysema

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

Hi @artmulh, I look forward to learning more about you. Having attended two of the IWMF...

https://connect.mayoclinic.org/comment/1026606/

Waldenstrom's macroglobulinemia (WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

My knee has a dent in it if I kneel on it are my bones soft...

https://connect.mayoclinic.org/comment/840192/

kneel on it are my bones soft with WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

@carrnv42 Hi, I was diagnosed May'24 and I've been on Z ever since. I haven't noticed...

https://connect.mayoclinic.org/comment/1452465/

Learning about CLL/WM was like taking

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2025

@jseabass I’m starting Traditional Chinese Medicine (TCM) which includes acupuncture and herbal supplements. TCM unlike Western...

https://connect.mayoclinic.org/comment/1485838/

TCM unlike Western Medicine (WM) aims ... taking some TCM herbal supplements and WM ... It has fewer side effects than WM, which

Discussion: Anyone Successfully Treated For Treatment Resistant Depression?

Support Group: Depression & Anxiety

Posted: Jan 18 4:02pm

My daughter was first diagnosed with MGUS and now WM. Had several chemo treatments, which seems...

https://connect.mayoclinic.org/comment/899545/

first diagnosed with MGUS and now WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2023

Good morning everyone. I have been looking into turmeric recently and want to share a video...

https://connect.mayoclinic.org/comment/248815/

tab=wm#inbox/KtbxLwGzbrVXjMgwjkfMsbmcMJQxjxnmRL

Discussion: Recipes, Food Tips, Healthy Eating & More

Support Group: Just Want to Talk

Posted: Mar 1, 2019

I was diagnosed with WM early this past summer, after a bone marrow biopsy. My symptoms...

https://connect.mayoclinic.org/comment/1246490/

I was diagnosed with WM early this past ... them rough this and back to treating WM

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

I'm seeing my onc/hemo this week so will keep ya posted on if/when I undergo the...

https://connect.mayoclinic.org/comment/1495552/

feel good overall :) My diagnosis of WM

Discussion: Anyone had Plasmapheresis for Waldenstrom's macroglobulinemia?

Support Group: Blood Cancers & Disorders

Posted: Feb 1 9:41am

Hi joplin, I also had debilitating muscle spasms - especially at night which is caused by...

https://connect.mayoclinic.org/comment/1485701/

for a rare form of blood cancer "WM

Discussion: Does anyone with Myelofibrosis suffer musscle spasm?

Support Group: Blood Cancers & Disorders

Posted: Jan 18 1:29pm

Welcome @sagenest. It sounds like your diagnosis of Waldenstrom's is being managed by active surveillance or...

https://connect.mayoclinic.org/comment/963733/

can connect with others living with WM

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

My daughter has WM and is on 3 chemo drugs. It's been less then a year...

https://connect.mayoclinic.org/comment/863347/

My daughter has WM and is on 3 chemo

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2023

At this point seems to be NMZL; however when I asked about WM SMM the oncologist...

https://connect.mayoclinic.org/comment/752396/

be NMZL; however when I asked about WM

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2022

How were you diagnosed with MGUS without the BMB? I am new to this. I have...

https://connect.mayoclinic.org/comment/1333678/

order to diagnose as MGUS or SWM or WM

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2025

I experienced fatigue for about 2-3 days after my most recent infusion. I was fine after...

https://connect.mayoclinic.org/comment/1521006/

want to check-out the International WM

Discussion: How should we prepare for life after first Infusion treatment for WM?

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

I have just been diagnosed with WM and am on a watch and wait as well....

https://connect.mayoclinic.org/comment/812471/

I have just been diagnosed with WM and

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

I was diagnosed with WM in 2014. Since then, data shows that certain mutations, MYD88 and...

https://connect.mayoclinic.org/comment/662308/

I was diagnosed with WM in 2014.

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Suznsl. Thanks for the reply. Sorry you had to undergo plasmapheresis but I am glad you...

https://connect.mayoclinic.org/comment/1231939/

targeted therapies will keep your WM

Discussion: Anyone have zanubrutinib/Brukinsa denied?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2025

I was diagnosed with WM in 2015. As of yet, I am stable, no symptoms, no...

https://connect.mayoclinic.org/comment/70603/

I was diagnosed with WM in 2015.

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2017

Thanks Lori. Yes, I have received two shots and the booster a couple of years ago,...

https://connect.mayoclinic.org/comment/923249/

biopsy and determined that I have WM ... during that time turned my MGUS into WM

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023