ME/CFS – search | You searched for comments

@louisequale You sound angry and I don’t blame you. So many conditions are just not recognized...

https://connect.mayoclinic.org/comment/705746/

Stanford University hospital system has a ME ... /CFS clinic?

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Posted: May 5, 2022

Hi All I am a 25 Yr old male from India. Are there any ME/CFS (Chronic...

https://connect.mayoclinic.org/comment/662855/

Are there any ME/CFS (Chronic Fatigue ... specialists in India who can help me ... met so far have either prescribed me

Discussion: Help with Chronic Fatigue Syndrome

Support Group: Just Want to Talk

Posted: Dec 16, 2021

Hi Kari, I'm just catching up. My life is pretty quiet except just had a crazy...

https://connect.mayoclinic.org/comment/131199/

I was focusing on ME/CFS because that ... they also knew I had MALS and told me ... I was left to manage my ME/CFS symptoms ... They had me mostly on a BRAT diet, then

Discussion: Median Arcuate Ligament Syndrome (MALS)

Support Group: Digestive Health

Posted: Mar 18, 2018

I'm responding to webdog and many others who have been in conversation about Myalgic Encephalomyelitis/Chronic Fatigue...

https://connect.mayoclinic.org/comment/792406/

/CFS) My journey has been long. ... /CFS. ... /CFS as she was doing medical research ... /CFS. ... /CFS.

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Support Group: Just Want to Talk

Posted: Jan 4, 2023

Hi Mark, I am in the process of diagnosis with Dr. Farhad at MGH for SFPN...

https://connect.mayoclinic.org/comment/210953/

David SYstrom at BWH for SFPN from the ME ... /CFS pulmonary angle.

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Feb 9, 2019

@2011panc , thank you for responding. My doctor is indeed compassionate and I value her. I...

https://connect.mayoclinic.org/comment/254279/

The doctor I have now diagnosed my ME ... /CFS two years ago and I'm trying

Discussion: How to talk to my doctor & share research/knowledge I have found?

Support Group: Just Want to Talk

Posted: Mar 14, 2019

I’m glad to hear you’re finding help with a new provider. My first appointment with a...

https://connect.mayoclinic.org/comment/911273/

experienced by people suffering from ME ... /CFS and Long Covid. ... - Women are affected by ME/CFS at

Discussion: PHQ-9 Screening: “ Little interest or pleasure in doing things?”

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 11, 2023

Those sound very similar to the symptoms I had leading up to my diagnosis of ME/CFS...

https://connect.mayoclinic.org/comment/246664/

had leading up to my diagnosis of ME ... /CFS aka Chronic Fatigue Syndrome. ... getting better, my pediatrician sent me

Discussion: Teen with weird mono...or not?

Support Group: Infectious Diseases

Posted: Aug 14, 2019

Hello Natashia @nastashian, I would like to add my welcome to Connect along with @Erinmfs. You...

https://connect.mayoclinic.org/comment/615537/

Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments: https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments

Discussion: Misdiagnosed multiple times I need answers

Support Group: Autoimmune Diseases

Posted: Jul 10, 2021

I dont know how anyone COULD cope well with LC. It is terrible. Very few providers...

https://connect.mayoclinic.org/comment/967190/

my own ( I have had to do this for ME ... /CFS for yrs. as I am a 46 yr. ... SURVIVOR of ME/CFS and Fibro. ... ME/CFS and Fibro. ... It will get me thru this too.

Discussion: Help! Need coping strategies for long Covid diagnosis and symptoms

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 18, 2023

Most helpful in the understanding of why more help/answers are NOT forthcoming from the Medical Profession...

https://connect.mayoclinic.org/comment/96452/

viewing of "UNREST" a documentary about ME ... /CFS on INDEPENDENT LENS---Ch. 9.

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jan 9, 2018

Hi. I am sorry you are going thru all of this. Have you had an endoscopy...

https://connect.mayoclinic.org/comment/751494/

I have ME/CFS which is a post viral ... might want to check out Long Covid or ME ... times but therapy and my faith bring me

Discussion: Running out of hope

Support Group: Just Want to Talk

Posted: Sep 19, 2022

I'm so sorry - I live in south Jersey, and my PCP is in north Jersey...

https://connect.mayoclinic.org/comment/1039465/

willing to join an appointment with me ... She focuses on LC and ME/CFS.

Discussion: Multiple Strange and New symptoms after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 24 11:19am

Yes. I have these. As far as I can tell these are caused my microclots that...

https://connect.mayoclinic.org/comment/794744/

Long-COVID parallels and seems identical to ME ... /CFS. ... Teitelbaum had recovered around 3,000 ME ... and get folks out of Long-COVID and ME ... /CFS.

Discussion: Long haul Covid tremors and muscle spasms

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 10, 2023

Have CKD, stage 3a to b. Goes back and forth. Have multiple cysts in both kidneys....

https://connect.mayoclinic.org/comment/682199/

Also have ME/CFS. ... if you've heard about it, let me

Discussion: I have multiple masses on both my kidneys, non-cancer: Why?

Support Group: Kidney & Bladder

Posted: Feb 18, 2022

CFS/ME center at Stanford University. Long waiting list there and you have to meet the criteria...

https://connect.mayoclinic.org/comment/837569/

CFS/ME center at Stanford University ... How did they diagnose you for ME/CFS

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Apr 4, 2023

Gosh, I sure hope you do. Good to hear that other symptomes hve gone. There is...

https://connect.mayoclinic.org/comment/801450/

been used in many diseases, including ME ... /CFS155, and has also shown promise ... shown to reduce autoantibodies in ME ... /CFS161. ... /CFS literature -Prófa A small

Discussion: How long have you had post-covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 25, 2023

Hello after an illness (upper respiratory) I developed an autoimmune disease for which I am seronegative....

https://connect.mayoclinic.org/comment/727801/

Mayo was a very important visit for me ... finally found out what was wrong with me ... ME/CFS, sleep apnea, autoimmune diseases

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Jul 17, 2022

Hello @chistiania, There are some discussions that you might find helpful learning more about the risks...

https://connect.mayoclinic.org/comment/774808/

Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments: https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments

Discussion: The Chat Room: A place to talk about this and that

Support Group: Just Want to Talk

Posted: Nov 18, 2022

I am now on sirolimus, generic for Rapamycin, which is used off-label for ME/CFS, but is...

https://connect.mayoclinic.org/comment/948274/

Rapamycin, which is used off-label for ME ... /CFS, but is actually a drug for anti-rejection ... Health Rising blog about a dr with ME ... /CFS who was sick with it for 10 years

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Support Group: Just Want to Talk

Posted: Oct 15, 2023