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548 total results
Comments (480)
@ggiinnaa Here is a link to search for NET specialists. I did a search for a...
https://connect.mayoclinic.org/comment/1596297/
ggiinnaa Here is a link to search for NET ... a search for a multi disciplinary NET ... https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database ... amp;practice_type=Multidisciplinary+NET
I am so sorry you are facing this. A NET specialist in a reliable institution works...
https://connect.mayoclinic.org/comment/1606485/
A NET specialist in a reliable institution ... works with a tumor board. ... specialist with a tumor board. ... The Neuroendocrine Cancer Foundation ... /supportline
NET coaching with free
@mir123 I am so glad you mentioned your experience with NET tumors! This is the first...
https://connect.mayoclinic.org/comment/1612012/
tumors! ... about having breast cancer along with Neuroendocrine ... Tumors, & had "conflicting ... " I was found to have NET tumors ... could really be a NET tumor!
@soonermimi A second opinion is common practice and most oncologists are grateful for the added input,...
https://connect.mayoclinic.org/comment/1608479/
competent in his field but not in the Neuroendocrine ... tumors realm. ... We require a NET specialist who works ... /has a tumor board.
@donnalb4 Here is a resource from the Neuroendocrine Tumor Research Foundation to search for a NET...
https://connect.mayoclinic.org/comment/1616310/
donnalb4 Here is a resource from the Neuroendocrine ... Tumor Research Foundation to search ... for a NET Specialist. ... https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
@rdebeer The story of your diagnosis is quite typical for NETs/carcinoid patients. Many of us were...
https://connect.mayoclinic.org/comment/1604432/
your diagnosis is quite typical for NETs ... NET specialists are not in every oncology ... possible, here is a link from the Neuroendocrine ... Tumor Research Foundation with NET ... U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Hello @panorman3, As @mcharlesfrancis and @jlsgt have already suggested, it would be wise to consult a...
https://connect.mayoclinic.org/comment/1607242/
As NETs are a rare form of cancer, a ... NET specialist would be a good choice ... facility, here is a link from the Neuroendocrine ... Tumor Research Foundation with NET ... U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Hello @stephanieann, Given all of your concerns, have you considered getting a second surgical opinion? If...
https://connect.mayoclinic.org/comment/1610916/
so, I recommend that this be with a NETs ... There are NET specialists at all of ... facility, here is a link from the Neuroendocrine ... Tumor Research Foundation with NET ... U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
@soonermimi: If I were you I would get a referral for consultation regarding NET treatment -...
https://connect.mayoclinic.org/comment/1606405/
tumors, how they function nor the specific ... arrange a “tumor board” consultation ... case scenario for your RARE cancer tumors ... Neuroendocrine tumors behave differently ... through Mayo Connect, Lacnets, Carcinoid Tumor
@espelandmt2, such great advice. I'm confident many members here like @hopeful33250 @tomrennie @lindabees @dbamos1945 @pavlina60 and...
https://connect.mayoclinic.org/comment/1597441/
support from others who live with NETs ... also hosts a monthly Zoom meeting for NET ... - Neuroendocrine Tumor Support
I can certainly understand why you feel that way. It seems like it should be as...
https://connect.mayoclinic.org/comment/1607176/
moving the bowel aside and removing the tumor ... Unfortunately, mesenteric carcinoid tumors ... second opinion from a high-volume neuroendocrine ... tumor (NET) center. ... Surgeons who specialize in NETs sometimes
@nannybb The original diagnosis was a neuroendocrine tumor in the breast. But there were four conflicting...
https://connect.mayoclinic.org/comment/1609706/
nannybb The original diagnosis was a neuroendocrine ... tumor in the breast. ... go with Mayo's assessment of NET ... A NET specialist said it could not be ... treated as a NET but as ordinary breast
@fim we didn't think mine was quite carcinoid (it was a non-functioning neuroendocrine tumor, measiring about...
https://connect.mayoclinic.org/comment/1554402/
carcinoid (it was a non-functioning neuroendocrine ... tumor, measiring about 1cm, and still ... Foundation, which is now called The Neuroendocrine ... net without any spaces in between--or ... you can just google "Neuroendocrine
@bijou17 I'm new to neuroendocrine tumors (NET). I haven't had surgery to remove the NET although...
https://connect.mayoclinic.org/comment/1577754/
@bijou17
I'm new to neuroendocrine ... tumors (NET). ... haven't had surgery to remove the NET ... www.mayoclinic.org/diseases-conditions/carcinoid-tumors ... The NET they found was an incidental
Hello @lamz, I see you have been offered some good suggestions from @tomrennie and @fraaseo. As...
https://connect.mayoclinic.org/comment/1589150/
There are NET specialists at all three ... facility, here is a link from the Neuroendocrine ... Tumor Research Foundation with NET ... U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database ... in seeking a second opinion from a NET
I'm so sorry to hear that. I don't beleive this group is limited to just nets...
https://connect.mayoclinic.org/comment/1567878/
beleive this group is limited to just nets ... but all neuroendocrine tumors.
@amygirl Sorry. My reply was confusing. There are neuroendocrine tumors, or NETS and neuroendocrine carcinoma or...
https://connect.mayoclinic.org/comment/1578307/
There are neuroendocrine tumors, or ... NETS and neuroendocrine carcinoma or ... NEC's are more aggressive than nets ... platinum based chemotherapy, which NETs
@pantfan Hello! I’m 79 and 2 years ago suspicious tumors were found in both lungs. Only...
https://connect.mayoclinic.org/comment/1585197/
Neuroendocrine tumors are different ... I made an appointment with a NET specialist ... through with another opinion with NET ... My oncologist is now a NET specialist ... message is to get a 2nd opinion with a NET
@margariida I believe that DC therapy is only available in trials in the US. Here is...
https://connect.mayoclinic.org/comment/1547795/
As you can see, it isn't for NETs ... Here is one resource, Neuroendocrine ... Tumor Research Foundation, that shows ... NET trials: https://netrf.org/2026/ ... available in the US post surgery for NETs
@lisaonthegoco I'm so sorry that you've had to deal with this for so long and told...
https://connect.mayoclinic.org/comment/1556870/
Surgery is for people who have a tumor ... He's a neuroendocrine surgeon. ... --UCHealth Neuroendocrine Tumor Center ... this team specializes in all types of NETs ... Lung NETs and DIPNECH are treated differently
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