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CT Scan With Contrast showed "nothing" ... How common is this?
A CT scan without contrast showed a "possible" ileal NET which was later "confirmed" along with localized metastatic disease with positive lymph nodes on a Dotatate Scan. Additional evidence included high levels of serotonin and chromogranin A.
A NET specialist working with a NET surgeon wanted a CT Scan with contrast to get better size measurements as a prelude to surgical resection of the NET. There was some concern for a bowel obstruction sometime in the future and surgery was recommended.
The report on the CT scan with contrast reads:
" No evident CT correlate for reported history. No pathologic by size abdominal lymph nodes. No evidence of a bowel obstruction or significant inflammatory change."
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The plan is to start lanreotide every 4 weeks to treat carcinoid syndrome and manage neuroendocrine tumor (NET) growth and to decrease hormone levels. I should be getting a call from the NET surgeon according to my primary care doctor who says I shouldn't interpret this CT scan to mean that I was miraculously cured.
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Hope all goes smoothly.
Hi I am just curious about your situation I’m going for a 6 month follow up for a CT after have a wedge resection for a typical carcinoid tumor with STAS positive but I’m only in care of a thoratic surgeon not a net specialist and recently have had all my blood work abnormal high sugars high cholesterol high hrcsp high urate etc my family dr checked for Cushing’s but it was normal
@bijou17
I'm new to neuroendocrine tumors (NET). I haven't had surgery to remove the NET although surgery has been recommended. My primary site is in my ileum with a couple of metastatic lymph nodes that lit up during a Dotatate scan which they say confirms that the cancer has spread locally to the regional lymph system.
I don't think I'm symptomatic although a NET specialist says I have carcinoid syndrome based on my high serotonin and chromogranin A (CgA) levels and some other symptoms which I said were not a big problem.
https://www.mayoclinic.org/diseases-conditions/carcinoid-tumors/symptoms-causes/syc-20351039
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Surgery was recommended so I won't have a bigger problem with a small bowel obstruction in the future. I'm just trying to figure things out but I know that I don't want the surgery that the NET surgeon discussed with me. The CT-scan with contrast was so the surgeon could get a better idea about the size of my NET but it didn't show anything according to the report.
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If you are asking about Cushings syndrome and cortisol levels that might indicate another problem with your hormones. I'm suddenly more interested in hormone levels. I have several hormone imbalances because of being on prednisone for many years for an autoimmune condition.
The NET they found was an incidental finding but I have been seen by an endocrinologist for several years. I'm wondering if a NET might be related to long term Prednisone use and being immunosuppressed for my chronic inflammatory autoimmune condition.
If it isn't one thing it is another and it seems like it never ends.