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Comments (2,273)

Did Mayo Clinic test you for serinegative Sjogrens? I was tested for it came up positive....

https://connect.mayoclinic.org/comment/1100768/

Mayo Clinic test you for serinegative Sjogrens

Discussion: Support for small fiber neuropathy with cold intolerance sensory nerve

Support Group: Neuropathy

Posted: Jul 7, 2024

As a MDS person I feel compeled to mention what my Dr. (Oncologist) has tried for...

https://connect.mayoclinic.org/comment/1099658/

also undergoing IvIg infusions for Sjogren

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

I appreciate the input. I will explore the supplements you describe. How are you sure you...

https://connect.mayoclinic.org/comment/1099334/

How are you sure you don’t have Sjogrens

Discussion: Phlegm in my throat and post nasal drip after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 4, 2024

Hi there, I'm beginning to think that the DRS are less than useless. What genetic condition...

https://connect.mayoclinic.org/comment/1097591/

asymptomatic on/off gluten; pSS, primary Sjögren

Discussion: 18 year old battling stomach issues - what should I do?

Support Group: Digestive Health

Posted: Jul 1, 2024

Greetings, my name is Deborah. I live in Lincoln Nebraska . Primary Sjogren's is my diagnosis,...

https://connect.mayoclinic.org/comment/1097335/

Primary Sjogren's is my diagnosis ... is content to stick with my primary Sjogrens ... which is systemic Sjogrens, not just

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jul 1, 2024

I ended up being diagnosed with fibromyalgia in 2002 secondary to the bacterial spinal meningitis. The...

https://connect.mayoclinic.org/comment/1096585/

neuropathy, elner danlos 3, dystonia, RA, Sjögrens

Discussion: Chronic painful muscle knots, widespread

Support Group: Bones, Joints & Muscles

Posted: Jun 30, 2024

Is there burning on the inside or outside of ear. I kept noticing my ear red...

https://connect.mayoclinic.org/comment/1094404/

and said if it’s the whole ear it Sjogren

Discussion: Undetermined Auto Immune

Support Group: Autoimmune Diseases

Posted: Jun 26, 2024

I have seen 2 neurologists for similar symptoms. . Have you gotten an evaluation? Have you...

https://connect.mayoclinic.org/comment/1089951/

I’m also being evaluated for Sjogrens

Discussion: Nerve pain, electric spasms in legs, feet, back, arms etc.

Support Group: Neuropathy

Posted: Jun 19, 2024

Being a "sun worshiper", I have paid the price! I have many auto immune-MS,Lupus, RA, Sjogrens,...

https://connect.mayoclinic.org/comment/1087742/

have many auto immune-MS,Lupus, RA, Sjogrens

Discussion: Getting sick after sun exposure

Support Group: Autoimmune Diseases

Posted: Jun 16, 2024

Yes, I have also read sometimes Sjogrens doesn’t show up on blood tests. I was somewhat...

https://connect.mayoclinic.org/comment/1081498/

Yes, I have also read sometimes Sjogrens ... has improved, and figured maybe not Sjogrens

Discussion: Dry mouth and bitter taste

Support Group: Ear, Nose & Throat (ENT)

Posted: Jun 5, 2024

I also share some of the issues as you! Have you seen a Rheumatologist? I have...

https://connect.mayoclinic.org/comment/1081050/

an appointment to be evaluated for Sjogrens

Discussion: Dry mouth and bitter taste

Support Group: Ear, Nose & Throat (ENT)

Posted: Jun 5, 2024

Hello…my name is Sharon. I’ve been in pain management off & on for a number of...

https://connect.mayoclinic.org/comment/1078663/

I have fibromyalgia, Sjogren’s Syndrome ... stress has caused many flares from the Sjogren

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: May 31, 2024

I have Sjogren’s—sort of. I’m Ro-SSA positive but don’t have very dry eyes/mouth. So I’m kind...

https://connect.mayoclinic.org/comment/1077398/

I have Sjogren’s—sort of. ... Sjogren’s can be associated with myelitis

Discussion: Internal body vibrations all night

Support Group: Neuropathy

Posted: May 29, 2024

Hello Machak, I need answers my self, I have S.F.N., Sjogren's, Hashimoto's and what ever else...

https://connect.mayoclinic.org/comment/1074617/

need answers my self, I have S.F.N., Sjogren

Discussion: Autoimmune illness and small fiber neuropathy

Support Group: Neuropathy

Posted: May 25, 2024

Do you have any positive markers for RA. Sjogrens, Lupus, etc.? A&A blood tests are they...

https://connect.mayoclinic.org/comment/1074571/

Sjogrens, Lupus, etc.?

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: May 25, 2024

I also have sjogrens and have had similar problems only mine occurs as red blistering at...

https://connect.mayoclinic.org/comment/1069713/

I also have sjogrens and have had similar

Discussion: Does anyone have a solution for blistering around the lips bc of sjog

Support Group: Autoimmune Diseases

Posted: May 17, 2024

Hi awesomemomx2, Thanks for the concern. No, no fractures, thank goodness. Am doing well on the...

https://connect.mayoclinic.org/comment/1067484/

But because of my Sjogren's, i struggle

Discussion: Support For Those Quitting Prolia

Support Group: Osteoporosis & Bone Health

Posted: May 13, 2024

Welcome @jgoodall, A sunny disposition goes along way when dealing with neuropathy and a lot of...

https://connect.mayoclinic.org/comment/1055903/

You mentioned erythromyelagia and Sjogren

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Apr 23, 2024

Hello and thank you for this support group! I have been scanning through the posts to...

https://connect.mayoclinic.org/comment/1055898/

I have Sjogren’s as well.

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Apr 23, 2024

Thanks for the link, although it doesn't look promising - the only local is ASU Health...

https://connect.mayoclinic.org/comment/1054941/

likely medical scenarios are early Sjogren

Discussion: So disheartened

Support Group: Neuropathy

Posted: Apr 21, 2024