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1,156 total results
Comments (1,069)
Four years for me. I take 5 mg twice a day. It definitely helps with my...
https://connect.mayoclinic.org/comment/1089754/
It definitely helps with my PV side
Hello, dear people....good to meet you.... I'm newly diagnosed PV...and just trying to navigate all this....
https://connect.mayoclinic.org/comment/858478/
I'm newly diagnosed PV...and just ... conditions" that would have kicked off PV ... I believe I am Primary PV. ... suggests that both conditions, Primary PV ... & erythrocytosis (secondary PV)
Yes, I have PV so I take a gentle iron pill (Solgar 25MG) once a week,...
https://connect.mayoclinic.org/comment/762046/
Yes, I have PV so I take a gentle iron
I had ocular migraines and painful clotting with my periods. Took a year to connect the...
https://connect.mayoclinic.org/comment/875802/
connect the two and get diagnosed with PV
I was also wondering if the vaccine may have attributed to my pv, but I’m not...
https://connect.mayoclinic.org/comment/775384/
vaccine may have attributed to my pv
Hi @chella65 I found a relevant discussion for you with other members who have PV and...
https://connect.mayoclinic.org/comment/881483/
for you with other members who have PV ... That can often be a side effect of PV
You need to demand an Erythropoietin test (EPO), if this protein is low you have PV,...
https://connect.mayoclinic.org/comment/783931/
), if this protein is low you have PV ... they haven't diagnosed you with PV ... Before they treat PV, hemotacrit needs ... I was diagnosed with PV, after finding
I’m going on two years since my PV diagnosis. Taking 500mg of hydroxyurea 4x weekly. Had...
https://connect.mayoclinic.org/comment/883390/
I’m going on two years since my PV diagnosis ... Is it the PV or the medication that
PV has some of the same clot risks as ET, but a more complicated array of...
https://connect.mayoclinic.org/comment/738362/
PV has some of the same clot risks as
Have not heard alot about Jakafi. I have had PV/JAK2 for 7 years, on Hydroxyurea for...
https://connect.mayoclinic.org/comment/1447775/
I have had PV/JAK2 for 7 years, on Hydroxyurea
RFA can "stiffen" the PV - which are all in the left atrium - and that...
https://connect.mayoclinic.org/comment/1170106/
RFA can "stiffen" the PV - which
I have Jak2 positive PV treated with hydrox since October 2023...I noticed my blood values were...
https://connect.mayoclinic.org/comment/1253508/
I have Jak2 positive PV treated with ... hematologist immediately said I have PV ... before they started treatment for PV ... hope it's enough to control the PV ... story hoping it helps others with PV
Merry Christmas! Happy Holidays! I found this forum and it has made a positive difference in...
https://connect.mayoclinic.org/comment/1467099/
difference in my life dealing with PV
Hello, I was diagnosed with PV 1/23 and this past month have been have burning sensations...
https://connect.mayoclinic.org/comment/1096086/
Hello, I was diagnosed with PV 1/23 ... and it appears to be a symptom of PV
I have PV and take either 1000 mg or 1500 mg depending on the day of...
https://connect.mayoclinic.org/comment/1022839/
I have PV and take either 1000 mg or ... than it does for those of us who have PV
@storm16 Good information. You would think with carnivore the iron would cause RBCs to increase a...
https://connect.mayoclinic.org/comment/1413727/
think big pharma cares much about PV ... are very few medicines available for PV
I have cll and pv. my bc has gone up to normal from anemia and my...
https://connect.mayoclinic.org/comment/737911/
I have cll and pv. my bc has gone up
My Dr is at Mayo too. I will check with him. If you don’t mind me...
https://connect.mayoclinic.org/comment/1320962/
you don’t mind me asking do you have PV
As a follow up to my question, I searched for diagnostic criteria for PV (since they...
https://connect.mayoclinic.org/comment/231777/
searched for diagnostic criteria for PV ... the major diagnostic criteria for PV ... was literally just diagnosed with PV ... This would explain the PV diagnosis, ... about if/ow a definitive diagnosis of PV
I will be tested for sleep apnea, it's on my list for sooner than later along...
https://connect.mayoclinic.org/comment/1041075/
probably still have thick blood with no PV ... I stopped once I was told no PV but
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