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548 total results
Comments (480)
@ggiinnaa Here is a link to search for NET specialists. I did a search for a...
ggiinnaa Here is a link to search for NET ... a search for a multi disciplinary NET ... https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database ... amp;practice_type=Multidisciplinary+NET
Posted: Jun 12 7:37am
I am so sorry you are facing this. A NET specialist in a reliable institution works...
A NET specialist in a reliable institution ... works with a tumor board. ... specialist with a tumor board. ... The Neuroendocrine Cancer Foundation ... /supportline NET coaching with free
Posted: Jun 26 4:35am
@mir123 I am so glad you mentioned your experience with NET tumors! This is the first...
tumors! ... about having breast cancer along with Neuroendocrine ... Tumors, & had "conflicting ... " I was found to have NET tumors ... could really be a NET tumor!
Support Group: Breast Cancer
Posted: Jul 3 1:16pm
@soonermimi A second opinion is common practice and most oncologists are grateful for the added input,...
competent in his field but not in the Neuroendocrine ... tumors realm. ... We require a NET specialist who works ... /has a tumor board.
Posted: Jun 28 7:39pm
@donnalb4 Here is a resource from the Neuroendocrine Tumor Research Foundation to search for a NET...
donnalb4 Here is a resource from the Neuroendocrine ... Tumor Research Foundation to search ... for a NET Specialist. ... https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Posted: 1 day ago
@rdebeer The story of your diagnosis is quite typical for NETs/carcinoid patients. Many of us were...
your diagnosis is quite typical for NETs ... NET specialists are not in every oncology ... possible, here is a link from the Neuroendocrine ... Tumor Research Foundation with NET ... U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Posted: Jun 23 8:49am
Hello @panorman3, As @mcharlesfrancis and @jlsgt have already suggested, it would be wise to consult a...
As NETs are a rare form of cancer, a ... NET specialist would be a good choice ... facility, here is a link from the Neuroendocrine ... Tumor Research Foundation with NET ... U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Posted: Jun 27 8:16am
Hello @stephanieann, Given all of your concerns, have you considered getting a second surgical opinion? If...
so, I recommend that this be with a NETs ... There are NET specialists at all of ... facility, here is a link from the Neuroendocrine ... Tumor Research Foundation with NET ... U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Posted: Jul 2 6:43am
@soonermimi: If I were you I would get a referral for consultation regarding NET treatment -...
tumors, how they function nor the specific ... arrange a “tumor board” consultation ... case scenario for your RARE cancer tumors ... Neuroendocrine tumors behave differently ... through Mayo Connect, Lacnets, Carcinoid Tumor
Posted: Jun 25 8:34pm
@espelandmt2, such great advice. I'm confident many members here like @hopeful33250 @tomrennie @lindabees @dbamos1945 @pavlina60 and...
support from others who live with NETs ... also hosts a monthly Zoom meeting for NET ... - Neuroendocrine Tumor Support
Discussion: Find a NET Friend
Posted: Jun 13 8:18pm
I can certainly understand why you feel that way. It seems like it should be as...
moving the bowel aside and removing the tumor ... Unfortunately, mesenteric carcinoid tumors ... second opinion from a high-volume neuroendocrine ... tumor (NET) center. ... Surgeons who specialize in NETs sometimes
Posted: Jun 27 6:51am
@nannybb The original diagnosis was a neuroendocrine tumor in the breast. But there were four conflicting...
nannybb The original diagnosis was a neuroendocrine ... tumor in the breast. ... go with Mayo's assessment of NET ... A NET specialist said it could not be ... treated as a NET but as ordinary breast
Support Group: Breast Cancer
Posted: Jun 30 10:48am
@fim we didn't think mine was quite carcinoid (it was a non-functioning neuroendocrine tumor, measiring about...
carcinoid (it was a non-functioning neuroendocrine ... tumor, measiring about 1cm, and still ... Foundation, which is now called The Neuroendocrine ... net without any spaces in between--or ... you can just google "Neuroendocrine
@bijou17 I'm new to neuroendocrine tumors (NET). I haven't had surgery to remove the NET although...
@bijou17 I'm new to neuroendocrine ... tumors (NET). ... haven't had surgery to remove the NET ... www.mayoclinic.org/diseases-conditions/carcinoid-tumors ... The NET they found was an incidental
Hello @lamz, I see you have been offered some good suggestions from @tomrennie and @fraaseo. As...
There are NET specialists at all three ... facility, here is a link from the Neuroendocrine ... Tumor Research Foundation with NET ... U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database ... in seeking a second opinion from a NET
@amygirl Sorry. My reply was confusing. There are neuroendocrine tumors, or NETS and neuroendocrine carcinoma or...
There are neuroendocrine tumors, or ... NETS and neuroendocrine carcinoma or ... NEC's are more aggressive than nets ... platinum based chemotherapy, which NETs
@pantfan Hello! I’m 79 and 2 years ago suspicious tumors were found in both lungs. Only...
Neuroendocrine tumors are different ... I made an appointment with a NET specialist ... through with another opinion with NET ... My oncologist is now a NET specialist ... message is to get a 2nd opinion with a NET
Posted: May 28 9:09am
@margariida I believe that DC therapy is only available in trials in the US. Here is...
As you can see, it isn't for NETs ... Here is one resource, Neuroendocrine ... Tumor Research Foundation, that shows ... NET trials: https://netrf.org/2026/ ... available in the US post surgery for NETs
@lisaonthegoco I'm so sorry that you've had to deal with this for so long and told...
Surgery is for people who have a tumor ... He's a neuroendocrine surgeon. ... --UCHealth Neuroendocrine Tumor Center ... this team specializes in all types of NETs ... Lung NETs and DIPNECH are treated differently
Posted: Apr 22 12:45pm