CT Scan With Contrast showed "nothing" ... How common is this?

Posted by Mike @dadcue, 1 day ago

A CT scan without contrast showed a "possible" ileal NET which was later "confirmed" along with localized metastatic disease with positive lymph nodes on a Dotatate Scan. Additional evidence included high levels of serotonin and chromogranin A.

A NET specialist working with a NET surgeon wanted a CT Scan with contrast to get better size measurements as a prelude to surgical resection of the NET. There was some concern for a bowel obstruction sometime in the future and surgery was recommended.

The report on the CT scan with contrast reads:

" No evident CT correlate for reported history. No pathologic by size abdominal lymph nodes. No evidence of a bowel obstruction or significant inflammatory change."
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The plan is to start lanreotide every 4 weeks to treat carcinoid syndrome and manage neuroendocrine tumor (NET) growth and to decrease hormone levels. I should be getting a call from the NET surgeon according to my primary care doctor who says I shouldn't interpret this CT scan to mean that I was miraculously cured.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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